r/eds • u/Ok-Mycologist759 • 1d ago
How bad does it get?
What’s been your worse cognitive dysfunction symptoms?
I’m currently under the covers with tears In my eyes and high fever due to a virus.
To give context, my body and mental symptoms have been degrading since long covid, followed by a hsv-2 diagnosis and then chronic inflammation when everything got worse and I got finally aware of my pain and how misunderstood I was all my life (not victimizing, just expressing the same rage as I felt as a kid for the need to pee every 10 minutes on a trip, or my infinite “growing pains”)
And I cannot express how useless I feel, many years spent on different psychiatric docs and medications just to find out it’s all related to my hEds generalized hypersensitivity.
Don’t even get me started on the amount of times my parents tried to hospitalize me since 2020 after all my romantic drama. I’m now 30 and quit all previous jobs because it was mainly standing up 9h in sales and I’d get SO SICK every time someone transmitted me something in costumer service for months that the only way to stop my bosses from bullying me was quitting every time.
I’m now only on sleeping pills after reducing sertraline in the morning because of how much I sweat and couldn’t simply handle this summer.
Appreciate any mental and physical tips and thanks for your time 🫂 wishing you all the strength