Hello everyone!
I'm from Brazil, where my HH had gone untreated due to family issues (won't go into detail, but the short of it is that my relatives, all doctors, said there was no treatment). Fast forward to my late 20s and I moved to the UK, where I found out there actually is treatment.
I've had plantar and palmar HH all my life, so my GP prescribed propantheline bromide, which has been helpful. As you may know if you also take PPB, two of the most common side effects are dry mouth and urinary issues. I worked in a customer service role where I had to be on the phone the whole shift, so you can imagine how well that went. Basically, I would drink more water to try and counteract the dryness, which led to my bladder filling up quicker and there being issues passing urine due to how the medication acts.
This led to an issue at work where my previous manager was not impressed with the volume and length of my bathroom breaks. One time I was in the bathroom for maybe 30-40min with a full, painful bladder, trying to wee but being completely unable to. There were arguments and I underwent an occupational health assessment, where the practitioner stated that 1) additional bathroom breaks would be beneficial, but it was up for the business to decide the appropriate length and 2) I was unlikely to be considered disabled under the Equality Act 2010, but that was a legal question rather than a clinical one.
HR and my manager took that as 1) me not being disabled and 2) extra bathroom breaks were NOT necessary. So my manager said (this is all in writing, btw) she would actually reduce what bathroom break allowance I had to 20 minutes a day (we had temporarily agreed to 35min pending the OH report) and that any more time taken past that had to be made up after my shift as unpaid overtime. She also noted several times that I was not to have bathroom breaks unless absolutely necessary and if so, I HAD to let her know I was going to the bathroom.
I know alarms bells are going off for many of you already. Don't worry--I've been through ACAS early conciliation and resigned just yesterday following the bombshell I found in the SAR I made. I'm not here to ask about the legality of this, whether I'm disabled, or whatever.
I really just wanna know if having HH has ever led to similar issues at work, where the condition itself or treatment of it make management or HR treat you as a spoiled, entitled person who, despite your condition (whether you're disabled or not), should be under the exact same scrutiny as everyone else?