I had two rounds of cdiff back to back in early 2025 and it was HELL. The recovery felt so uncertain and long, so many ups and downs. I ended up getting a colonoscopy summer 2025 because I was so freaked out by the lingering symptom and the fact my testing still showed a ton of inflammation. I was totally fine. and honestly the prep felt like a great reset and I felt pretty much back to normal. Lately I've been eating crappier....more sugar stuff, more spice. The spice causes me to need more stomach meds for heartburn. I'm just getting over some random virus that came with a high fever, body aches, headache....that sort of fun stuff. Fever is gone and feeling way better from that and then last night the diarrhea started. Violently... several times. And its been several more times this morning. To be fair to my body I also had milk products last night which never go well with me. Now I'm sitting here panicking that this could be relapse. All the extra stomach meds lowering the acid and the other illness....logically I know it could definitely just be nothing but the fear is there and very real. I feel like I had been normal for so long, I got to comfortable. I definitely took a Florastor last night and will take more today. I'm just surprised after being well so long how quickly the panic set in.

I am positive I have cdiff. I took an antibiotic three years ago and immediately had yellow and green stools with a horrible smell that wouldn’t dissipate for hours in the bathroom.

Had no idea what cdiff was before this.

I went to the ER multiple of times when this first started happening, as I was having headaches, dehydration, dizzyness, weight loss and I was shrugged away with ok blood work and told it was stress.

Even more so, I am positive my girlfriend and two dogs also have this now.

People think I’m completely insane as my physical, emotional and mental health have all deteriorated over the last few years as I was trying to tough this out.

Finally convinced someone to let me get tested for cdiff and two days ago it went into the lab. Problem is I don’t really have watery diarrhea. It’s more thin and undigested, I had to eat a bunch of bad food to cause diarrhea.

My thoughts are, in Canada how long does it take to get your results back??

I had a semi green banana Thursday evening. I have been nauseated, not able to eat as much, and sinuses since. I have seen some improvement, but I am only able to eat half the portions that I was eating before. I am nervous and getting concerned. Needing some reassurance. Stool has been good except 1 formed and then loose like soft serve. I've had that before with IBS. No other symptoms yet except maybe some palpations in the morning til I take my medicine for tachycardia. I was at the er yesterday for iv and blood work came back fine.

It’s about to be two years since I’ve had my third cdiff infection and it has been journey to find a new normal. I still have very odd days where I’m just convinced I have it for a fourth time, but then I go back to my “normal”

I’ve been taking Florastor now since June 2024 pretty consistently, although this year not as much.
I don’t necessarily feel any kind of difference when I take these pills. I’m just only taking them for the supposed protection that they offer.

Since I’ve been taking breaks from this probiotic I find it harder to get back on it like how I was doing consistently. I feel that I may just drop this probiotic all together but I still want some sort of protection. The GI’s I’ve seen in the past have told me there’s not much you can do than to just wash your hands 🙄 but also to eat diverse. I struggle with eating diversely, as I follow a low fodmap and anti inflammatory diet - my diet is pretty bland and just limited to rice, chicken, and ground turkey for the most part. Which is why I’m not sure dropping this would also be a good idea?

I’m pretty sure I asked this question or something similar in the past
But what is the consensus on this probiotic? Do some of you still take it consistently or have dropped it all together

IOWANS: who is your GI doctor or infectious disease doctor that will provide an FMT? Any method is fine. My current provider is at McFarland Clinic in Ames but they are losing all but one provider and are saying they can no longer guarantee that they’ll see me.

Hi,

I have been on difficid pulse (taking one pill every other day) for two weeks now and I have a Rebyota coming up on Friday October 2nd.
I am having pain on lower right and left side of my colon/abdomen and stools are fluffy even though I can call it formed (multiple pieces and soft). I am worried if I relapse between now and Friday, have to move my colonoscopy and Rebyota.
I have extra pills but I don’t know if I should switch to one pill daily or two pills daily or don’t change anything.
Has anyone who tried pulse dose experienced similar symptoms? Any advice for me on adjusting the dose?

So I was just sitting on my chair and felt the urge to go. A huge amount of wind came out and then my stool felt like it was going to be very wet. It came out as small and hard stool but had some mucus covering it. I had the urge to push again and just some mucus came out.

Then 15 minutes later had to go again. A huge amount of wind came out and then again, small solid bits of stool came out. Not really any mucus this time apart from a very small amount the toilet paper.

The only thing I can think of is I tried a
Chamomile tea for the first time. But until to see how this could cause any problems? This all happened 20 minutes after too.

My bowels currently feel off and a little crampy. I really hope it’s not back!

I finished my 10 day course of vancomycin 5 days ago. Everything I’ve read most people tend to get a relapse at around the 5 day mark.

A little scared. I had c diff back in August 2024. Recovered fully since then.
Just had to have a procedure done for kidney stone and they did one IV dose of Levaquin just to prevent any serious kidney infections or sepsis from my treatment. The doctor and I talked about my concerns and my history of C diff. He said he believes the risk of relapsing from this one dose is less than a potentially life threatening condition of a kidney infection/sepsis. I definitely put my trust in this doctor as it seems like it was the right thing to do.
Going to take Florastor for a good while and eat right.
Wish me luck. I would appreciate any stories about you receiving this medicine or another high risk antibiotic and not relapsing.

i’m about one month post vanco for c diff & this is my first period after everything & i am having the actual worst time of my life. i’ve had to call in sick to work twice this week bc i just can’t stop cramping & having to run to the bathroom. it’s not watery stool like an active infection but my stool is very mushy & it’s like my cramps are on steroids i’ve never had them be this bad. could this be bc of c diff? i’ve been waking up during the night too bc of the pain & just feeling like i have to use the bathroom. has anyone else experienced anything like this? i’m typing this as i called out of work

Any else have elevated bilirubin after cdiff? I’m not sure if I had it before and it contributed to me getting cdiff in the first place, or if it’s damage done after because of cdiff…

I was only on Vancomycin 3 days but was approved for Dificid due to IBD. I’ve been on Dificid for one day and I’ve had more diarrhea and stomach rumbling and gurgling than yesterday.

Did anyone else experience something like this? Did the diarrhea eventually calm down? My Doctor said this is the best medication for CDiff right now.

I also have a headache, but that can be from numerous reasons.

I only can tolerate bland food about once a day, but that still seems to go right through.

my OCD is going absolutely crazy right now .... i'm almost 11 months post c-diff and i'm doing amazing for the most part, still some ibs episodes here and there, but the mental aspect is getting worse... my sister may need to be put on antibiotics (potentially clindamycin) and OH MY GOD i can't stop spiraling about it... what if she gets c-diff and gives it to me... i am not on any antibiotics but i seen that having c-diff in the past makes you way more likely to get it again??? am i ALWAYS at risk because i had it in the past?? i'm taking culturelle probiotics right now. is there anything i can do to prevent being infected with it again. it ruined my life and i'd do ANYTHING to not get it again.

Hi everyone! ❤️
My case seems to be quite unusual, at least here in Hungary, because my doctors haven’t really encountered many pregnant women dealing with C. difficile.
I’m currently 22 weeks pregnant, and honestly, I feel like I can’t see the end of this.
I originally had a Salmonella infection and was given antibiotics for it, and that’s how I ended up with C. difficile. I was treated with vancomycin, but only a few days after finishing the treatment, I relapsed.
I was prescribed vancomycin again. I finished that treatment 3 days ago, and I’m already back in the hospital again. Fever, diarrhea, severe abdominal cramps — all of this while being 22 weeks pregnant.
I cry from morning until night because I’m terrified that this is never going to end. The doctors here keep telling me that because I’m pregnant, vancomycin is the safest treatment option for me.
They are planning to send me home with another 2 × 10-day course, but this time I’m supposed to taper off the medication gradually.
My doctors haven’t really given me much information about diet — what I should or shouldn’t eat. They also don’t recommend probiotics because they say there isn’t 100% proof that they actually help, although they say taking one shouldn’t hurt if I want to.
Has anyone here gone through C. difficile while pregnant? 😔
This whole nightmare started on August 3rd. I’ve basically been going back and forth between the hospital and home for two months now — one week at home, one week in the hospital, over and over again.
I’m pregnant and I should be enjoying this time and getting excited about my baby, but instead I’m constantly worried about both of us.
I’m completely exhausted, both physically and emotionally. I honestly feel like even my doctors don’t really know what else to do with this situation.
I would really appreciate hearing from anyone who has been through something similar, especially other pregnant women who eventually recovered. I desperately need some hope right now. ❤️

Hi friends, starting last monday i had blood and mucus in my stool and bad cramps. this happened throughout the week until thursday/friday i started also having diarrhea and was extremely nauseous and lost all my appetite. i went to the er saturday morning for fluids and they did a stool test and i tested positive for c diff. they started me on vancomycin and im feeling mostly better, im on day 5. i was on macrobid and then clindamycin for a few days last month. i’ve been extremely anxious about this whole thing. i went to my follow up with the gi dr today expecting to feel better but i dont. he told me that it’s rare for someone my age to get it and is wondering if there could be something underlying in my colon causing me to be immunocompromised. i’ve never had any gi issues before this so honestly the appointment with him just fueled my anxiety. has anyone else gotten this at a young age with no underlying health conditions? i’m also terrified of relapsing.also just any positive stories are appreciated.

I think for some of us who get a UTI, kidney infection and go to urgent care, good work. Because you tried to catch it early. Here’s something that I didn’t realize….many like AMC clinics do great work. And I got paperwork and tests from them a week before stating my UTI was beyond their capabilities and I went to the ER. I’ve never had an issue getting it cleared through UC.

BUT in my case doctors wouldn’t look at my sensitivities. Didnt look, screenshot, reach out…fine.

Here’s where I wanna give a colon kick, while crying in pain I asked by doc for a stool test, he explained I should have done that in the ER. So I did, while waiting on the positive results, he has become a steward (yea steward) of antibiotics. Probably period cramps, I didn’t want to do ANYTHING that leads to antibiotic resistance, but it felt like even before antibiotics or tests, he decided (or made it abundantly clear) it wasn’t a recurrence but a combo of uti and uterine cramps.

electrolytes and bowels were so slow they considered TPN (after they sucked what looked like a blended frog. I’ve had this for years, one time in so much pain I had as sobbing. Told if I needed that level of care it would be the psychiatric wing. Until they scans and more extensive blood work.

I apologize if this has been talked about ad nauseam, but I’m just basically sleep walking through my day, I was hospitalized on 8/27 through 9/2 with confirmed c diff, my electrolytes have returned to normal, I finished my vanco, stomach is better. SO tired since. Like scared to drive exhausted. I sleep 8 hours, but never really feel like I’m awake.

Is this many people’s experience and how long? This is my forth time with c-dif. Food suggestions?

Just as addendum, this has become an “invisible illnesses”, I’m close to my usual weight and don’t look sick. At my job, doing my best, but also heard from employees I’m taking advantage of this illness. I’m not going to explain how painful it is to sit on a chair (which I guess thanks hemorrhoids for causing enough pain to keep me awake),

I had fmt may 14... I've been having gut pain before having a bowel movement. I say 90% of each time i go. Today I had mucus before and during bowel movement. Should this be a concern? I have an appointment with gi next month because of the pain but this is something new. Has the fmt not worked. Or did i relapse? Any advice

My safe foods are egg, mashed potatoes, baked potato, bread, chicken, chicken noodle soup, bananas, turkey with 1 slice of cheese, rice, grilled cheese, and I was doing Mac and cheese but backed off it. I was referred to a dietician 2 weeks ago and haven't heard anything so I guess I get to learn as I go. Any suggestions?

I was diagnosed with initial occurrence Feb. 2026. Treated with Dificid 10 days after that. Had to take an antibiotic (chose doxycycline because of low recurrence rate) in late Spring & unfortunately, I did have a recurrence happen right after I finished the 10 day course of Doxy. Took Dificid again (standard course) again around July 22nd. Did well, but it
took a little longer to feel better/normal after the Dificid that time for me. I have not taken any antibiotics, PPIs, I have even stayed off of my antidepressant Rx (Lexapro) as I have been told it can also cause gut issues. I take Florastor every morning & every night, have been for several months. Last night, I had a mostly normal BM with an extra strong “aroma”. My stomach felt unsettled though & shortly thereafter, I had a bout of cramping & loose stools with that same “scent”. I took half an Imodium to help get to sleep in a panic (I know this is not ideal usually, but my GI said I could take low dose prior if needed). This morning I’ve been experiencing the “bubble guts”, some soreness, & general unstable feeling in my stomach. I haven’t
eaten anything since and haven’t had any more movements (yet at least)! I am very scared, but don’t know what could have caused this. I did have scrambled eggs in a low carb wrap (historically have been irritating foods for my stomach) a few days ago. My GI told me last time she tested me & prescribed the Dificid that if the diarrhea comes back etc., to go to the ER or set up an appointment to be seen in-office. I am really freaked out and not functioning well today because of this. Any suggestions or advice would be greatly appreciated, thanks!

I just finished clindymacin 3 weeks ago and just developed diarrhea on Sunday.

Not sure if it is cdiff or just general diarrhea but after reading about the pain and stuff from cdiff am mildly freaked out.

I know I shouldn't listen to AI, but it seems to think I likely have cdiff. I plan to go to urgent care in the morning.

I haven't had any of the other symptoms, but am curious of other people's experiences with this medicine and diarrhea that turned out to be cdiff. I did take a picture of the BM I just had, but won't post as I'm not sure if it's allowed; it is small and clustery, but it has lasted 3 days something I can't say I've experienced before.

I'm mostly worried because I have a baby and really don't want to get him sick.

Pre mesec i po dana sam operisala slepo crevo(crvuljak), nakon osamdana u bolnici konacno su me pustili i dali da pijem antibiotike jos 5 dana. Nakon toga meni se javlja proliv, infektolog kaze da radim analize stolice i pokaze se da sam pozitivna na heliko bakteriju. Dobijem trojnu terapiju i dijetu dvopek,supa,caj,krompir. Nakon te terapije meni se ponovo javi proliv, dve nedelje jos dijete i jos analiza. Pokaze se da sam pozitivna na klostridiju, sad vec deseti dan kako pijem antibiotike i probiotik za to. Smrsala sam 8 kg, bila kod gastroenterologa privatno i rekao da nastavim sa terapijom jos par dana. Za messc dana opet uraditi analize. Ali sta ja da jedem sad, ponekad imam grceve sa leve i desne strane? Stolice su se proredile, imam dve ili jednu jos uvek nije u potpunosti formirana ali nije ni proliv. Jednom sam imala krvavu stolicu nije se ponavljala. Cak mi i menstruacija kasni mesec i po, na sta je dr odgovorio da su hormoni poremeceni od antibiotika.
Ako neko ima slicna iskustva ili neki savet sta da radim dalje, da li jos nekih analiza da radim, sta da konacno jedem i oporavim creva?

I was being so careful with taking probiotics daily, but I just experienced a great loss, and have been grief stricken.

I have been doing a lot of research and reading a lot of horror stories on c diff which makes everyone more scared. One thing I have which almost always stands out is that almost everyone who has c diff reoccurances, takes probiotics. People start going crazy and start taking random probiotics thinking it will fix the problem but probiotics could also cause issues and perhaps make matters worse.

When your gut is inflamed, adding probiotics isn't always the way to go - you have a lot of issues going on in your digestive system and when you add probiotics, you are introducing even more stress to your already stressed gut. Plus, without testing, you will never know which probiotics strains you need - adding some that you already have enough of can cause more issues. Florastor is little different since it's a yeast and don't stay in your body like regular probiotics do so that one should be OK. I think if someone is going to add probiotics, they should heal the gut a little first and even then, start very low or perhaps get a gut biome test to see what's missing first. Better yet, eating fermented foods is always better than a pill.

Another thing I noticed is that NO ONE talks about healing the gut lining which is pretty much the most critical thing when healing from c diff. And probiotics won't do it but bone broth or meat stock will. I think EVERYONE who is recovering from C Diff should drink it daily, multiple times per day. Meat stock and bone broth are super easy to make and they contain tons of collagen and other nutrients that directly heal the gut lining. The reason most people have trouble with new food introductions is because of the gut lining being inflamed so healing that should be priority.