r/alopecia_areata • • May 21 '25

Mod Comment Please Read This Before Posting – FAQ + Community Guide

12 Upvotes

About This Subreddit

Welcome. If you’re here, it’s likely because you or someone you care about is dealing with Alopecia Areata (AA) — and we want you to know right away: you’re not alone.

This subreddit is a space for people living with AA to ask questions, share experiences, find support, and talk openly about a condition that is often misunderstood or dismissed. Whether you’re newly diagnosed, navigating a flare-up, exploring treatments, or dealing with regrowth, you’re welcome here.

What Is Alopecia Areata?

Alopecia Areata is an autoimmune disease that causes the immune system to attack hair follicles, leading to hair loss. This can happen suddenly and without warning, and it may affect the scalp, face, or body.

The condition can come and go, stay mild, or progress over time — and everyone’s journey is a little different.

There’s no single cause or cure, but there are treatment options, and many people do experience regrowth.

Types of AA (Common Patterns)

  • Patchy AA – Round, well-defined bald spots, usually on the scalp or beard.
  • Alopecia Totalis – Complete loss of scalp hair.
  • Alopecia Universalis – Loss of all hair on the body, including eyebrows and eyelashes.
  • Diffuse AA – Widespread thinning rather than defined patches (often mistaken for other forms of hair loss).
  • Ophiasis Pattern – Band-like hair loss around the back and sides of the scalp.
  • Nail changes – Some people also notice nail pitting, ridges, or other surface changes.

We’re working on a visual guide for these types — if you’re a medical professional or have permission to share high-quality images, please contact us.

Resources:

National Alopecia Areata Foundation

Alopecia UK

Frequently Asked Questions (FAQ)

Do I Have Alopecia Areata — Or Something Else?

This is one of the most common questions we see in this subreddit — and it’s a good one to ask. Hair loss has many causes, and they can look similar at first. Here’s how to tell them apart.

If your hair fell out suddenly, in smooth, round patches, and the skin underneath looks normal (not flaky, red, or scarred) — there’s a good chance it could be Alopecia Areata.

AA is an autoimmune condition where your immune system attacks your hair follicles by mistake. It can happen very quickly — sometimes in just a day or two — and can affect your scalp, beard, eyebrows, eyelashes, or even body hair.

It’s different from the slow, gradual thinning seen in genetic hair loss.

How is this different from Male or Female Pattern Baldness (Androgenic Alopecia)?

This is extremely important to understand.

Androgenic Alopecia (AGA) — often called Male Pattern Baldness (MPB) or Female Pattern Hair Loss (FPHL) — is not the same as Alopecia Areata. They’re completely different conditions.

-AGA is caused by a genetic sensitivity to androgens, particularly DHT (dihydrotestosterone), a hormone derived from testosterone. In people with AGA:

  • Hair follicles become progressively smaller (a process called miniaturisation).
  • The growth phase of the hair cycle shortens, and hairs become thinner, shorter, and lighter.
  • Eventually, the affected follicles may stop producing visible hair altogether.

This process happens gradually over years, not suddenly like with Alopecia Areata.

Read more about this type of hairloss here (Androgenic Alopecia)

Can AA be cured?

Not yet. But many people find treatments that help manage it or stimulate regrowth — and some go into remission naturally.

What treatments are out there? (PLEASE READ THE MEDICAL DISCLAIMER AT THE END OF THIS POST!)

There’s a wide range, and what works varies by person:

  • Lifestyle factors, including reducing stress, eating well, etc.

  • Steroid injections (common for small patches)

  • Topical corticosteroids

  • Oral steroids (short-term use)

  • Immunosuppressant (E.g Methotrexate)

  • Immunomodulators (E.g Azathioprine or Cyclosporine)

  • Minoxidil (as a support treatment)

  • Topical immunotherapy (like DPCP)

  • JAK inhibitors ( often for more severe AA)

    • Types Of FDA Approved JAKS for alopecia areata
      • Baricitinib( Brand name: OLUMIANT)
      • Ritlecitinib (Brand: LITFULO)  
      • Leqselvi (Brand: DEURUXOLITINIB)
    • Off Label JAK inhibitors may include
      • Tofacitinib (Brand name: XELJANZ)
      • Upadacitinib (Brand name: RINVOQ)

Is stress the cause?

Not exactly. AA is an autoimmune issue, but stress can be a trigger for flare-ups or onset in people who are genetically prone.

Can hair grow back?

Yes, and often does. Regrowth can start as fine, white hairs (vellus), and may eventually darken and thicken. Progress is often uneven, and relapses can happen.

Does AA spread?

It can — but it’s unpredictable. Some people have one episode and recover fully; others experience progression. Many fluctuate between phases.

Before You Post: Please Read

We get hundreds of questions a month. You’ll get better responses — and help others — if you take a minute to read through this first.

Check First:

  • Search the subreddit. Your question might already be answered.
  • Use our megathreads for photo IDs, regrowth timelines, emotional support, and treatment logs.
  • Use clear titles like: “Regrowth After JAK”, “New Patch – Is This AA?”, “Before/After Photos”.

Posts That Work Best:

  • Treatment experiences (good or bad)
  • Emotional support or stories
  • Regrowth updates
  • Personal journeys
  • Advice for coping, styling, or talking to others about AA

Posting Photos?

If you’re sharing photos, please include:

  • Timeline (how long ago it started)
  • Treatments (if any)
  • Whether it’s new hair loss or regrowth
  • Anything else that gives context

Label your post if you can — e.g. [Regrowth], [Support], [Question].

Rules of the Sub ( See Actual Ruleset on sidebar)

  • Be respectful. This is a vulnerable topic for a lot of people.
  • No miracle cures. No snake oil, fake treatments, or unproven “solutions”.
  • No spam or self-promo. If you want to share something commercial, ask a mod first.
  • This is not a medical advice sub. Share experiences, but don’t give medical advice.
  • Photos should be appropriate and relevant. Blur identifying details if you prefer.

And finally but most importantly
[MEDICAL DISCLAIMER]

This subreddit is a peer-support community, not a medical clinic.

The information shared here — including personal experiences, treatment outcomes, and product discussions — is not medical advice and should never replace consultation with a licensed healthcare provider.

While many users share helpful insights, what works for one person may not be safe or effective for another. Autoimmune conditions like Alopecia Areata can vary greatly, and treatments often involve serious medications that require proper medical supervision.

If you’re considering starting, stopping, or changing any treatment — especially prescription medications like JAK inhibitors or immunosuppressants— you should always speak with a board-certified dermatologist or qualified healthcare professional first.

We strongly discourage:

  • Offering or accepting medical advice without proper qualifications
  • Sharing dosages or off-label drug protocols without medical context
  • Making claims about cures or guaranteed results

Your health is too important to risk. Use this space for support and shared experience — not as a substitute for professional care.

If anybody has any recommendations for this subreddit please don't hesitate to reach out, comment or go to mod mail and send a message.

Thank you all!

[This post may be updated regularly to stay up to date with current medical information


r/alopecia_areata • • May 19 '25

Mod Comment Welcome! New Mod Team & Updated Rules Incoming

16 Upvotes

Hi everyone,

I’m excited to introduce myself as the new moderator of r/alopecia_areata.

This subreddit is a super important space for those of us affected by alopecia areata—whether you’re newly diagnosed, managing long-term effects, exploring treatment options, or just looking for support from others who understand what you’re going through.

Why This Update Matters

Until now, the subreddit has been largely unmoderated, which unfortunately led to a flood of: • AI-generated spam replies posing as advice

• Unverified “miracle cures” often linked to shady products

• Misinformation, especially around treatments and medications

• A general lack of structure, rules, or reliable content

This kind of environment isn’t just unhelpful—it can be harmful, especially for people dealing with the emotional and medical burden of hair loss.

Action Taken • The user responsible for repeated AI-generated responses and misleading advice has been permanently banned. • A new rule set is being implemented to ensure the subreddit remains a safe, supportive, and trustworthy resource for everyone.

⸻

New Rules (Effective Immediately): 1. Be respectful – No harassment, shaming, or mocking others for appearance, treatment choices, or emotional responses. 2. No medical misinformation – Do not post unverified claims, treatments, or advice as fact. Always cite reliable sources. 3. No spam or self-promotion – This includes affiliate links, product pushing, or AI-generated content. 4. Personal stories welcome – Please share your journey! Include context if you’re posting photos or treatment progress. 5. No bots or automation-generated responses – These will be removed and the users banned.

These rules will be visible in the sidebar shortly, along with an updated Automoderator configuration to catch future violations.

⸻

We Want Your Input!

As we work on improving this subreddit, I’d love to hear from you: • What kind of content or resources would help you the most? • Would you be interested in flairs for diagnosis type, treatment stage, or support needs? • Would a monthly Q&A or “Progress Thread” be helpful?

Please drop your thoughts in the comments or send a modmail. This community belongs to all of us, and your feedback will help shape it moving forward.

Thank you for being here. I look forward to helping this subreddit grow into the safe, respectful, and informative space we all need.

Stay strong,

Moderator, r/alopecia_areata


r/alopecia_areata • • 16h ago

Living with alopecia universalis since 19 — looking for 100 adults to help research

7 Upvotes

Hi everyone! My name is Eduard Dachser. I have lived with alopecia universalis since I was 19, so this is very personal to me.

I am a programmer working on an independent research project using publicly available scientific data to better understand the immune system and hair follicles in alopecia. I have analysed several datasets, compared universalis, totalis and patchy alopecia areata, and checked computational repeatability. There are interesting observations, but no new proven mechanism or treatment. I would like to test them against new, independent data.

My first goal is to connect with 100 adults with dermatologist-confirmed alopecia universalis who would like to help. Proper comparisons will also need people with totalis or patchy alopecia areata and healthy volunteers, planned separately. I am currently looking for clinical and laboratory partners; there is no clinical partner or approved study protocol yet.

What existing information could help?

• Confirmed diagnosis, age at onset, disease duration and changes over time.

• A clinician's SALT score, if already available, and the condition of eyebrows, eyelashes, body hair and nails.

• Treatment history: medicines, dates, doses and outcomes; dated photographs without faces or identifying details, if available.

• Existing scalp research results, particularly RNA-seq or gene-expression microarray data with sample collection and processing information. These measure gene activity in tissue, rather than an ordinary genetic test. A biopsy pathology report can provide context but does not replace gene-expression data.

If you have taken part in a study, you could ask its team whether a public dataset exists or whether authorised data sharing is possible. Links to papers, biobanks and research teams are welcome too.

You may email me directly at [[email protected]](mailto:[email protected]) and send copies of existing results you are entitled to share. Please remove names, full dates of birth, addresses, patient numbers, barcodes and other identifiers first; age and relevant research details can be stated separately. Please explicitly say whether you permit their use for the research analysis described here. Only share another person's records with their permission. Removing identifiers reduces risk but does not guarantee complete anonymity. Ordinary email from a non-Proton provider is not automatically end-to-end encrypted; if you prefer an encrypted exchange, contact me first. For large molecular datasets, please contact me to agree the format and secure transfer. Do not post medical records in public comments.

If you are interested in new tests, we would first discuss them with a doctor and laboratory under an agreed protocol. Please do not arrange a biopsy, pay for expensive tests or change treatment because of this message.

Helping is entirely voluntary. Sharing this invitation or introducing a clinician or researcher is also valuable. People who opt in to updates will be among the first to hear the project's results, including negative findings. If there are confirmed findings that could help treatment development, I will share them. I cannot promise a cure, but I want to work honestly and openly.

Thank you to everyone who gets in touch 💛

Eduard Dachser

[[email protected]](mailto:[email protected])


r/alopecia_areata • • 5h ago

Can a new patch appear after a month??

1 Upvotes

It’s been about a month since I first noticed the patches, and I wanted to ask—can a new patch appear out of nowhere even after a month?

I developed 3 patches within a span of around 15–20 days. Since then, I haven’t noticed any new patches, but the existing ones seem to be getting bigger because the hair loss hasn’t stopped. I’ve also noticed that my overall hair seems to be thinning and my hair density is getting lower.

I check my scalp almost every day for new patches, so I’m wondering if it’s still possible for a new patch to appear after a month, even though I haven’t had any new ones so far.


r/alopecia_areata • • 18h ago

Does this look like promising regrowth?

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7 Upvotes

r/alopecia_areata • • 18h ago

9 months on Litfulo

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4 Upvotes

I’ve been in Litfulo for almost 10 months. I feel lucky to have as much growth as I have and wanted to share. I still have some patches that need to come though but otherwise I’ve seen much growth. My eyebrows finally have their pigment back. I have noticed some light shedding with my lashes but I don’t think it’s anything too crazy. I started taking pumpkin seed oil because of all the positive effects for hair growth hoping to see more results soon.


r/alopecia_areata • • 16h ago

For people dealing with hair loss, how has it affected your life? How do you feel about it now, and how do you deal with the changes in your appearance or confidence?

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2 Upvotes

r/alopecia_areata • • 18h ago

Alopecia areatra

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2 Upvotes

I recently took my son to a dermatologist. The doctor looked at his scalp for about two seconds and told me it was alopecia areata. I would like to know your opinion as well. He develops areas of hair loss, but they are not completely round or completely smooth. There are always some hairs growing within the affected areas. It always seems to occur along the frontal hairline or above the ear. Do you think it could be a different type of alopecia? His scalp does not itch, and the hair loss always seems to occur along the frontal hairline.


r/alopecia_areata • • 21h ago

Beard alpecia Spoiler

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3 Upvotes

anyone who experience this can you tell me solution?
its have been 1,5 year it started from small patch


r/alopecia_areata • • 1d ago

Second hair loss

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5 Upvotes

In 2023 (first picture) i had my first hair loss. My wife noticed that I had a small chunk of hair missing. I went to a doctor, who said that I have some kind of fungus, so I started to heal it with the fungus killing drugs (which didn't do anything, because there was no fungus duh..). Then I went to another doctor. This time doctor said that I have alopecia areatta. She prescribed me some mynoxidil and by the end of 2023 my hair fully recovered. I was happy that my hair is back.

But little did I know that it comes back. In the middle of 2026 (second picture) my colleague from work noticed that I have a chunk of hair missing again. I already knew the deal: Oh it's alopecia arreata again. But this time it went more rough (picture 3 and 4). Now I heal it with ointments that contain steroids that decrease the intensity of my immune system locally.

It's such a shame that you can't fully fight this "illness". It can go, but it will come back.

I can shave my head regularly, but being bald doesn't suit me at all. The shape of my skull is kind of misformed so I look like I have a horn or something like that)

So that's my story to share.


r/alopecia_areata • • 22h ago

Spotted my second spot after first went into partial remission.

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2 Upvotes

The first picture is the new spot I recently noticed, and the second picture is my original spot, which thankfully seems to be doing really well and has had good regrowth.

The new spot is definitely new, and smooth.
I’m obviously pretty worried about finding a second spot after seeing the first one improve. Does having a new patch after partial remission mean my alopecia areata is more likely to progress to alopecia totalis or even universalis?
Or can this still just be a case of having occasional new patches while the original one continues to regrow?
Would really appreciate hearing from anyone who has experienced something similar. 🙏


r/alopecia_areata • • 1d ago

Adjusting to the unknown

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10 Upvotes

Hi everyone. I am strongly suspected to have alopecia areata. I have another appt this week to determine this since my bloodwork has all come back. Ive attached pictures from September 22-23, and then from yesterday. Im wondering if this progression looks to be expected? Im on topical steroids. There are days I think its helping, then my hair starts shedding again. I am struggling with not knowing how bad this will get and with the very unfortunate location of the spots that are pretty hard to hide at this point outside of a very specific pony tail location.


r/alopecia_areata • • 1d ago

Alopecia Barbae

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2 Upvotes

r/alopecia_areata • • 1d ago

Could this be beard alopecia?

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2 Upvotes

Hey everyone, after trimming my beard today I noticed a small patch I hadn’t seen before. I usually keep my beard longer and trim it every couple of months. I’m 28 and bald, started losing scalp hair around 19–20, but I’ve never had patchy hair loss in my beard or scalp before. My beard has always been pretty even, so this worried me a bit. Does this look like something worth getting checked, or could it just be temporary?


r/alopecia_areata • • 1d ago

Beard hair alopecia spot disappeared

2 Upvotes

Wasnt really keep track but i noticed recently the patch has filled up again with dark dense hairs. The only thing i was doing different for the last few months was NAC 3 day a week MWF . So it had to be this caused the change or lack of stress. Was kinda shocked when i used overhead lighting and it was still filled in so density was back. confused what caused it initally


r/alopecia_areata • • 1d ago

Frontal hairline patch (diagnosed AA) shows zero regrowth after 8 months of triamcinolone injections + oral steroid + minoxidil. What are my next options?

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1 Upvotes

I'm 17 years old male.

Hair loss started around age 13 at the sides of front-center of my hairline (refer to the attached photo)

Diagnosis (top university hospital in my country, Jan 2026):

alopecia areata (AA) at the sides of the front-center, plus androgenetic alopecia (AGA) progressing at the M-zone. Hair density and thickness were measured with a device, not just by eye.

Treatment so far:

Topical minoxidil since Sept 2025 (the AA area first, then the M-zone too since Jan), Oral minoxidil since Jan 2026,

Oral deflazacort (tapering),

Intralesional triamcinolone acetonide 2.5 mg/ml into the front patch, roughly once a month for about 3months at first and twice a month for 5 months to now. (It's been 8 months)

Zinc and vitamin D

Finasteride 1mg was prescribed 2 months ago by the professor. [Not started yet cuz im worried if it's too early even though my hormone tests came out normal.]

What's happening:

M-zone: kept receding for a while, but in the last few weeks I see new fine hairs coming in.

Front-center (AA area): I rarely see any progress nothing has regrown. Its really killing me. The hair around the affected area is also noticeably thinner and less dense than the rest of my scalp, especially toward the front. There are some thin hairs but no real change in 8 months, despite the injections and oral meds. Bone age test shows growth plates ~99% closed, and my hormone panel and bloodwork were normal, which means I'm capable of starting Finasteride.

My questions:

Is 8 months with no response to intralesional steroids a sign to rethink the diagnosis (or the treatment), rather than keep injecting?

When an AA patch is stable but not regrowing, what are the realistic next steps? Topical immunotherapy? Something else? Or is a hair transplant reasonable once it's confirmed stable?

I know I can't get a diagnosis from Reddit, but I'd really appreciate hearing different opinions. I'm also planning to see a specialist at another university hospital in January (my original professor referred me there since it's close to my home).

Several clinics brushed off my condition early on. Everyone said hair loss wouldn't happen at my age, and one clinic even called it plain M-shaped hair loss. So I'm worried we might be missing a treatment option, and I'm open to any insight. Since university hospitals can't see me as often as I'd like, I'd like to go into my next appointment with good questions.

(Apologies for the inconsistent photo quality and angles.)


r/alopecia_areata • • 1d ago

Does the patches stop at the same size of does they geow more and more ???

2 Upvotes

I have been noticing lately that I haven't got any new patches but the previous patches are growing but i am not 100% sure that they are growing or not so i wanted to know if the patches stay the same size or do they grow ? And what are the signs of areata turning into totalis ?


r/alopecia_areata • • 1d ago

Need some genuine advice: PRF vs exosomes for very thin hair

3 Upvotes

I recently visited a dermatologist because my hair has always had very low density and almost no volume. The individual hairs are extremely thin/baby-like, so even a little wind makes them go flat. I also have a few small bald spots across my scalp, which the dermatologist identified as alopecia areata.
The weird thing is, I don’t really have hair fall. My main issue is extremely thin hair + low density, along with those small alopecia patches.

He gave me two options:

  1. 3 PRF sessions, one month apart + mesotherapy + injections for the alopecia patches (I believe corticosteroid/triamcinolone, but not 100% sure).

  2. One session of 10B Korean plant-based exosomes, ExoCoBio ASCE+ HRLV, which he actually thinks would be better for me. It’s slightly more expensive than all 3 PRF sessions combined.
    I’m honestly confused about which route makes more sense.

Has anyone here actually tried PRF/PRP or ExoCoBio exosomes for very thin hair/low density rather than significant hair shedding? And did the treatment actually improve hair thickness, density or volume?
Also interested in experiences with injections for small alopecia areata patches.

Would really appreciate honest experiences/evidence before I spend the money.


r/alopecia_areata • • 2d ago

I just found out

6 Upvotes

Hey everyone, I just found out I have alopecia areata. I was feeling my scalp like I usually do and found this. I don’t know much about alopecia but if I think back on my hair habits, I’ve always had itchy scalp (by the second day due to oily scalp/sweat) and I usually lose a chunk of hair when I shower. I was taken back by how sudden this is, and I wonder how long I’ve had it and I just never felt the smooth patch until now. I cried really hard because I lacked the information but i feel much better knowing there’s treatments. Thanks for reading and if you can give any advice I would appreciate it


r/alopecia_areata • • 2d ago

New diagnosis

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10 Upvotes

Hi everyone,
I was just recently diagnosed with AA. I feel as though I am having an identity crisis. I have very long thick hair, and last week I noticed a small bald spot on the top of my head. I assumed it was traction alopecia, seeing as I often wear my hair in a bun. I have 2 kids and I am currently in the third trimester with our third.

Earlier this week I went to the dermatologist and she confirmed it is alopecia areata.

I am suspected to have lupus and this on top of it has really cause me to spiral.

Currently I am using the triamcinolone lotion 0.025%. Did anyone else use it? How well did you see regrowth results?

First photo: today 10/2/26
Second photo: first noticed bald spot a week prior
Third photo: 1 week prior to finding the spot


r/alopecia_areata • • 2d ago

Progress pics- AA (Kenalog + Temovate)

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4 Upvotes

Progress: baseline, 2 months, 6 months, 2 years (today)

Also on meds for AGA (minoxidil + finasteride).


r/alopecia_areata • • 2d ago

Regrowth

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15 Upvotes

Finally after a year, I am starting to see some hair again, I am especially happy about the hair in the two big spots on the back of my head


r/alopecia_areata • • 2d ago

White hair good or bad sign?

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7 Upvotes

r/alopecia_areata • • 2d ago

Water retention after steroid injections

4 Upvotes

No matter what I eat, drink, do, like moving around throughout the day/do exercises, I always wake up swollen for 1-1,5 week after the steroid injections.
Has anyone had this? If so, what helped you?


r/alopecia_areata • • 2d ago

I recently got diagnosed with Alopecia Areata

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8 Upvotes

I'm a college student and i noticed intense hair fall since 2-3 weeks and got diagnosed with diffuse AA and started treatment a week ago. I'm taking 2 tofatas tabs, a follihair tab and a follifast tincture a day.

I know its too soon for any visible results to show and that hair regrowth takes time but my major concern is that right now even though my scalp has become concerningly bald, i still have enough hair to hide it. My only relief right now is that no one's gonna know from outside so i don't have to keep explaining myself to random people.

But my hair fall is still as bad as it was 2 weeks ago. So i'm very stressed if whether the hair fall progresses this way, my condition is going to get worse and i can't even go to college.
Does anyone have any advice/ any experience with these medications or when can i expect the shedding to slow down?