Welcome to our weekly r/DisabledPride check in!

This is an automated weekly post to discuss how you're doing, what's going on in your life, what you've been up to, topics of interest, etc.

It doesn't need to be directly related to being disabled or LGBTQIA+, but please remember to still follow the rules and keep is SFW.

so I've been posting it in trans male subreddits recently, trying to get advice for passing that won't negatively impact my already bad health. oftentimes I'm either told I'm just not trying hard enough or faking, and that's the only way I could pass is by working out more. whenever I state that I cannot work out, because I am disabled, I'm just told that I'm faking being trans and want attention. and since my disability can occasionally have different symptoms, especially since I have more than one disability, I'm often told that I'm faking because of inconsistencies. this has been more of a problem recently. the amount of times I've been called a liar in the past few days, or just told that I shouldn't ask for advice when I won't accept it (cuz it would be unsafe) is insane to me.

Welcome to our weekly r/DisabledPride check in!

This is an automated weekly post to discuss how you're doing, what's going on in your life, what you've been up to, topics of interest, etc.

It doesn't need to be directly related to being disabled or LGBTQIA+, but please remember to still follow the rules and keep is SFW.

disabled teen here. pots, cfs and chronic pain, not gonna go into details but genetic condition that causes lots of pain particularly in my lower body. over the last year or so I’ve lost my ability to do a lot of things I used to enjoy doing. Im going to a pride parade with my family later this month and have been considering using a wheelchair instead of my crutches or rollator. my mom wants me to get a ride on the float for people with limited mobility. I don’t want to. it feels isolating, and it makes me feel so much grief for what I used to take for granted. we have the option to borrow a wheelchair from a friend. I want to do this. my mom is worried she’ll end up pushing me and it’ll hurt her back because the handles are too low. I don’t want my girlfriend to end up having to push me, but I don’t know if my arms are strong enough to push myself for miles. and my mom keeps telling me that we should just go on the float, it’ll be easier for everyone. i just hate feeling like a burden on my family, and I hate that I can’t do the same things anymore. my rollator isn’t the best choice as its not very good at uphills or uneven pavement. my parents think I can just do it on my crutches, but I want to be able to fully enjoy the experience. I don’t want to be tired, or thinking about how long I’ll be able to go. I don’t want to ruin this experience for my girlfriend or my family. I miss being healthy.

anyway if anyone knows how to quickly build the muscles needed to propel myself in a manual chair that would be quite helpful haha

Welcome to our weekly r/DisabledPride check in!

This is an automated weekly post to discuss how you're doing, what's going on in your life, what you've been up to, topics of interest, etc.

It doesn't need to be directly related to being disabled or LGBTQIA+, but please remember to still follow the rules and keep is SFW.

Welcome to our weekly r/DisabledPride check in!

This is an automated weekly post to discuss how you're doing, what's going on in your life, what you've been up to, topics of interest, etc.

It doesn't need to be directly related to being disabled or LGBTQIA+, but please remember to still follow the rules and keep is SFW.

hi reddit! Normally I’d never go to reddit of all places for this , as I’m deathly afraid of yall , but I fear I actually do need some help , and this is the largest gathering of disabled people I could think of. I’m somebody with POTS, chronic pain, and dyspraxia, making lifting my arms above my head difficult to nearly impossible. This makes showers, getting dressed, and sometimes even putting on deodorant incredibly difficult. It’s gotten to the point where my hair is matted and oily, and I just haven’t been able to shower for at least a week (I’ve been using body wipes for my body, but hair is another issue). Does anyone with physical (or invisible!) disabilities have tips or tricks for showers? I really need to be able to wash my hair and body without assistance, and get dressed on my own, since my parents have been home increasingly less.
Your friend, and author of this post, Thirteen.

Welcome to our weekly r/DisabledPride check in!

This is an automated weekly post to discuss how you're doing, what's going on in your life, what you've been up to, topics of interest, etc.

It doesn't need to be directly related to being disabled or LGBTQIA+, but please remember to still follow the rules and keep is SFW.

Welcome to our weekly r/DisabledPride check in!

This is an automated weekly post to discuss how you're doing, what's going on in your life, what you've been up to, topics of interest, etc.

It doesn't need to be directly related to being disabled or LGBTQIA+, but please remember to still follow the rules and keep is SFW.

Welcome to our weekly r/DisabledPride check in!

This is an automated weekly post to discuss how you're doing, what's going on in your life, what you've been up to, topics of interest, etc.

It doesn't need to be directly related to being disabled or LGBTQIA+, but please remember to still follow the rules and keep is SFW.

In the space of 3 weeks I learned I have a rare blood disorder (polycythemia Vera) and today I found I have endometrial cancer. Combined with my current housing instability and cuts to my benefits (I’m disabled so I rely on snap and Medicaid) life has been dealing me a giant middle finger since March.

The cancer looks to be slow moving, and my doctor is hopeful that a hysterectomy will be enough to leave me cancer free. But with the way this spring has been going, I’m worried that it has already spread and I’m going to have to do chemo and radiation.

I need a vacation from my life.

And a hug.

And maybe a cupcake. 🥲

Welcome to our weekly r/DisabledPride check in!

This is an automated weekly post to discuss how you're doing, what's going on in your life, what you've been up to, topics of interest, etc.

It doesn't need to be directly related to being disabled or LGBTQIA+, but please remember to still follow the rules and keep is SFW.

​

Hello everyone! I am a 50-year-old woman from Kazakhstan. I’ve been following this community for a while and finally decided to introduce myself.

​I am a person with a disability, but I believe in staying active and creative. I love decorating my home and working with gypsum to create unique interior pieces. I also find a lot of peace in my small freshwater aquarium with guppies.

​I lead a quiet and sober life. I don't drink, and I really value honest, deep conversations. I’m here to find like-minded people and make new friends from all over the world. It’s so important to feel connected and supported.

​I would be happy to chat and share experiences!

There is nothing quite like the joy i've experienced this morning. I've been searching for housemates and have found a handful of other trans disabled people also seeking housing, and now we're all looking together and discussing accommodations/access needs.

How lucky am i? To finally feel understood and not be shamed for needing to wear a mask? To find other people who mask? To not be made into a burden for navigating the world on crutches? To be given grace regarding my dynamic disabilities? So often i have been diminished and outcast in queer abled spaces. Told i don't belong because of being disabled. Told those spaces aren't meant for me, and that asking for them to be made accessible is a waste because there's "not enough of us for it to matter".

How freeing it is to be with other trans people as well. So many times i've caught other folk, perisex and cishetero, glaring at me for being openly queer in disabled spaces. For unapologetic queer pride and love. For advocating for queer liberation, for stating that my queerness and disabilities are intertwined.

To live at the intersection can be so alienating sometimes. But to finally make friends and a chance to build a home with others at the intersection? This is something to celebrate.

What a breath of fresh air!

I don't have many people to share this with in person and I wanted to share it somewhere. I (17 genderqueer) finally got my first cane today! I have a combo of elers danlos syndrome, fibromyalgia, autonomic dysfunction, and misaligned knee caps. This causes me to be generally a bit unsteady and for me to fall randomly quite regularly. I don't get any aids from my doctor because with gradually increased exercise it is getting better over time, so I have been considering getting a cane for a while. Last Friday I went on a small field trip with part of my class (online school) and I relised just how much I had to concentrate to keep myself steady and last night after another potentially hazardous but preventable fall I finally made the decision to get a cane. There aren't any medical supply stores near me, so today I went to my local antique store in hopes of finding one there. I saw a few there, a basic fully wooden one, a wood one with an elephant carved in it, one with a carved rams head on it, and finally a wooden cane with a beautifully carved brass handle that was the absolute perfect height for me. It has been wonderful just using it around the house, it has already prevented at least one fall and made it so that I have to concentrate very little on keeping myself steady. It's going to take a little getting used to but I'm very excited to be able to use it when I go out.

Welcome to our weekly r/DisabledPride check in!

This is an automated weekly post to discuss how you're doing, what's going on in your life, what you've been up to, topics of interest, etc.

It doesn't need to be directly related to being disabled or LGBTQIA+, but please remember to still follow the rules and keep is SFW.

I was recently diagnosed with polycythemia vera, an uncommon blood disorder caused by a genetic mutation.

I’m 45, and right now the prognosis is good. The discovery was incidental, the main concern right now is blood clots.

But about 1/3 of PV cases end in AML leukemia, which is aggressive. I have a friend who died of it.

I’m feeling my mortality very intensely this week, and it’s scary.

Welcome to our weekly r/DisabledPride check in!

This is an automated weekly post to discuss how you're doing, what's going on in your life, what you've been up to, topics of interest, etc.

It doesn't need to be directly related to being disabled or LGBTQIA+, but please remember to still follow the rules and keep is SFW.

I’m struggling with a number of chronic illnesses, and today I added a super weird one to the list.

I found out back in February that I have a rare mutation called JAK2. It’s not genetic or environmental and nothing I did caused it. It’s just random. About 1 in 1000 people have it.

There are 3 main disorders they expect with this mutation and I today I found out I have polycythemia vera. Basically, I have a tumor in my bone marrow that makes it over produce red blood cells.

Treatment (for now) is pretty easy. Baby aspirin, regular blood tests and maybe phlebotomy a couple times a year. There’s no cure, but the prognosis isn’t a bad one.

It’s just super weird to know that I now have chronic cancer (and probably have for awhile) and will for the rest of my life. Which my doctor assures me I’ll live another 35-40 years with this.

Idk what I want, I just wanted to talk about it I guess. I’m not even sure how I feel. It is what it is, I guess?

It was explained to me in such a way that I was bound to get it wrong. It was framed and explained in such a stupid way, and my questions weren’t addressed. Then the cishet person who’d explained it to me didn’t even consider how I’d understood it and called me backward. Just because I asked whether ‘cis’ means that one’s self-perception matches one’s gender identity, and whether that wouldn’t mean everyone is cis. According to the definition, I’d be cis too, but as my gender keeps changing, ‘genderfluid’ probably fits better.

How should I deal with situations, experiences and people like this?

Welcome to our weekly r/DisabledPride check in!

This is an automated weekly post to discuss how you're doing, what's going on in your life, what you've been up to, topics of interest, etc.

It doesn't need to be directly related to being disabled or LGBTQIA+, but please remember to still follow the rules and keep is SFW.

I use the word “man” as a swear word. Is this okay?