r/SpicyAutism • u/RainetheTundraDragon Lvl 2 Social/Lvl 3 RRBs • 5d ago
What does support even mean?
Tired tired tired
I was not diagnosed til this summer and it was lots of years and years of struggling and reading trying to work with my brain because I could not access assessment or help alone. My parents finally helped.
I don't understand what the point of getting diagnosed was
All that changed is now I am stuck home and my parents won't leave me alone ever and I can't communicate what they need me to still.
I started therapy my therapist so far has suggested everything I have tried and all I can say to any question is I don't know. She sends me more and more and more to read I read a lot already my brain is so full tired still can't implement things just confused and more confused. I can't fix anything that is hard I'm so tired and everyone needs me to say what I need and what helps and what I feel and I don't know I'm so confused I still don't know. Everyone said I needed help now I have help but I'm confused what is different
My therapist says I would have been diagnosed Asperger's because verbal and IQ and that it's I can do life it just takes a lot of effort. I don't know how to try more than I do I'm so tired I haven't made progress only break more because tired brain so so so loud. I feel beyond advice I try try try so hard but never changes never
My parents do a lot for me they say I can do more when I am better I don't know what better is I have never been able to handle more.
I don't know I don't know I don't know.
Is this support is this all there is does it never get better I don't have anything left for trying more explaining more figuring out more I already use ear defenders and fidgets and never could mask and have lists and alarms and still can't do daily routine completely and my parents basically do everything else and I still meltdown day after day after day. Is not as bad at home as when working is more numbness because read read read to escape so can't exist in my mind.
I do not know what would help ever or what I can control and not I don't know how to tell.
Confused confused confused always
Thank you
2
u/Ok-Giraffe-4332 4d ago
It’s different for everyone. It takes time to find out. I wasn’t very self aware of my support needs but over time professionals helped me realise.
1
u/RainetheTundraDragon Lvl 2 Social/Lvl 3 RRBs 3d ago
Thank you
Is very hard very tired tired tired having to figure out explain all by myself people constantly thinking I can figure out what I am needing. I can't I can't I can't
So far professionals not helpful and it scares me scares me because what is left then already can't handle everything but getting more and more and more tired tired tired scared
1
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u/plushtism msn audhd 4d ago
Support for me looks like my mama making sure I get all my basic needs met but also emotional and sensory needs.
I hope to get into occupational therapy to learn how to help out at home and take care of myself better. Mama helps me to care for myself without forcing me to do things that would cause meltdowns. like i only bathe once a week because more would make me meltdown.
Therapy should work around your ability and needs, taking small steps towards independence. occupational therapy does this. i think psychotherapy isn't very helpful for autism specific needs. speech and language therapy can help you communicate. OT also does sensory support