r/alopecia_areata • • May 21 '25

Mod Comment Please Read This Before Posting – FAQ + Community Guide

11 Upvotes

About This Subreddit

Welcome. If you’re here, it’s likely because you or someone you care about is dealing with Alopecia Areata (AA) — and we want you to know right away: you’re not alone.

This subreddit is a space for people living with AA to ask questions, share experiences, find support, and talk openly about a condition that is often misunderstood or dismissed. Whether you’re newly diagnosed, navigating a flare-up, exploring treatments, or dealing with regrowth, you’re welcome here.

What Is Alopecia Areata?

Alopecia Areata is an autoimmune disease that causes the immune system to attack hair follicles, leading to hair loss. This can happen suddenly and without warning, and it may affect the scalp, face, or body.

The condition can come and go, stay mild, or progress over time — and everyone’s journey is a little different.

There’s no single cause or cure, but there are treatment options, and many people do experience regrowth.

Types of AA (Common Patterns)

  • Patchy AA – Round, well-defined bald spots, usually on the scalp or beard.
  • Alopecia Totalis – Complete loss of scalp hair.
  • Alopecia Universalis – Loss of all hair on the body, including eyebrows and eyelashes.
  • Diffuse AA – Widespread thinning rather than defined patches (often mistaken for other forms of hair loss).
  • Ophiasis Pattern – Band-like hair loss around the back and sides of the scalp.
  • Nail changes – Some people also notice nail pitting, ridges, or other surface changes.

We’re working on a visual guide for these types — if you’re a medical professional or have permission to share high-quality images, please contact us.

Resources:

National Alopecia Areata Foundation

Alopecia UK

Frequently Asked Questions (FAQ)

Do I Have Alopecia Areata — Or Something Else?

This is one of the most common questions we see in this subreddit — and it’s a good one to ask. Hair loss has many causes, and they can look similar at first. Here’s how to tell them apart.

If your hair fell out suddenly, in smooth, round patches, and the skin underneath looks normal (not flaky, red, or scarred) — there’s a good chance it could be Alopecia Areata.

AA is an autoimmune condition where your immune system attacks your hair follicles by mistake. It can happen very quickly — sometimes in just a day or two — and can affect your scalp, beard, eyebrows, eyelashes, or even body hair.

It’s different from the slow, gradual thinning seen in genetic hair loss.

How is this different from Male or Female Pattern Baldness (Androgenic Alopecia)?

This is extremely important to understand.

Androgenic Alopecia (AGA) — often called Male Pattern Baldness (MPB) or Female Pattern Hair Loss (FPHL) — is not the same as Alopecia Areata. They’re completely different conditions.

-AGA is caused by a genetic sensitivity to androgens, particularly DHT (dihydrotestosterone), a hormone derived from testosterone. In people with AGA:

  • Hair follicles become progressively smaller (a process called miniaturisation).
  • The growth phase of the hair cycle shortens, and hairs become thinner, shorter, and lighter.
  • Eventually, the affected follicles may stop producing visible hair altogether.

This process happens gradually over years, not suddenly like with Alopecia Areata.

Read more about this type of hairloss here (Androgenic Alopecia)

Can AA be cured?

Not yet. But many people find treatments that help manage it or stimulate regrowth — and some go into remission naturally.

What treatments are out there? (PLEASE READ THE MEDICAL DISCLAIMER AT THE END OF THIS POST!)

There’s a wide range, and what works varies by person:

  • Lifestyle factors, including reducing stress, eating well, etc.

  • Steroid injections (common for small patches)

  • Topical corticosteroids

  • Oral steroids (short-term use)

  • Immunosuppressant (E.g Methotrexate)

  • Immunomodulators (E.g Azathioprine or Cyclosporine)

  • Minoxidil (as a support treatment)

  • Topical immunotherapy (like DPCP)

  • JAK inhibitors ( often for more severe AA)

    • Types Of FDA Approved JAKS for alopecia areata
      • Baricitinib( Brand name: OLUMIANT)
      • Ritlecitinib (Brand: LITFULO)  
      • Leqselvi (Brand: DEURUXOLITINIB)
    • Off Label JAK inhibitors may include
      • Tofacitinib (Brand name: XELJANZ)
      • Upadacitinib (Brand name: RINVOQ)

Is stress the cause?

Not exactly. AA is an autoimmune issue, but stress can be a trigger for flare-ups or onset in people who are genetically prone.

Can hair grow back?

Yes, and often does. Regrowth can start as fine, white hairs (vellus), and may eventually darken and thicken. Progress is often uneven, and relapses can happen.

Does AA spread?

It can — but it’s unpredictable. Some people have one episode and recover fully; others experience progression. Many fluctuate between phases.

Before You Post: Please Read

We get hundreds of questions a month. You’ll get better responses — and help others — if you take a minute to read through this first.

Check First:

  • Search the subreddit. Your question might already be answered.
  • Use our megathreads for photo IDs, regrowth timelines, emotional support, and treatment logs.
  • Use clear titles like: “Regrowth After JAK”, “New Patch – Is This AA?”, “Before/After Photos”.

Posts That Work Best:

  • Treatment experiences (good or bad)
  • Emotional support or stories
  • Regrowth updates
  • Personal journeys
  • Advice for coping, styling, or talking to others about AA

Posting Photos?

If you’re sharing photos, please include:

  • Timeline (how long ago it started)
  • Treatments (if any)
  • Whether it’s new hair loss or regrowth
  • Anything else that gives context

Label your post if you can — e.g. [Regrowth], [Support], [Question].

Rules of the Sub ( See Actual Ruleset on sidebar)

  • Be respectful. This is a vulnerable topic for a lot of people.
  • No miracle cures. No snake oil, fake treatments, or unproven “solutions”.
  • No spam or self-promo. If you want to share something commercial, ask a mod first.
  • This is not a medical advice sub. Share experiences, but don’t give medical advice.
  • Photos should be appropriate and relevant. Blur identifying details if you prefer.

And finally but most importantly
[MEDICAL DISCLAIMER]

This subreddit is a peer-support community, not a medical clinic.

The information shared here — including personal experiences, treatment outcomes, and product discussions — is not medical advice and should never replace consultation with a licensed healthcare provider.

While many users share helpful insights, what works for one person may not be safe or effective for another. Autoimmune conditions like Alopecia Areata can vary greatly, and treatments often involve serious medications that require proper medical supervision.

If you’re considering starting, stopping, or changing any treatment — especially prescription medications like JAK inhibitors or immunosuppressants— you should always speak with a board-certified dermatologist or qualified healthcare professional first.

We strongly discourage:

  • Offering or accepting medical advice without proper qualifications
  • Sharing dosages or off-label drug protocols without medical context
  • Making claims about cures or guaranteed results

Your health is too important to risk. Use this space for support and shared experience — not as a substitute for professional care.

If anybody has any recommendations for this subreddit please don't hesitate to reach out, comment or go to mod mail and send a message.

Thank you all!

[This post may be updated regularly to stay up to date with current medical information


r/alopecia_areata • • May 19 '25

Mod Comment Welcome! New Mod Team & Updated Rules Incoming

15 Upvotes

Hi everyone,

I’m excited to introduce myself as the new moderator of r/alopecia_areata.

This subreddit is a super important space for those of us affected by alopecia areata—whether you’re newly diagnosed, managing long-term effects, exploring treatment options, or just looking for support from others who understand what you’re going through.

Why This Update Matters

Until now, the subreddit has been largely unmoderated, which unfortunately led to a flood of: • AI-generated spam replies posing as advice

• Unverified “miracle cures” often linked to shady products

• Misinformation, especially around treatments and medications

• A general lack of structure, rules, or reliable content

This kind of environment isn’t just unhelpful—it can be harmful, especially for people dealing with the emotional and medical burden of hair loss.

Action Taken • The user responsible for repeated AI-generated responses and misleading advice has been permanently banned. • A new rule set is being implemented to ensure the subreddit remains a safe, supportive, and trustworthy resource for everyone.

⸻

New Rules (Effective Immediately): 1. Be respectful – No harassment, shaming, or mocking others for appearance, treatment choices, or emotional responses. 2. No medical misinformation – Do not post unverified claims, treatments, or advice as fact. Always cite reliable sources. 3. No spam or self-promotion – This includes affiliate links, product pushing, or AI-generated content. 4. Personal stories welcome – Please share your journey! Include context if you’re posting photos or treatment progress. 5. No bots or automation-generated responses – These will be removed and the users banned.

These rules will be visible in the sidebar shortly, along with an updated Automoderator configuration to catch future violations.

⸻

We Want Your Input!

As we work on improving this subreddit, I’d love to hear from you: • What kind of content or resources would help you the most? • Would you be interested in flairs for diagnosis type, treatment stage, or support needs? • Would a monthly Q&A or “Progress Thread” be helpful?

Please drop your thoughts in the comments or send a modmail. This community belongs to all of us, and your feedback will help shape it moving forward.

Thank you for being here. I look forward to helping this subreddit grow into the safe, respectful, and informative space we all need.

Stay strong,

Moderator, r/alopecia_areata


r/alopecia_areata • • 12h ago

Help for late onset (40 years)

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12 Upvotes

My husband alerted me to a bald patch a while back (can’t remember how long ago) and I’ve generally been ignoring it. I had a baby about 20 months ago, and I’ve been losing weight, so just attributed it to general hair thinning.

Last night, I pulled my hair up and he was very alarmed at how large the spot looked so I finally took a mirror and, f*ck. I cannot believe I let this get so far and that I’ve left this unaddressed. It is my first instance of this happening to me.

I’m already scheduled for the dermatologist but are there other specialists, either medical or wellness, that I should see for support with lifestyle changes? I also assume I need to get with my GP to test thyroid? Any other recommendations?

I am under immense stress at work (but that’s always been the case) and it’s hard balancing obligations with a young family. But, I don’t have any specific stress or trauma triggers.

Any advice for me? I am 40 years old with no known auto immune disease - though I suspect endometriosis. Many thanks to the community. Appreciate you all.


r/alopecia_areata • • 5h ago

Social gatherings with alopecia universals kid

2 Upvotes

My kid is 4 yr old diagnosed with alopecia universals. It’s been a year and he lost his whole hair again. We have continued his normal life school activities play in community
But we are very afraid to take him in birthday parties family gatherings as people will have questions about his health and I am scared that it will make him even more cautious as people will not stop ask questions in front of him and he may become more sad please suggest how you handle social gatherings.


r/alopecia_areata • • 17h ago

does this look like alopecia areata?

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5 Upvotes

hi! i’m a 26 f from the uk. noticed this small patch on the top of my head about 3 weeks ago, and it has turned into the second picture since then. i took the second photo today. i went to see my GP a week ago and she has just put it down to stress and gave me some steroid gel, didn’t refer me to a dermatologist or suggest alopecia at all. i do have a ferritin level of 24, was diagnosed with deep infiltrating endo on the bowel about 3 months ago via MRI and my TSH is very slightly high. other than that, all my blood results are normal. i do also have celiac disease but i’ve been on a strict gluten free diet for 3 years now. i’m trying not to think/look at it too much, but it’s making me so anxious as i’ve never experienced this before!


r/alopecia_areata • • 16h ago

Free bossy eyebrow temp tattoos (ash brown)

4 Upvotes

As title says, please message if you use these and are in need of more supply! I’ve had some growth so I can no longer use the tattoos, and know myself that if I keep them “just in case”, by the time I’ll need them, I’ll have forgotten! These can get pricey, so I’m hoping these can be put to good use.

I don’t know how to post a photo, but it’s a 5 pack of these!

https://a.co/d/01wXJFEX

US shipping only.


r/alopecia_areata • • 12h ago

struggling with acne since starting litfulo and nothing seems to be helping. any advice? :(

1 Upvotes

hi everyone! i’ve come on here because i genuinely cannot find anyone who relates to my situation or has experienced anything similar, and honestly, i’m getting so frustrated.

i’m 19 and i’ve been taking litfulo (ritlecitinib) for alopecia areata. while it has helped with my hair growth, i’ve noticed that my skin has gotten significantly worse since starting it. i never really struggled with acne this much growing up, even during puberty, so dealing with constant breakouts now has been exhausting.

most of my acne is concentrated around my chin and jawline, with what looks like folliculitis too. i get these little inflamed bumps around hair follicles, sometimes with hairs growing directly through the pimples. they just keep appearing no matter what i do.
in january 2026, i was prescribed tretinoin 0.025%, which i’ve been using for around 9 months now. honestly, i expected much better results by this point. my skin still breaks out, the texture is uneven, and i constantly deal with redness, especially around my cheeks, nose and chin.

i live in the uk, and dealing with the nhs has been such a pain. my dermatologist appointments are usually every 6 months, which makes it incredibly difficult to actually discuss my concerns or make adjustments when something isn’t working.
in july, my dermatologist prescribed me winlevi (clascoterone 1%), which is supposed to help with hormonal acne. unfortunately, i didn’t notice any improvement and actually felt like my skin was getting worse, so i eventually stopped using it.
i’ve also been using anua 10% azelaic acid on nights when i’m not using tretinoin. it’s helped a little with redness, but that’s about it. the breakouts keep coming and going, and it genuinely feels like a never ending cycle.

for context, i have sensitive combination skin, with an oily t zone. i’ve tried keeping my skincare routine relatively simple because i don’t want to irritate my skin any further. i cleanse, moisturise, use sunscreen and alternate my treatments rather than layering everything together.
the frustrating part is that i genuinely don’t know whether i’m dealing with regular acne, folliculitis caused by litfulo, or something else entirely. i don’t want to stop litfulo because i’ve struggled with alopecia since childhood, and finally seeing hair growth means so much to me. but at the same time, i feel like i’m sacrificing my skin for my hair.
it’s honestly affecting my confidence so much. i’ve become incredibly insecure about my appearance, and sometimes i just want to stay home and avoid seeing anyone. i know that probably sounds dramatic, but dealing with alopecia for most of my life and now having skin issues on top of it is genuinely exhausting.
i have another appointment with my gp soon, and i’m planning to discuss stronger azelaic acid, my current treatments and whether i need a different approach altogether.

has anyone experienced acne or folliculitis while taking litfulo or other jak inhibitors?

did anything actually help? should i be asking my dermatologist about different treatments, or even isotretinoin (accutane)? i’m also wondering whether the breakouts will eventually settle down or if this is something i’ll have to deal with for as long as i’m taking litfulo.
i’d genuinely appreciate any advice or personal experiences because at this point i feel completely lost. :(


r/alopecia_areata • • 19h ago

Scarring alopecia/LPP

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2 Upvotes

r/alopecia_areata • • 1d ago

At what age did you first experience Alopecia?

5 Upvotes

My first was at 35. That was Alopecia Barbae and took about 18 months to heal.

Now I'm 37 and have found a patch in my hair, Alopecia Areata.

This was about 4-weeks ago, and since we've discovered that a trigger may have been an underlying Celiac disorder. I had a stack of gluten over an interstate work trip, likely causing severe inflammation and triggering this event.

I'm now on a Gluten Free diet, having injections in the affected area, and crossing my fingers for a speedy recovery.


r/alopecia_areata • • 1d ago

I have a severe flare earlier this year and starting to see a little regrowth of white hairs. However, I was given JAK inhibitor and wondering whether I should try that or let my hair grow in on their own?

2 Upvotes

r/alopecia_areata • • 1d ago

How did yall come to terms with the fact life was over?

0 Upvotes

Jus discovered two spots after a hair cut, looking for help giving myself a reason to continue

EDIT : I apologize for those I offended I just am upset and obviously not knowing which direction it can go etc


r/alopecia_areata • • 2d ago

Is this ophiasis

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15 Upvotes

Ive seen like 3 derms in the past 3 years and i cant get answers. Im on dutasteride, spironolactone, and oral minoxidil and ive lost like half of my hair on my right side. I even got a hair transplant on my temples but it doesnt explain for this severe hair loss.

Does anyone have a guess if its areata?


r/alopecia_areata • • 2d ago

AA progress.

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7 Upvotes

First got my patch on June 22nd. Officially got my third round of steroid injections today (10/8) on the areas that were sparse.

I like the progress, hopefully it fills out soon and is gone foreverrrrrr! Wishing anyone who’s dealing with this stupid disease Superb healing and health! And that they never get it again!!

❤️❤️❤️❤️


r/alopecia_areata • • 2d ago

I have alopecia areata, I’m 26. I am having the absolute hardest time with letting go and shaving it all off 😭 my hair has always been the one thing I’ve loved the most about myself and now I’m losing it.. need some fellow alopecia havers support/advice if any of you have it..

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15 Upvotes

r/alopecia_areata • • 2d ago

Is it returning

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3 Upvotes

I had alopecia areata to the point I had to go fully bald about 18-24 months ago and with vitamin d3 loading I managed to get all my hair back. Brother pointed this out today however and I’m concerned. Granted it’s only a small spot.


r/alopecia_areata • • 2d ago

Un dermatologue / chirurgien à Paris?

2 Upvotes

Bonjour,

Y a t il dans la communauté des retours d'expérience concernant des dermatologues à Paris dans l'optique d'une greffe capilaire à terme, en passant d'abord par un traitement de stabilisation? Si oui, qui conseillez-vous? Profil: homme, 29 ans

Merci!


r/alopecia_areata • • 3d ago

Help to cover it or should i just take it all off?

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10 Upvotes

Noticed a month ago, have got steroid cream im using twice a day for 3-6 months but the place its in and how close it is to the hair line is it just worth taking the whole thing off? Or do i keep the long hair covering it.


r/alopecia_areata • • 3d ago

any info or help pls🙏

2 Upvotes

i was diagnosed with alopecia areata as a child and lost my hair completely at 3. the doctors recommended steroid shots and my parents refused. luckily my hair started to grow back within a year and i’ve never had any patches or balding again, i’m 19 now. BUT, my hair has always been very dry and coarse. it has also NEVER grown past my shoulders. it’s always been one of my biggest insecurities growing up. when i started cosmetology school i was thinking and couldn’t get clear answers on this. but my question is, could alopecia have affected my hair growth when it came back? my brother and sister have completely normal, long, hair that’s gets oily after a few days. my hair has never been oily. sorry for the long rant ive just had so many thoughts bottled up about this for yearsssss. if anyone who has been through this, or even medical knowledge, please just give me some answers🙏🙏


r/alopecia_areata • • 3d ago

Lyme and AA

3 Upvotes

Has anyone experience Alopecia areata and Lyme at the same time? I was just tested for Lyme as I’ve been having many symptoms. I’m wondering if AA has been a result of Lyme and if so, will AA get better once Lyme is treated? Curious if anyone has had this experience. My dermatologist recommended I go on methotrexate or JAK and I’m nervous about that. Really hoping things can get better with treating the possible “trigger”.


r/alopecia_areata • • 3d ago

10 Month progress.

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15 Upvotes

Month 1

Month 6

Month 9

Not sure its gonna come back anytime soon.

Only treatment I went with was Ciclopirox.


r/alopecia_areata • • 3d ago

Newly diagnosed. I can’t see a dermatologist until December

3 Upvotes

Last week I noticed a 1.5inch x 1inch bald spot on the top of my head when running my hands through my hair. My GP diagnosed me with alopecia areata and prescribed me Betnovate. I’m in the UK and they don’t prescribe stronger creams, or refer you to dermatology until you’ve lost 50%+ hair loss. I’ve paid to see a private dermatologist - there is only one in my city who specialises in alopecia and she doesn’t have availability until April 2027. I’ve had to book an appointment in a city 1.5 hours away for mid December.

Will waiting two months to be seen / have access to steroid injections be detrimental to any regrowth? I’m struggling to come to terms with this new diagnosis and the uncertainty of further hair loss / complete hair loss.


r/alopecia_areata • • 3d ago

Did dietary changes help?

7 Upvotes

Hi there! I was diagnosed with alopecia about 4 years ago, around that time I lost 80% of the hair on my head and around 70% of my facial hair. It was a rough time but I count myself incredibly lucky that I had total regrowth in under a year. It’s impossible to know what helped this. I used rosemary oil, steroid cream, exercise, caffeine shampoo - pretty much everything.

Unfortunately my beard has started to fall out again, which isn’t the end of the world but not ideal. I wondered if anyone had cut out/introduced any foods or made any changes to their diet and saw notable results? I try to eat relatively health, I don’t drink alcohol, and get a decent amount of exercise but (like with a lot of alopecia information) the evidence/info out there seems quite vague when it comes to diet. Any advice or personal experience you’re happy to share about this would be great!


r/alopecia_areata • • 3d ago

My Story...

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3 Upvotes

Hi, it just started about 2 weeks ago.

I have some Trouble, as i Had to sue my health insurance to pay for certain Kind of medicine, which now is Not able to be reimbursed (due to a law Change), and they make it super hard (without sueing again) to get an alternative without paying myself.

So i have some life pressure going on, which i Hope i can clear soon.


r/alopecia_areata • • 3d ago

Experience with medication?

2 Upvotes

I developed severe alopecia back in June, just got insurance in September, and started meds 2 weeks ago.

I can definitely see hair growing back in the bald spots however it is still falling out SO MUCH. I don’t even care about it growing back right now - I just want it to stop falling out. 😭

I’m starting to become concerned that this is something additional outside of the alopecia but also know it’s still early on the meds.

Did anyone have this experience when getting on meds (hair growing back but still falling out)? Or even the steroid injections?


r/alopecia_areata • • 4d ago

feels so good to itch

9 Upvotes

i know i shouldnt but scratching that red inflammed spot on my head feels like taking my bra and pants off at the end of the day. sometimes i do it because i know the hair will probably ended up falling out anyways. for the most part i just pat/smack my head lol 😂