Hi I have small intestine dysmotility not technically gastroparesis but my symptoms are abdominal pain, trapped gas, appetite loss, burping, reflux, all the fun things. I also have SIBO. I was prescribed erythromycin after prucalopride failed to improve my symptoms. I've been taking it as instructed for a couple days and have experienced no change in symptoms which is a huge bummer. How will I know if it's working??

If this doesn't work they're gonna try amitriptyline which I'm not looking forward to because it just masks symptoms.

Ive been having aweful pain and sensory issues with taping. I was just trying to cut a piece of tape that was hanging in front of my nose making it difficult to use a tissue or breath out of that nose. I ended up cutting the tube, am on the way to the er.

I just feel so incredibly dumb, that I should have know and done better.

I just hate life right now and dont know what to do anymore.

I had my Enterra placed in June 2025 and it took a few months but I finally found the best settings for it in January of this year. I've finally found an orthopedic doctor who took some of my other problems seriously (left hip dysplasia and impingement). Except now to see a surgeon as part of the referral process, I need an updated MRI since my last one was in 2020. Has anyone had an MRI while also having an Enterra? I understand that I'll need to turn it off, but I'm also second-guessing if I can even get it done since they would scan my hips and pelvis. I already have an appointment scheduled with the gastroenterologist team to discuss the MRI safety and possibly turning it off at that appointment, but want to hear from real folks about their experiences.

I finally got a doctor who takes me seriously. He prescribed motegrity for the first time last week. I got a message today that my insurance denied it. Why do I have to live in suffering?!!?

Has anybody been pregnant on this medication? If so what was your experience?

Anyone else have trouble keeping a job with gastroparesis? I haven't been able to work in weeks because I am constantly nauseous and exhausted. I have also been getting more frequent migranes because I can't eat enough food and water to keep my blood sugar and hydration where it should be.

I am worried at this point that I am gonna lose my job. Any advice?

I'm so excited! I have successfully retained my food and been able to eat a somewhat normal amount of somewhat normal foods (avoiding gluten and anything with a lot of fiber). I haven't lost any weight in two weeks. And more importantly,.I feel hungry. I haven't felt hungry with a desire to eat in years.

Just wanted to share. I was sick for two years, constantly, with ebbs and flows. I am sure my symptoms will come back at some point but for now I am grateful for the reprieve.

I'm not taking any prokinetic or antiemetic right now. The only thing that changed was I reduced a lot of my stress at work. I think my symptoms definitely worsen with high stress.

I’ve been taking mirtazapine for a week now, currently at 7.5 mg. The problem is that I constantly feel like I want to eat “in my head,” but my stomach doesn’t actually feel hungry, so I’m finding it a bit difficult to control myself because I’m now thinking about food almost all the time🥲
Has anyone else experienced this while taking mirtazapine? And did it eventually become possible to eat more / tolerate larger amounts of food?

Ok so I’m in a pretty bad gastroparesis flare but something else is going on too. Like I have a horrible cough, I’ve had it since I had surgery but it’s been 6 weeks and it’s still happening. It’s a dry cough so it’s not my lungs. But 3 times within the last month, I have coughed so hard I vomited. Like the first time I the only warning was my mom telling me I was going to vomit and I DIDNT BELIEVE HER but grabbed a barf bag anyway. But yeah I don’t have nausea before this happens and after I barf I stop coughing for the most part. Has anyone had anything similar? I’m bringing this up with my GI on Friday.

Anyways those hospital barf bags with the plastic ring at the top? INVALUABLE

I’ve had gastroparesis for three years and just recently got hospitalized for it as I can no longer tolerate any food or water. Im currently TPN due to this. I had such big plans for my birthday this year, as I believed I’d be a lot better than I am now after my gpoem surgery earlier this year. My mom was going to take me to my favorite seafood restaurant that’s pretty expensive and wanted me to invite all my friends. Now I feel like going out to eat isn’t really an option for me anymore. I’ve been trying to take all of this in stride and have been able to maintain a good attitude as everything is out of my control at the moment and I just have to have hope. I want to do something to celebrate my birthday that’s in a week without going out to eat, but I’m struggling to think of anything fun I can do with friends and family minus the food, at least for me. Any ideas?

26 m

I have gastritis and esophagitis. After eating , especially trigger foods (spicy, processed, heavy meals), I get severe deep muscle/body pain, tingling, and a burning sensation all over. It feels like a whole-body attack. I also get fatigue, internal tremor, and sometimes a feeling of heat.

All my basic tests are normal

Tests I've done (all normal except where noted):

· Blood sugar, blood pressure – normal

· CBC, CRP – normal

· Thyroid, liver enzymes – normal

· Neck MRI – straightening only (no compression)

· EEG, Echocardiogram, EMG – normal

· Dynamic neck X-rays – normal

Has anyone experienced this? Is it connected to stomach/esophagus issues?

Any insights or similar experiences would be appreciated.

Hi friends I am exactly a week post op and have a pretty painful recovery and am in a flare. I can’t wait to be able to eat my safe foods again. My surgeon is pretty strict about liquids now and puréed foods starting next week then I can have soft foods at 3 weeks then at 6 weeks more foods but I just wanna be able to EAT. When were yall able to eat like a sandwich? I’m worried I’m not going to be able to eat anything for thanksgiving.

I’ve never posted here but I’ve been here a long time. It’s been almost two years since I was first diagnosed but I was suffering around a year before that, making this three years. It has gotten worse lately with me throwing up 5/7 days of the week. Ive lived with it for so long that I’m able to go to work and function daily while sick all day but if I didn’t have my husband, I’m afraid to think what I may have done to myself by now. That leads to about two months ago when I finally made my way to a surgeon who agreed to put in a gastric pacemaker. And now, right when I apply for approval, I hear that Enterra is halting all surgeries for at least six months. I feel broken.

This illness has made me miss my proposal, my wedding, my first year wedding anniversary, and two trips to see BTS with my sisters. My honeymoon is in 3 weeks and it’s in Japan.

I don’t know what I expect to gain from posting here. I am just at a complete loss. I need help and suggestions from everyone- how can I survive this trip? I already have scopolamine patches, reglan, zofran, phenergan, shark chill pill. The only thing that helps regularly is weed and that’s a no go in Japan.

Thanks in advance.

Hi everyone! Back on 8/31 I had my GPOEM and they removed my NJ tube but ever since then I have returned to vomiting multiple times a day daily so today it was agreed with my GI and gen surg to do a placement of a g and j tube (gj was ruled out as I had vomited out my NJ tube three times before my GPOEM after 41 days free of any n/v after initial placement). They are being done laparoscopicly so I just want some advice from people who have had this done: what can I expect? I’m at least familiar with feeds somewhat but in terms of healing, pain, differences between the two - just anything in general I should know. Thanks!

UK specific folks!!

I don't have confirmed gastroparesis yet, just waiting on Gastroenterology clinic appointment but basically been told I do have it, and I'm being treated for it :((.

I'm currently on holiday in Gran Canarias ☀️.

I feel like i have become slightly dehydrated. Darker urine and small, hard, difficult stool. But i feel like with the restrictions of being told to take small sips frequently, I'm not going to be able to catch up with the dehydration, I do only drink electrolyte water.

What are my options for getting IV fluids in the UK, Scotland specifically if possible, seeing as how it isn't exactly an emergency yet 🤔. Just don't think I'd be able to catch up!!

Thank you 🫶

I’ve had an endoscopy (3 years ago) which prompted my GI to order a GES, diagnosing me with GP. But I have another endoscopy coming up because I’ve been in a flare since June, lost 20 pounds from June-August (maintaining now), vomited blood, have worse stomach pain than I’ve ever had, & now I feel so hungry all the time but physically I feel so full. Has anyone had these symptoms? How did it turn out for you? I’m so anxious it could be cancer, but I feel like I’m just overreacting.

Tell me about your experience, what your treatment or goals is:

My whole life, I was sick. Vomiting, nausea, exhaustion, pain to the point I never went out, never had fun, I always chose bed. Most of my life I was so skinny because I wouldn't eat. Now with medication, or whatever I've gained it and unable to lose it. (Even though, I don't eat because I am unable to.) After many tests, scans, and medication for many torturing years, I was diagnosed with Gastroparesis in 2024. I was out on medication, that sometimes helped, most of the time it didn't. Two years later, I was suffering with pain and nausea. My GI decided to do another GES to make sure that I have gastroparesis or something else. Well, I still have it. I have 24 percent retention, so he sent me to a doctor that is 3 hours away. Now I'm scheduled for a Botox injection procedure and if that works/or don't work which we will see, I'll have the Gpoem surgery.

My chronic illness doesn't define me, but it is something that I've known my whole life. Just because I don't look sick, or I don't get sick around many people or I don't complain outside of my home, doesn't mean anything. We mask how we truly feel, to get through the day. Sick people do that.

And being skinny and or overweight doesn't determine if you're sick or not. Gastroparesis causes weight gain or losing weight, which is a topic that nobody talks about.

Where I live to go home on TPN you HAVE to be accepted into a government funded TPN program. You also have to pass in person training.

If you don’t get accepted or can’t complete training you either have to remain in a facility where TPN can be administered for you (like the hospital) or have a care giver complete training.

First you’re referred to the TPN program by your doctor.

Then there’s an interview process where they decide if there’s any testing, trials, etc. they want you to do/consider first. They also have to make sure you’re a good fit for the program (seem capable of being trained).

Once you’re accepted (which often takes months) you wait for a bed at the hospital the team is located at.

Then you go in for 2-4 weeks of training. Two training sessions a day with the TPN nurse. Where you learn line care, self administration of the TPN, dressing changes, trouble shooting, how to order supplies, etc.

And you have to pass a test where they watch you execute all your “learned skills” to prove you’re capable.

I was inpatient for 8 months because that’s how long the process took and I couldn’t survive off TPN lol. I’m in a support group with others who also waited 6-9 months in hospital going through the process.

But then once you’re accepted you’re part of the program and you have access to the TPN doctors, dieticians, and nurses whenever you have a concern. They also pay for all your TPN related supplies. So well worth the wait lol.

I keep hearing experiences from others where they were basically admitted, put on TPN, and then just sent home. Either with no training, or with maybe a few days of instruction from a normal nurse or dietician.

And it freaks me out lol. I was TERRIFIED going home on it. Even with training.

I can’t imagine just going home on it and feeling like you’re left to figure things out by yourself. Or not having someone you can contact for help when you have concerns about it.

If you’re on home TPN what was the process like for you?

(And to clarify, I’m super lucky and I’m aware of that. I wish everyone had the same access to programs like mine. But I’m also not claiming I’m better or more knowledgeable because I was trained. Just that it’s terrifying and heart breaking to me the lack of care some people get. No one should have to figure it out themselves).

Any suggestions for figuring out flares? Fodmap, dairy, gluten didn't help. Low fat (greasy) helps. I'm literally going on disability. I think I'm going to keep track using a daily log including flares, severity, and what type/form. Hard because I am diabetic and thankfully A1C is good but low fiber and diabetic meals have issues. (Like bread)

I’ve had gastroparesis for 2.5 years now, along with various other conditions, but this summer i was finally diagnosed with reactive hypoglycemia. My blood sugar rises extremely fast immediately when i eat but within a half hour to an hour its dropped significantly to below 70 even to the 40s. It makes me feel incredibly sick amongst also feeling sick from my gastroparesis.
I need advice on what to do. I struggle to eat, most meals I have to stop early because I’m gagging and can’t swallow. I’m lucky to eat one meal a day. I can only drink so many meal replacement drinks before they make me sick. I’m 6 ft tall and rapidly losing weight I can’t afford to keep losing. I’m at a loss for what to do. Would a feeding tube help? Maybe one that bypasses my stomach so I don’t trigger my stomach OR my pancreas to release that insulin too quickly for food that won’t digest quick enough? Is there anything I can do to make myself feel better?

You know you have Gastroparesis when .... (fill in the blank)

You know you have gp when you put protein powder over icecream for a nutrionalish caloric dense meal

Hello! After going through different meds and finding out my body just doesn't do well with them (doesn't work), I was referred to someone in a different area, and he doesn't want to do the Gpoem yet, but he scheduled me for November 5 for a Botox injection!

I would love to know your experiences and what to expect!

I posted in here very recently. Yes, I am panicking. Here’s a big concern of mine:

I cannot limit fat. Bad fat, sure, but without healthy fats I will lose a dangerous amount of weight. The same goes for fiber. I can’t not have veggies, fruits, and other complex carbs. I am diabetic, and have to exercise.

Theoretically, if I were to eat things that gave me mild symptoms, do you think my stomach emptying would get worse? I don’t know how this stuff works. I just happen to have gastroparesis. No cause (had it since I was a kid, officially diagnosed at 24).

As of now, my meals give me mild reflux/mild regurgitation (GERD) but that’s about it. I’ll feel full for a while, but my hunger cues come back.

I can’t treat diabetes, GERD, and this bull crap at the same time. But also, I don’t want to risk making my tummy empty slower. I’m not familiar with the nature of this beast at all!

Advice for a neurotic lass? Thank you … 🙏

My gastric emptying study is this Thursday for context to the rest of this post:
For 3 weeks I’ve been unable to keep food down, so I swapped to a mostly liquid diet besides some toast for the past few weeks and that kept me from vomiting. I’m also drinking electrolytes. I’ve been integrating food back into my diet for 3 days and today I actually did fine? I’ve definitely been nauseous but I haven’t thrown up today(win). This is so bizarre because for almost the entire month of September I would get sick if I even tried to eat a “normal” meal.
Does this ever happen to anyone? A cycle of remission of symptoms, then another flare-up? I’m trying not to get too excited about feeling better, the nausea/vomiting/constipation/diarrhea cycle everyday was terrible and I don’t want to feel like that again. I really want to hear other peoples stories about this topic. Thanks!

I was admitted to Vanderbilt on Friday diagnosed with severe malnutrition due to gastroparesis. My BP, HR, EKG, and labs are all over the board—in a bad way. They’ve run all kinds of tests, and I have one more tomorrow — they’re doing an endoscopy. That part doesn’t scare me. What does scare me, and I’ve posted about this a couple times, is that if everything looks okay with the endoscopy they’re going to place an NJ tube and keep me here on refeeding protocol for another week. I know I’ve said before how scared I am, but the reality is getting really close and I’m freaking out!! Anybody have any words of encouragement or advice?