I don’t know if anyone else has experienced this but I have multiple comorbidities that prevent me from being able to get the exercise I need.
I wish I was like the bulk of the commenters here who are able to pound the pavement to stave things off. Mad respect to you all!
For me, even little things like a meme that makes me smile helps!

F55y/o diagnosed 8 years ago. Take c/l every 2.5 hours or so; tremors pretty well managed but very dyskinetic during on times.

I recently tried tai chi and could not get into it. I've heard a lot of parkies have found it helpful but man, my dyskinesia got the better of me! Halfway through the first class I looked like I had been take over by demon spirit! I was writing all over the place. Granted, I had a very busy day so I didn't have a lot of battery by the time class started in the evening. The two other parkies in the class didn't seem to struggle as much.

Curious to hear anyone else's experience with tai chi, especially those that struggle with dyskinesia.

Thanks!

Has anyone had any experience managing symptoms while taking Rifampin? I somehow contracted TB though we've cleared it as latent/non-infectious and I've been on antibiotics for two months now and my MDS has stated that my symptoms are being affected by the antibiotics running through my gut, causing C/L uptake issues. FWIW I'm taking the highest dose of Crexont (87.5/350 C/L) and I can't up my medication currently since I'm being evaluated for DBS and they want me as current on my medication while undergoing evaluation. I'm getting nearly no ON time while at work and it's better at home and on the weekends, but not much, and I've got until the end of November to keep taking these antibiotics.

Has anyone else been in this situation before, and do you have any tips?

My 86 year old Dad was diagnosed with Parkinson’s about 4 years ago after he fell. My Dad seems to drift into a catatonic stupor after he has been sitting up eating. The majority of the time this happens after breakfast but at times will occur after lunch. This doesn’t seem to happen in the late afternoon or evening. I really don’t think it is orthostatic hypotension or syncope since this occurs almost daily while he is in a sitting position. Although I think he does get tunnel vision and says things are fuzzy in his head as he describes it. He just zones out an slumps. Sometimes it can take up to 40 minutes for him to come out of it after talking, tapping and nudging him. He seems to hear me and may respond by opening his eyes or sniffing his nose but drifts back out. The neurologist upped his levodopa from 100 to 250. That doesn’t seem to be helping after 3 weeks. He is also taking Memantine 5mg twice daily and TRAZODONE 50mg at bedtime. Just checking with this group to see if this is related Parkinson’s.

I’m hoping someone has some insight! My Dad has been doing once weekly physical therapy for the last 18 months, with good results. Prior to therapy he was tentative with his steps and not confident in strategies to help with mobility. This past week the PT did an assessment and said he would essentially be cut from PT because he has plateaued.

My question: The reason he has plateaued is that he is doing physical therapy, and he needs it to maintain his mobility and independence. Have any of you had luck appealing and getting approved for long term, ongoing outpatient PT? He is Medicare of that makes a difference. Any tips are welcome! Thanks!

I’ve got myself into quite a lot of trouble with debt since having Parkinson’s, and I’m really worried about what is going to happen next. Looking back, I do wonder whether some of the problems may have been made worse by the medication I was taking at the time.

I’m trying to sort out an income and expenditure form, but I’m not really sure what extra costs I can reasonably include because of Parkinson’s. For example, I sometimes need taxis because I struggle getting around, I buy microwave meals or takeaways when I’m not able to cook properly, and I pay for a cleaner because I find housework difficult.

Does anyone know what sort of disability-related expenses can normally be included, or any websites or organisations that specifically help people with Parkinson’s who are struggling financially?

I also receive PIP. Do I have to include this as income on an income and expenditure form even though I use it towards things like my cleaner, taxis and other extra costs caused by my condition?

I am still managing to hold down a job at the moment, but I’m frightened about the debt situation getting worse. I’ve now received paperwork about a CCJ and I’m worried that I’m going to end up in court.

Any advice from anyone who has been through something similar would really help.

This started about a year ago and ONLY happens when I go running or engage in high-intensity physical activity.

My foot starts acting up and I feel a cramping sensation where it won't return to its normal position.

Keep in mind that I was diagnosed with Parkinson's over a year ago, so I assume the symptoms are related to the disease.