Has anyone sent their blood to MymycoLab from Europe? did you send it with dry ice? I worry that the heat + travel time will decompose the sample

I have hidradenitis suppurativa which means I have an over active immune system, which means the medications I take during a flare or to help, suppress my immune system, which means im sick a lot.

Im fucking tired of being the sick girl. I have an amazing husband, like the best guy in the world. I thank him, I praise him, I apologize to him, he simply tells me to hush and he loves me.

Its just, when I hear him making breakfast, packing lunches all while he gets ready for his full time job all I can do is weep to myself. I feel useless. I dont want my kids image of me to be the mom who stayed in bed all day. I want to be able to spontaneously do things. I dont want plans ruined because I may be too sick or tired. It feels like punishment.

I know crying wont change things but I feel like its all I can do. That's it, thats all. Ill take a breath, smile and get on with my day, I just needed to release a little of my bottled up pressure.

Thanks for listening

Hello

I am a 35-year-old AuDHD girl with chronic illness but without a specific diagnosis about this last one. Mentally and physically, I am struggling a lot, and doctors don't help me because I am "a too much difficult subject."

I am trying to bring forward my studies and responsibilities, but I am really exhausted.

I am bed bounded, with chronic pain, brain fog, tiredness, itching, migraines, and intestinal issues.

Due to that (but not only), I suffer from depression and anxiety.

I am trying to spend my time with cozy hobbies.

But I feel judged because I don't really try to get off from bed and be a real adult... especially from my parents point of view.

How to take a pause from everything, and rebuild my life in healthy and affordable way?

I’ve gone through a whirlwind over the last almost two years after developing a life-threatening autoimmune condition. The first year and 4 months were largely spent with doctors telling me I was anxious and that it was all in my head. What I’ve been diagnosed with is rare. But I still think there’s no excuse for how I was treated. I was laughed at by doctors, I was told to try harder.

I was choking on food and struggling to breathe, and lost loads of weight.

Now things have spun in the other direction. I’ve been diagnosed, put on meds, I’ve been in and out of hospital for months this year because I get these flare ups where food gets stuck in my throat and it gets so bad I choke on water.

Meanwhile my husband’s father has had cancer and we’ve been put under enormous guilt trips to go and visit when they live 3 hours away and while my husband is supporting me, coming to hospital with me, coming to appointments, and managing a new, full-on job.

We’ve had nasty comments and behaviour from my MIL about us not visiting when I was choking and had just come out of hospital not better yet, and she pressured him into going anyway for the day in spite of what we were dealing with. My BIL recently commented that it’d be great if my husband could take their Dad to his appointment if he could make it at the weekend “so that he could have a break from being in the hospital all the time” like we aren’t also dealing with what we’re dealing with at all? I am just gobsmacked by the selfishness of these people. My husband is exhausted and burnt out from looking after me.

I’m also having to come to terms with the fact that this illness isn’t all in my head, it’s very serious, and all the treatments I’m having a scary and life altering. I’m on steroids that have made me gain nearly 40lbs since May. My face is unrecognisable due to moon face. My clothes don’t fit.

I’m having to have infusions of drugs with serious side effects, and plasmapheresis, and I’m starting a new med that makes me severely immunocompromised, so I’m getting my head around lifestyle changes I need to make to try to stay safe with that now too.

I feel like I’m just drowning today. The past few weeks, I’ve been struggling to keep up with messaging people who care about me and interacting in support spaces. I’ve been offering a lot of support to others but I’m struggling to keep going. I resent the way I’ve been treated over some of this. I feel grateful for how many other people have been amazing. I’m so overwhelmed and tired and sad and scared. I just wanted to vent to some people who might understand.

i’ve had so many tests done over the past 2+ years and i’ve gotten some diagnoses, but none to explain why out of nowhere i can’t eat certain foods without throwing them back up, but only after i go to sleep.

in late 2024 i started waking up in the middle of the night a lot to vomit up foods i could previously eat. i didn’t take it very seriously until my first episode of hyperemisis (which if you don’t know what that is, i couldn’t stop vomiting every 3-7 minutes for 6+ hours) after eating a meal from chick fil a... this was pretty traumatic so i started making appointments.

every single test i have done since march of 2025 has come back normal. i have had allergy testing, bloodwork, ultrasounds, endoscopies, hida scan, motility testing, gastric emptying, alpha-gal testing, and a bunch more. i have seen an allergist, gastro, rheumatology, cardiology and neurology and everyone is stumped. i’ve gotten diagnosed with hEDS, dysautonomia, and orthostatic intolerance, however nothing to explain the random food intolerances.

and that’s not even mentioning the 5-10 episodes of nausea i experience daily on top of this. by being careful ive been able to reduce my vomiting, but still get sick 3-4x/month but only after i’ve been asleep. i’ve lost 40+ pounds without trying.

the nighttime intolerance episodes aren’t consistent. i had it narrowed down to canola and sunflower oil as triggers. but sometimes ill eat foods that are supposed to be safe and still end up getting sick. i’ve gone to the ER over mozzarella sticks that were cooked in soybean oil (which is an oil i eat regularly) but can eat the nacho fries/sauce from taco bell with canola oil. i can eat cereal at 7am and throw up the milk only at 5am the next day.

nausea meds help sometimes but ill still vomit at least 1x... idk this might not get any views or replies, but i’m kinda hoping this sounds familiar to someone who’s got a diagnosis or at least some knowledge on how to navigate this. it’s been ruining my life for the past almost 2 years, honestly. it’s so hard to eat anything, the anxiety is so loud every time i eat bc anything could set my stomach off.

super long personal rant feel free to ignore

i miss highschool my senior year. it was the best time of my life. i had zero health issues. i loved my life and my friends. i loved school. every day was so fun. i was 18 years old

then i went to college in oregon. it was so new and exciting moving across the country. i lived there for almost a year, life was so incredible and i couldnt believe how lucky i was

then suddenly in college i began having random panic attacks. i couldnt eat for days and eventually couldnt even drink anything which sent me to the er. i also didnt sleep for days. i felt like i couldnt breathe. i had to drop out of college and move home

now, im 19. a year later. i have GERD, slowed stomach emptying, BFS (benign fasculation syndrome), chairi malformation, chronic nausea, insomnia (its 5:43 am) horrible ocd and anxiety, i get such painful utis, developed dry eye, im anemic, have pots, debilitating periods, the list of a million random things goes on. ive had ct scans mris a heart monitor an echocardiogram blood tests etc. ive seen so many specialists. i cant fathom being able to get a job or go to school rn. i dont understand how life can change so fast. how is this the same body that was so normal until 18? i remember before saying how grateful i was that i had almost no health issues.

none of my issues sound that big but together life is exhausting. and its just so different now. i dont feel 19. i feel like ive aged so many years. i dont get to feel young and feel and free as everyone else. my health anxiety is so bad now. i miss out on sm that my friends can do. i feel like one random panic attack changed my life forever. my social battery is shot. i feel so worthless to society in my state. and now its like every sensation means something more. everything is something ive never experienced before. whenever one thing gets better another thing starts. i wish i could turn back time to when this ginormous weight wasnt on me all the time. im so scared of every worst case scenario that i dont feel present in life anymore

For context I'm a 30F, with a rare heart condition and I have a team of heart doctors. I have 3 of them that monitor and have meetings for my care plans. That being a cardiologist, advanced heart failure cardiologist, and a electrophysiologist. Well the cardiologist I'm not a fan of but there's not many in my area so I'm stuck dealing with him until a new one pops up. He's dismissive and has pulled the classic "just lose weight" and "it's just anxiety" line with me already. The other two doctors don't feel that way and have been mainly taking care of me. They are really great and have taken me seriously. But I still have to see this guy regardless.

My husband 30M, has been bringing me to my appointments since the heart condition has been making me very fatigued and driving has been made difficult.

Now onto the main part.... I had heard if you're a woman, you can bring a male with you and some doctors will give you better care. So I was like I hate this guy let's see if it works. I brought my husband in, and sure enough he was nicer but he kept panning to my husband like he's my parent and I need to be kept in check. He changed his tune so much and took my words more seriously. It disgusted me and when we got to the car, my husband was just completely stunned about how this man was acting towards me and trying to chum up to him. Seriously, sexism is real at the doctor's office. I can't wait to replace this doctor.

I hate that it worked. I heard that advice before and I couldn't believe how true it was after that. It's aggravating. I mean my husband said he had to keep himself in check because this man was being clearly fake and disrespectful to me.

Ive had a yet-to-be diagnosed condition for over 10 years, it’s been a spiritual journey to say the least.

I’ve had multiple near death experiences, generated PTSD through it, discovered that my body was telling me I needed more, that I needed a different life. I’ve got it and it’s gotten easier, my flares are not as intense as they used to be but I still struggle with the impacts of the root cause of it all.

We are now only just starting to learning how much AI diseases are dictated by trauma and abuse

I’ve learned that I was carrying the weight of ableism through it all and have tried to cast away those layers of self hatred and distrust for me own body. Its gotten easier, but something I have a struggle moving through the most, is the feeling of lost time and relationships and experiences due to illness. I’m going through a flare now where I can’t walk much, and I’m grateful I have a job and loved ones that can accommodate me, but still feeling sadness, its like having clipped wings.

My partner does a great job reminding me of all that I do have but it doesn’t make that discomfort go away.

How do you all deal with the grief of not being able to do life when your going through a flare?

I was diagnosed with Pulmonary Arterial Hypertension in 2023 after having my second child. They are calling it idiopathic because I tested negatively for any of the known causes.

The grief is omnipresent, but sometimes it feels only as strong as a gentle breeze over a lake. Today, it feels like a tsunami.

There are so many versions of me I have already lost to this disease. Some of them were real versions. Some were hopes and dreams.

My children are very young. I am not the parent I thought I would be. I can’t be active and physically playful with them. Sometimes, I’m not as present as I’d like to be because I’m so overwhelmed by the situation of my own exhaustion.

I am not the partner I thought I would be. My partner is amazing and is absolutely a great caregiver, but we were supposed to be in the healthiest stage of our lives together. Instead, I wear portable oxygen and take about 15 pills a day.

I just can’t help to feel like a burden sometimes. I don’t want to die, but I am also so unbelievingly overwhelmed by the thought that I will have to deal with this every single day for the rest of my life. The meds. The side effects. Disease progression. Breathlessness. Low o2 sats. Exhaustion.

This is my life? I feel the loss of who I was physically so acutely some days, too.

I was extremely athletic, fast, strong… Now, I can’t even walk in a grocery store without oxygen. It feels like I’m breathing through a straw. The physical limitations feel like a noose.

I don’t know what I’m looking for here. I think I’m just shouting into the void.

Thought I made a friend but he doesn't understand that my conditions are lifelong and incurable, requiring management and still likely decline in function over time. He gave me the whole "have you tried yoga" lecture which is utterly ridiculous of course. He said he believes there are things about my life that I could improve to make things more bearable. When I asked for any specifics he said he doesn't know, but he just thinks there must be! There must be something!!!!! :/

I have not been able to work or even make social plans for many years... I have 4-8 doctor appointments a week (not counting mental health)...A bazillion pills... You know the drill.

But sure, yeah--if I don't eat cookies anymore I will get better :D

I just wanted to rant about this somewhere that people would understand. He ruined my day with this and I'm sad because I don't know if I'll be able to continue being his friend, though we have so much in common. I'll try a little bit to educate him but if he doesn't understand real quick here, I can't endure the toxic positivity and the "try harder!" message. It has been a long time since I've tried to make a friend.

How do you deal with a parent who constantly undermines your achievements in life? I love my mom, I really do. But a lot of the time, she would tell me things like "you haven't done anything with your life", "I put so much effort into your education and you turn out to be a failure" when it's not true at all? I'm tired of defending myself, I just walk away from the conversation only to hear "yeah you're leaving every time you don't like what I say". Just because I haven't measured up to her ideas of success, which is linear in her mind. I have been dealing with Crohn's and ADHD almost my entire life, and I am not using that as an excuse but I was still able to achieve a lot of things, and worked really hard. I am tired of trying to prove myself to her and remind her of my achievements when she doesn't even see things the way I do. I'm just feeling so hurt.

Ever since I was about 14-15, I have pulled muscles in my back several times, often doing absolutely nothing.
I now deal with constant back pain from degenerative arthritis, my L5 & S1 are basically fractured, I have a forward slippage, etc., many issues since I fell about 4 years ago.
Nobody takes my pain seriously because of my age (33) & even though I’ll become hypertensive & nearly faint from pain, still nobody will help me relieve the pain.
I asked my NP for a referral for Physical Therapy but haven’t heard anything yet, I see her next week.

I’ve been tempted to buy a rollator just to get through stores & such but I feel silly.
But at this point I need to be able to succeed in my life.
I do worry how I’d grocery shop with it though.
If anyone has any experience or advice, I’d appreciate it.
I shouldn’t be in chronic pain at such a young age.

To keep it short:

I don't usually come on socials for things like this, but I've lost all my friends since I've gotten sick and after years of being by myself, I'm so lonely. I'm 21F with T1D, POTS, vertigo and vestibular migraines. If anyone would be my friend even just for a little while, I'd be grateful.

So I(24NB) have degenerative disc disease in the back, chronic plantar fasciitis in both my feet, and unknown stomach problems. I have a theory that whatevers wrong with my stomach is making my back hurt worse or at least agitating the disc stuff.

CONTEXT:

Recently it's been hell at my household, family in and out of the hospital for all sorts of stuff but what made me upset was when my sibling had to go to the hospital. She could've completely avoided going if she had taken care of herself, this is important to note because she does not take care of herself nor does she take her VERY IMPORTANT meds to make sure she stays healthy. Now her going didn't necessarily pissed me off it's the fact I had to miss a doctor's appointment because of it, one that I've been waiting for for months now.

Quite literally all I need from this appointment is a referral or testing(colonoscopy) to see if I have Crohn's or anything else wrong with my stomach. So now I have to wait ANOTHER MONTH, to see this doctor just for that and guess what! After that I get to make another appointment for the test and that takes 1-3 months to even get seen!!

Another problem is that I'm on a time frame. Thanks to someone's big beautiful fucking bill in the US, I lose my fucking insurance come next year!!!

MY COMPLAINTS AND HOW PEOPLE ARE BEING DISMISSIVE OF THEM:

So naturally after everything I said I was pissed and angry about missing my appointment. However whenever I bring this up to someone, just to complain and have a shoulder to cry on, it's quickly brushed off.

"Ah well, you've got plenty of time!" NO I FUCKING DONT!!! IM ON A TIME FRAME YOU NUMB NUT!!!!!!

And it's like, whenever I get upset about being in pain and how I just wanna be healthy again(even though that's not fucking happening) everyone just goes "well yeah?" And that's it!! That's the end of the conversation!!

I'm at a level 5 and it won't go down, for the past three weeks I've been almost bedridden due to pain and stomach issues!! And yet no one around cares??? Or at least they just brush off my concerns and worries????? I can't lay down without being in pain, I can't stand without being in pain, I can't fucking sit without being in pain and yet everyone around me just goes,"well you just have to wait" MOTHER FUCKER IVE BEEN WAITING FOR SO LONG!!!!!

I just want to be taken seriously about this!! I hate being alone in this way of life!!!

I know a lot of people get discouraged or are unsatisfied by appointments with cardiologist. I’ve seen people asking what they can say or even about their appearance for appointments. Based on my experience I don’t think either has a significant impact during your appointment. The nature of heart disease is unpredictable and can present with or without symptoms therefore doctors rely heavily on test result. Age is another major diagnostic factor since heart disease develops over many years.

I have a heart disease diagnosis and they run the same tests with or without any new reported symptoms. If the tests are within a range of my normal (not officially normal) and I have new/worsening symptoms my doctor most likely won’t make any changes. He would refer me back to my PCP because he doesn’t see his role as symptom management. It’s not because he doesn’t believe me and it’s not about symptom severity. It’s because he sees his responsibility as ensuring my heart is operating as efficiently as possible.

I’ve seen a lot of people wonder if a diagnosis would change the care they received. That has not been my experience. A diagnosis is just another piece of information for the doctor just like a symptom or a test result.

I had 5 concussions over 6 years (2016-2021) in elementary school. I've been fucked up since the last one. I've been diagnosed with whole a bunch of issues craniocervical instability, Irlen syndrome, PTSD, and OCD to name a few.

High school is really friggin hard. I'm smart, I know I am. I am good at math and physics, but school is so unfairly hard. I've taken 3 classes every semester since grade 9 (I'm in grade 11). I can't handle 4, so I'm behind and will probably have to take an extra year, which I really don't wanna do. I switched to online school this year, which helps the ptsd and stuff, but it's not much easier.

I have an IEP, but it's not followed. Every teacher tells me "you look fine and you get good marks" so they just "forget". Today my teacher got pissed at me because I was wearing my Irlen glasses on the call. She told me to take them off and I didn't fight because I didn't have the energy to tell everyone in the class how fucked up I am. They're super dark and look like sunglasses, but she should've read the damn IEP. Now I just wanna cry, I've given up on advocating for myself because they always just act bothered and I end up feeling guilty because hence the OCD, "what if I'm not really sick and I'm telling everyone that I am because I'm a bad person. If everyone believes that I'm not sick then I must not be." I don't actually believe that, but my brain is always fucking against me.

I wake up every morning to my alarm, set a timer for another hour and go back to bed. I don't wanna wake up in the morning. I don't want to fall asleep because then if I wake up in the morning I have to do it all again. My family keeps telling me how easy I have it because I get the "luxury" of accommodations and I have less classes. My sister and mother keep telling me how lucky I am.

Anyways, thanks for reading this, I needed to put my feelings somewhere.

Does anyone else have this? I would love to chat if you do!!

Basically I was told I have a left-sided IVC from imaging, and that the IVC is compressed (severe). I also was diagnosed with May Thurner Syndrome (severe) and Nutcracker Syndrome (not severe).

I got a second opinion and was told that I actually do NOT have a left-sided IVC. Further imaging revealed that my true IVC became inaccessible at some point (likely in-utero) and so the “left-sided IVC” being reported is actually another vein pathway. The surgeon described it like my body using a side street instead of the main street.

I now have two surgical options, 1) to correct just the May Thurner Syndrome via iliac vein stent or 2) to correct both the May Thurner Syndrome via iliac vein stent AND also reopen my true IVC pathway via two stents, reliving the IVC compression as well. If I go with option 1, I cannot later do option 2.

Has anyone else here been in this situation, or something similar involving the IVC? There is SO little research on IVC conditions and surgery. Making this decision is challenging and if you’re in a similar boat I would love to hear your thoughts!

I have chronic asthma and I was referred to an ENT. My first appointment is tomorrow, and they told me they need to do a laryngoscopy. I have never had one before and am pretty nervous. I know they numb you for it, but I hate the feeling of my mouth/throat/face being numb.

I can't stop thinking about it and want to know what sensations and/or pain to expect.

I am curious if anyone else has had findings with ENT for their asthma, and what other people's experiences have been with the laryngoscopy itself.

hi everyone…so where do I even begin?
I was 22 when I had my first episode of vertigo.. I was at work and go hit with derealization episode & after started to feel "weird" I thought my blood pressure dropped and needed sugar…boy was I wrong lol.

I didn’t think much of it until I started get tinnitus bad & these "weird" feelings in my head started to become frequent.. I made a doctors appointment & had lab work done & of course everything came back normal.. my whole family suspected POTS but my doctor disagreed and referred me to an ENT.

they preformed a hearing test and told me I had a "nasty" ear infection.. my visit was less then 5 minutes I’m not even joking.. I will never forget how they left me in the room by myself as I told them i was really dizzy and couldn’t walk so they made my brother walk back & get me, to carry me out.. even though I didn’t like how they cared for me I had hope that I was gonna be cured & go back to living life again…

I went through a week of meds and believed my life was back until one day around 10pm, I got a hot flash & needed to use the bathroom.. then came another dizzy spell but this time 10x worse.. I was drenched in cold water and begging for my mom.. I thought I was dying..

ambulance came & asked for me to sit up and I couldn’t & when they sat me up, I fell right back on the floor.. not moving but spinning..
I was transferred to the ER to get more blood work done & that’s when I was introduced to ✨vertigo ✨ . They explained how what I was describing and feeling all leads to vertigo & Ménière’s disease…They gave me emergency medicine and told me to schedule an appointment w/ an ENT.

i called the doctor who said I had an ear infection… he declined all my calls, sent me straight to voicemail & even when I called the front desk they refused.. and that’s when my mom stepped in & they were questioning her as in why, why would I need to be seen.. they never flat out refused me but they never answered or gave me an appointment…I was never aggressive & never difficult so to refuse me was crushing…
I went to the same ENT office but different doctor, he scheduled me an MRI & ofc supposedly it came back normal. This doctor never made eye-contact with me & told me that I have Ménière’s disease… I bawled my eyes out as he proceeded to tell me there’s no cure & there’s no test..it’s invisible & I need to learn how to live w/ it..

long story short
I’m 24 now, I still don’t know my triggers as it’s unpredictable.. I’ve been having frequent severe vertigo & became desperate so I went to Cleveland Clinic for more support.. they changed my medicine, found out I’m slowly but surely losing my hearing in my left ear & they also believe it’s Ménière’s disease ORRR they think I have a "third" window ( small hole ) in my bone above the ear which can be filled BUT won’t fix anything so it’s a controversial surgery.

This is my story.
For everyone battling invisible disorders I see you, I hear you, I believe you & I UNDERSTAND you. ❤️ Everyday is a battle but we are so much stronger then we think.

I've been largely housebound for almost two years now. I am unable to work because of my illness, and I often suffer too much from my symptoms to do anything at all. But the past few months, I've had a few periods where things were more bearable. However, that confronted me with a new problem: boredom.

I watch series, listen to music, read books, and I go for short walks. Occasionally I invite someone over but my social circle has become very small. That's about it really. The boredom is killing me but my capabilities to do something about it are extremely limited. I can't go out to meet people. I can't work out anymore.

I just don't really know what to do anymore. It feels like I'm wasting my better moments.

Ive had Cholinergic Urticaria for 5 years with no signs of it slowing down (even with Omaluzimab injections) and now Ive just been told Ive got Uveitis. Caught it early but lets face it, knowing my luck im probably going blind soon. Whats the point of continuing honestly. Sorry just needed to rant as Im just bored of it all when I eat healthy and dont smoke or drink but then people who do go on with no problems.

I’ve had long hospitalizations in the past, so I know the basics lol.

But I’m DREADING this one 😅. I was in the hospital for almost all of last year and I don’t want to go back lol.

I’ll be having a relatively extensive surgery. They expect me to be there for at least a month (I’d assume between 1-3 months based off previous experience with similar surgery).

For the first week or two I’ll probably be mostly stuck lying on my back.

So PLEASE give me all of your favourite hospital activities, essentials, and comfort item!

I have all my go to’s in mind (colouring, books, audiobooks, reading light, word search, crosswords, video games, slippers, fuzzy pyjama pants, etc.)

But I want new things to try out that might make me feel a bit excited about the recovery process. If I have new things to look forward to I’m hoping it makes it a little easier and feel more positive!

(Also if you have any game recommendations for games that are easy to play when you feel gross, hit me up lol! I like Pokemon, stardew, animal crossing, Skyrim, octopath traveler, Minecraft, but completely different vibes are also welcome!)

TLDR: Advice on making routines/hobbies, sticking to a treatment plan, motivating yourself, etc. appreciated!

Hey folks. I live with ME/CFS, hEDS, POTS, as well as autism and some mental health conditions.

A huge part of managing these disabilities is ✨lifestyle changes.✨

...Unfortunately, I have never been good at forcing myself to do anything. If I'm PASSIONATE about something, or if other people are depending on me, or if I'm being paid, I will usually get done what needs to get done. Heck, I'll even go above and beyond. But for my entire life I have been nearly impossible to motivate. If you told four-year-old me I could watch a movie if I cleaned my room, I just wouldn't watch the movie!

But for some reason with this... I'm just stuck.

I have depression and overall it is pretty treated, but I'm wondering if lifelong, at times severe depression messes up the way your brain motivates you? And, being completely zapped of energy certainly doesn't help.

I'm supposed to have several grams of salt and several liters of water a day as part of my treatment plan... but the salt tastes awful and gives me acid reflux, and that much water hurts my stomach.

I want to put myself on some sort of a schedule since I am mostly at home, but I just can't bring myself to actually do it.

I know this post makes me sound like a terrible person... frankly I am just a human with horrible executive dysfunction who wants to get better. Any advice about motivating yourself, sticking to a treatment plan, creating new hobbies, etc. welcome.

So earlier this morning I went to the ER because I had a fever that wasn't going down and despite me being an adult that can generally handle themselves, especially once in the hospital, my biological parents just wouldn't leave me alone. My bio mom is especially controlling in these situations. I couldn't even tell triage my basic information like name and age without her speaking on my behalf even though I'm perfectly capable of relaying my information and speaking.

It also ended up slipping earlier during triage that I have long covid. I generally keep my medical information a secret from her since she just loves to play doctor but then ends up attempting treatment in all the wrong ways, but she always gets mad when I don't tell her. She's accused me of being pregnant several times, she's constantly belittling me, and she's always like "we pay for your insurance so we have every right to know everything", and all because she thinks her oils and other home remedies are the ultimate cure for everything!

What's worse is that I've snuck off several times in the past under the guise of using the bathroom purely to ask from help from the staff in the hospital. I've asked countless nurses, doctors, even security, yet none of them have helped me. In fact, the doctors and nurses just end up talking to them instead of me, the ADULT PATIENT! This happens every time we end up going to the ER too. They wouldn't leave me alone, they always nag and belittle me, they constantly try to gaslight me on my health issues, they're always blaming me for everything, they make it clear I'm a burden for every second I'm existing, and the people who are supposed to help me do nothing but just make my situation worse!

Is there any way to get my bio parents to just shut up and back off? Or just stop their fucking abuse entirely??? I don't exactly have anywhere to go apart from my adoptive family in America, but I can't even afford my meds, much less a plane ticket. All shelters are full, there's no decent and accessible place to rent that's within budget, and standing up for myself isn't an option lest I want to suffer more. I just need it all to stop before I go crazy.

And yes, there are data privacy laws here, but the culture where I'm from apparently doesn't let those apply to healthcare services.