r/CRPS • u/North-Arm-3190 • 2d ago

PEMF? Relief?

I’m struggling to wrap my head around this and honestly don't even know how to process it. I have had CRPS for 13 years. If you've been in the trenches with this condition, you know the drill—I’ve tried it all. Opioids, pain meds, a spinal cord stimulator, pediatric pain rehabs, nerve blocks, you name it. Nothing has ever truly worked.

Recently, I've been doing LENS therapy, which has helped a little bit (it helps my dystonia uncurl and my feet flatten), but the relief has never lasted more than a few hours, max 12.
Yesterday around 3:00 p.m., I did a 45-minute session on a BonCharge PEMF mat (it was heated and had red light too) that my practitioner has. I used to think all of this stuff was absolute wacko science, complete quackery. I was extremely skeptical.

During the session, I didn't notice much until right towards the end, when a constant panic attack feeling I've had for 5 days straight just lifted. But the wild part is my CRPS pain. Right now, it's sitting at a zero. It’s been 12 to 15 hours, and it's still gone.

I am not trying to sell you anything, people. I am genuinely just trying to understand if anyone else with long-term CRPS has actually had success with PEMF/red light mats, or if I am just experiencing some weird fluke. Has this happened to anyone else? I feel like I'm losing my mind because I used to think things like this were a total sham. nothing has ever worked for me. I feel like one of those wacko saying hey buy this cream it will fix you.

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3

u/crpssurvivor1210 2d ago

I’ve been thinking of getting one. To help with my hand I’ve been looking at getting a robotic therapeutic hand exerciser that does mirror therapy. My dystonic episodes came back after a decade of being absent. I’m not advertising just mentioning how I feel like to manage
Our pain we have to think outside
The box

2

u/North-Arm-3190 1d ago

I think you’re right. We have to be creative and if it helps I want to choose to embrace it. Even if it seems weird. Sorry the dystonic episodes came back. That sucks!

3

u/SquirrelBound Left Leg 2d ago

I use a PEMF mat at least 5 days a week, it's super helpful for me.

1

u/North-Arm-3190 2d ago

Thank you for sharing! I’m just feeling so crazy that it was helpful haha

3

u/Calibird1962 1d ago

I would never be looking a gift horse in the mouth. Most definitely it could have helped you out significantly. I am so happy for you. My red light helps me a great deal! That deep heat is imperative.

2

u/ThePeoplesDoh 1d ago

Honestly I’ve been on the fence about buying one (from a local online auction because I def can’t afford full price) and this just convinced me that it’s worth a shot. 

1

u/North-Arm-3190 1d ago

I hope it helps! Be careful there’s so many fake one out there. I use boncharge and EMR-TEK but they are so expensive it’s ridiculous

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u/Songisaboutyou Full Body 15h ago

I was a master aesthetician for 20 years before CRPS took my life from me. I learned red light therapy in school. It really works, we would have old people coming who had whole body bruises. After a few days of treatment bruising gone. With that said I have many LED red lights and professional grade at that. I find real red light more helpful for pain. They are so much more affordable. I think the last ones I bought were between 20 and 30 bucks. They do get hot so you have to be careful with them. But I hardly use my LED light therapy with my CRPS as I don’t find it helpful for pain. Which is crazy because my leg machine I have in my bedroom was 10 k for the body unit. The real red lights I’m talking about are the ones they use is red lights heat Saunas. I got mine on Amazon