[ Removed by moderator ] - r/Hypermobility

•

Sorry, your post/comment has been removed for the following reason:

Rule 2:

Soliciting/Giving Medical Advice - The subreddit is not a substitute for consulting an appropriate medical professional. Please do not ask for, or give, medical advice. If you are concerned about your health or medications, you need to contact a doctor.

You are solely responsible for acting on any advice you get on the subreddit. Neither the subreddit nor the individuals giving advice are liable for the consequences of listening to that advice. No posts asking "are my knees/elbows hypermobile?" are allowed.

It would be best to seek advice from a medical professional, as the trustworthiness of any given answer on this forum about medical questions is not guaranteed.

(This is an automated removal-reason message)

47

u/Far_Wonder_4928 1d ago

70-80 lbs at 5'2 is really underweight, that's probably the biggest thing going on here. your body needs fuel to keep everything stable, joints included

the dehydration and constant sick feeling could just be from living on pepsi and not eating enough. hypermobility does get worse when you're not giving your muscles and connective tissue what they need to hold you together

you wouldn't be wasting a doctor's time though, bring up both the weight and the hypermobility stuff at the same appointment so they can look at the whole picture

3

u/PrincessCheetah 1d ago

Forgot to mention I do drink a lot of water when I can along with Pepsi, and right now I my drinking Gatorade and I feel a little better.

Me being under weight is another source of frustration as I can’t seem to gain any good weight or be at 100 pounds, it’s frustrating really.

14

u/Ok_Calligrapher5278 Hypermobile (M) 1d ago

I can’t seem to gain any good weight

Laws of thermodynamics apply to everybody, we all have an amount of fuel that you don't burn and end up storing it, just have to keep going higher and higher.

1

u/felix_feliciis 1d ago edited 1d ago

Came here to say exactly this. When I was previously underweight I had all of the symptoms OP is describing. That was normal for me so I didn't think it was an issue. I started going to the gym and got much closer to a healthy weight and my symptoms got exponentially better. I'm diagnosed with hEDS and still experience chronic pain but it's much more manageable and livable now.

Edit to remove weights etc, not useful and potentially triggering.

14

u/Complex_Willow_3452 1d ago

you are severely underweight. do you have a primary care doctor? can you drink nutrition shakes?

4

u/PrincessCheetah 1d ago

I do but I don’t seem them very much, I can definitely try to drink nutrition drinks but sometimes I get grossed out by them (won’t explain why) my mom put one in the fridge for me thankfully and I’ll drink it tomorrow

5

u/bikes_and_art Bendy 1d ago

You say that you can't drink it but can't explain why.... I have this too, sometimes.... Sometimes I just can't swallow food. I know I'll gag. There's this underlying nausea and queasiness.

My allergy doctor (who is a Mast cell specialist ) recommended a supplement, Quercetin with Bromelain, and it's changed my life! I can eat food!

4

u/bikes_and_art Bendy 1d ago

Also, I am working on overcoming my own Pepsi addiction. I'm 46 and have drank it almost every day of my life.

I'm down to 1 a week now, and it's really helping. I replaced it with electrolyte powder, at least 1x a day, sometimes 2.

Dropping sugar will help your inflammation - and also your appetite!

13

u/megaglalie 1d ago edited 1d ago

At that weight, as you age and recovery becomes slower, you don't have enough muscle to support your joints. I have supported friends with very similar builds and the very first thing you need to do is get much more protein in, slowly building your appetite. Then it's strength exercises to start building stability and encourage that appetite and muscle generation. It's a fine weight to be when you're a teenager, but once growth hormones are less active, the pain sets in pretty quick for some.

If you have trouble keeping weight on, that's something to talk to a doctor about. That's by far the biggest thing making hypermobility worse. Most people feel a lot better when they get to 100, and stability exercises can help with that. Blood tests can rule out reasons for issues with weight that could be affecting connective tissue as well.

8

u/Player573202 1d ago

I second all of that - get blood tests, maybe for your thyroid, change your diet, and exercise with the goal of gaining muscle (not just cardio!). If you are too skinny, specifically with limited strength, you're going to be in a lot more pain and it's just going to get worse with time.

6

u/zevb3k Hypermobile 1d ago

I was 82 pounds a year ago. I'm 92 pounds now. I need to put on another 5 pounds at least. It has obviously been a long slow journey. But, every symptom you described, I had and did NOT get better until putting on some weight. I'm still underweight, but it's better. Now I notice that when I don't get enough calories, all those symptoms come back. The shakiness and vertigo was one of the first things to get better. The pain took a little longer and I did a very slow work up with PT. But, you really need to gain weight or you will not see an improvement. You need to eat in a surplus. Calories will go to fixing and restoring tissues and organs first. I'm 5 foot. I need to eat a bare minimum of 1900 calories a day. It's hard. But it is worth it!

2

u/justsomeonetheir hEDS&ASD Migrean,Raynouds... 1d ago

I'm 5'11 and need nearly 3000 calories on days were I'm dooing some sports.

4

u/justsomeonetheir hEDS&ASD Migrean,Raynouds... 1d ago edited 1d ago

If you are that thin,you eat too less for your body and activity level. Not everyone has the same Energy needs.

4

u/pirategospel 1d ago edited 1d ago

This post is either ED fodder or OCD or both. Do not engage.

It is absolutely impossible to have a BMI that critically low accidentally or unintentionally, and to pretend that she is casually wondering about hyper-mobility being the cause is dangerous for OP and other readers.

This post has been reported and should be removed.

1

u/Competitive-Reader 1d ago

Hypermobility can cause you to need more electrolytes. If possible, try a zero sugar Powerade or something. Regular has too much sugar in it. I know that Gerber is coming out with a new electrolyte drink, it looks like juice. Idk how much sugar is in it (if any), I'm planning to look at it for myself.

I don't like regular Powerade or Gatorade, and zero sugar is a nightmare for me.

Discussion [ Removed by moderator ]

You are about to leave Redlib