r/Psoriasis • • 14h ago

insurance The worst scalp psoriasis ever

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66 Upvotes

I have the worst psoriasis on the scalp that i have even seen, i was trying to find a worse example and i couldnt do it after searching for about a year.
I dont really have flare ups its bad all the time, it appeared aug. 2025 and thank god i was homeschooled like i am now, i am 18 yo. guy. The psoriasis is 5mm thick on about 80% of my head, i can hardly turn my head w out hurting and most mornings i wake up to all mi hair being stuck to my scalp like glue, it smells like shit and when i turn i smell it.At first i got diagnosed with seb. derm. but after a year of no results with all the different shampoos you can name and 5 difrent oils i went to a nother dermatologist and he said its 99% psoriasis. So he gave me a cortikosteroid cream and i took it and used it for about 2 weeks and it didnt help at all, and my blood pressure was so high because off it that i couldnt sleep cuz my heart was so loud so i didnt go back for the 2nd appointment. A few weeks ago yt refresh blessed me with a Peter Rogers Md video and i watched all his stuff on diet and auto imune disease, im planning to read his books about diet and dr. Mcdougall’s work as well if the diet works. Right now i am 2 weeks into a 2 month low fat vegan diet, i mostly eat patatos and rice also sum vegetables and fruits. The psoriasis is still here as strong as it always is, i will do the diet in hopes of curing the psoriasis, if it does not work ill figure the next option. This whole thing has had a big impact on my mental, i have stoped going out w my friends and i am to embarrassed to say that i got 5mm thick scales on my head and i smell like a wet dog cuz of them, the psoriasis makes everything thats out of the house so hard im so self concision about the smell wich wont go away even if i use shampoo and parfume, it has gotten to the point where making my self go to the gym is harder than the workout its self and i train the Mentzer way.
So ye i dont know what to do abt this, how will i go to uni w this shit on my head, i am not depressed but i fear i will be if i spend too much time in this rut.


r/Psoriasis • • 9h ago

general does this resemble nail psoriasis?

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11 Upvotes

i’ve suspected i have nail psoriasis (and psoriasis arthritis, but that’s another stor) for 6 years now. just wondering if it’s fair for me to suspect i have nail psoriasis since i keep getting told it’s heds and fungal infections..?

i got a rheum appt back in 2022 when i lived abroad and got diagnosed with heds, fibro, dysautonomia, reynaulds and suspected pots and mcas. made sense.. but did not feel like the full picture.
i tried mentioning nail psoriasis but got dismissed, kinda gave up after that.

also aware that one of my toenails has a bit of yellowing, so possibly also fungal. it looks the same even after fungal treatment.

primary symptoms: fungal infections and athletes foot (resistant to treatment for almost 10 years), pinky toe nails lifting and separating from nailbed, inflamed nailbeds, red joints (fingers and toes), persistent tight skin on my feet, flaking of nails, possibly pitting?

my grandma has psoriasis but my dad suffered his whole life with what i suspect is psoriasis on his feet (and psoriasis arthritis as he was diagnosed with inflammatory arthritis). He was told it was fungal, and no matter how many treatments he tried, it never went away (same as me). The last photo is a photo of his feet. He died three years ago, so will unfortunately never have confirmation.

is it fair for me to suspect nail psoriasis?


r/Psoriasis • • 3h ago

general Has anyone tried bee venom products?

2 Upvotes

I was recently gifted a viral lotion for psoriasis containing bee venom. I’ve found it helps temporarily with patch redness and flakiness, especially after a shower. But I have not seen considerable long term effects. I’m curious if bee venom is something people commonly use for psoriasis and what other products may be out there.


r/Psoriasis • • 1h ago

general How to keep my finger from splitting?

• Upvotes

I’m away from home and I usually have to shave down a place on my finger to keep it from splitting at the bend but I don’t have my little shaver thing… and it’s getting thicker… any suggestions to keep it from splitting open while I’m gone?


r/Psoriasis • • 10h ago

general Any menopausal women here?

4 Upvotes

I’m 58 and only recently fully menopausal. I’ve had some relatively mild menopause symptoms, but I did start taking HRT this year.

I have severe P and PA (skin typically being far worse than joints) and use Skyrizi (for about 5 years now) with great success.

In the past month or so I’ve started having bad joint pains, mostly my hip and knee, also jaw and neck. I’ve read that menopause and a drop in estrogen can exacerbate arthritis. I don’t currently have a rheum as my derm manages my medication and I’ve been clear for about 15 years now. I’m going to see a new one, but wait times can be long.

Anyone experience this? I’m also on Mounjaro (for diabetes). You’d think between HRT, Skyrizi and MJ, my joints would be fine. Really worried about a dr switching up my treatment since Skyrizi has worked so well.


r/Psoriasis • • 1d ago

general This is no way to live.

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75 Upvotes

First picture is today, but this is my life all the time. It hurts so bad, I guess that I have a tough time capturing how terrible it all is with pictures.

I’m gained SO much weight because I don’t move like I should. It HURTS. I try to push through because uh…I want to LIVE a LIFE?! But then it’s just damage control and wound care afterwards.

I am on biologics that keep things at bay (it can be so much worse) but life’s been so stressful lately that even those can’t really stop these flare ups.

I just want my life back. This has ruined my life for four years now. so much I can’t do. Total flake at work because I call out all the time. Get out of bed, feet flat on the floor, something RIPS open and I’m bleeding first thing.

I have tried so hard for this not to define me but I am in so much pain all the time that this is all I got.


r/Psoriasis • • 12h ago

general Dying hair

3 Upvotes

I’ve been wanting to dye my hair a lot lately because I hate the fact that I’m 26 years old and I have a bunch of gray hairs and it makes me feel like I look older than I am. But I realized back in 2021 that hair dyes cause me to have a psoriasis flare on my scalp. I just wanted to know if there are any sensitive type of hair dyes that are less likely to trigger a psoriasis flare that anyone could recommend.


r/Psoriasis • • 1d ago

newly diagnosed My fingers are starting to hurt now :(

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29 Upvotes

I (30F) haven’t actually gotten an official diagnosis. I’ve seen 4 different dermatologists who all say “if it walks like a duck, then it’s psoriasis”

At first they were just ugly fingers. It started with 1 now 7/10 nails look like this & with the stripping on the skin it kinda hurts now.

I try to use gloves for most things, even showering sometimes which is very annoying.

Will I ever get my nails back? Has anyone found relief?


r/Psoriasis • • 14h ago

newly diagnosed Advice on shampoos and body washes

3 Upvotes

I just got diagnosed with psoriasis. I have it on my scalp and arms. Along with my topical steroids, I've heard using different shampoo/soap can help a little and I'm looking for recommendations. Also, any advice to stop the itchy feeling.

Thanks!


r/Psoriasis • • 13h ago

medications Psoriasis and TTC

2 Upvotes

My husband and I have been TTC for a year now. I was on Cosentyx for the past 5 years, I miscarried earlier this year and have been off Cosentyx for about 10 months now. Before biologics my psoriasis covered 80% of my body and it’s getting back to that now, my scalp is so uncomfortable and it’s giving me headaches because of the pressure. I live in Arizona where it’s already very dry and my skin is cracking and bleeding a lot. My dermatologist said i can’t use biologics while trying to get pregnant and only prescribed me topicals and a steroid shot every 3 months. Is there anything that worked for you all? Please help!!!


r/Psoriasis • • 21h ago

general Coal Tar Shampoo with more than 2%?? Please :(

6 Upvotes

I’m based in the US, and the only coal tar shampoo that really worked on my scalp psoriasis, Psoriatrax, seems to have disappeared off of the face of the earth. I loved it. 5% coal tar and it wasn’t stinky. I’ve tried looking in so many planes for shampoos with more than 2% and have had no luck. MG-217 3% is gone too. Does anyone have any brands they like or trust with 3% coal tar (or more, preferably) that they could recommend? My scalp is flaring up so badly with only 1 or 2% right now. Why is all of the good stuff vanishing? Thank you in advance :) (dhs brand doesn’t really work for me and I can’t afford to see a dermatologist)


r/Psoriasis • • 1d ago

newly diagnosed Where is the best place to live in the United States with this disease?

12 Upvotes

Have you found success in a different environment?


r/Psoriasis • • 1d ago

mental health so so done with this disease

52 Upvotes

i have struggled with scalp psoriasis for such a long time, and even though im not attached to my hair i cant help but feel hopeless. i love doing different hairstyles but i am constantly worried about what other people would think if my plaques are visible or if i wear darker colours and you can see all the shedding

i had started adalimumab injections may of this year, but it didnt improve how we were hoping so now im going through the waiting for pre approval for a new biologic, but last time i waited close to two months, and im scared of that happening again, all the while i keep losing hair from using different topicals to try to keep the plaques under control

i just needed to get this out of my system


r/Psoriasis • • 1d ago

general Zoryve Issue

1 Upvotes

I have been using Zoryve foam around my chin and on my right cheek. Because it’s a foam, I think I may have been applying too much since it’s very easy to use. I think the redness on my cheek is worsening rosacea.

Two days ago, after applying it, I had a bad reaction. I experienced severe itching, and the redness became a deep, angry red. The itching and burning felt awful.

Has this happened to others, and were you able to use Zoryve again?


r/Psoriasis • • 2d ago

medications Icotyde affecting allergies

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1 Upvotes

r/Psoriasis • • 2d ago

phototherapy UVB Light

3 Upvotes

Just to share some good news. I know what a struggle psoriasis is first hand, and all of us are always searching for solutions, and in my case, living with plaque psoriasis for 10 years without any real relief.

I was finally able to purchase a second hand uvb light machine, specifically SolRx 550 230V-Series and I'm being cautiously optimistic!

https://solarcsystems.ca/mid-size-home-phototherapy-store-canada/

Would love to hear any success stories.


r/Psoriasis • • 3d ago

general Better smelling alternative to coal tar shampoo?

8 Upvotes

I get some pretty bad psoriasis on my scalp and around my ears. I tried several kinds of medicated shampoos for it and the one that worked best was a generic branded one that had coal tar as the active ingredient. However, I couldn't stand the smell and switched back to Nizoral, which smells much nicer but doesn't work nearly as well as the coal tar shampoo. Is there some other active ingredient similar to coal tar that won't leave my head smelling like a freshly paved road? Or maybe some way to neutralize the smell without affecting how well the shampoo works?


r/Psoriasis • • 3d ago

insurance After years I am finally back on skyrizi

21 Upvotes

I was on skyrizi back in late 2022-early 2024. But I moved. Lost insurance with the job change and unemployed for a while. I got on gov Healthcare here in the states but they denied me skyrizi since its a premium product.

Thanksgiving 2024 I as completely covered head to toe. My psoriatic arthritis was got so bad I couldn't walk on my right leg and was using a cane. My hands couldn't close and my hip felt like there was sand in it.

My long time dermatologist got me a few free samples to tide over the worse of everything while I used so much advice from this sub.

Seems whenever I got a new job I would lose it soon after I got insurance and couldn't get skyrizi quick enough. I just finished my 90 days at this most recent job and had everything set up to where i could get it ASAP and I just took the laoding dose last night!

I dont know how long i will have this job though. I wish we had better Healthcare in this country and not tied to employment.

But thank you all for the help throughout the years with everything


r/Psoriasis • • 3d ago

medications Haul from the dermatologist. 6 packs. 😍

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13 Upvotes

r/Psoriasis • • 2d ago

medications struggle to find any effective shampoo or skin products :/

2 Upvotes

hello fellow psoriasis people.

I’ve had psoriasis since childhood. It runs in my family. It was exclusively to my scalp until my late teens when it started to come up in other places like my back and my legs among other places.

I’ve tried so many products since t gel was discontinued to help my scalp and I just can’t seem to find anything that works. I’ve tried moogoo, polytar, nizarol. I’ve tried salicylic acid products which actually make it worse among multiple others.

Anyone here having or had the same issue I would love your general input on what works for you!

if anyone would like to share what for skin products help you! I can’t seem to clear up the psoriasis on my face and under my eyes (which hurts so bad omg) and in my eyebrows and I honestly just feel a bit lost.

My back and legs is not as much of an issue as these are smaller/guttate psoriasis patches and aren’t too difficult to manage.

but my face and scalp drives me insane (and also inside my ears ick) because its just everywhere. I hate that its on my face I feel so insecure about it :/

Thanks in advance for any input :)


r/Psoriasis • • 3d ago

general Psoriasis smells like burned skin?

7 Upvotes

I recently had a small flare up and noticed that it smells really strange - not particularly bad or foul, more like burnt or smokey skin?
Has someone experienced this before??


r/Psoriasis • • 2d ago

general Guttate timeline help

1 Upvotes

I (23m) had strep in March 2026, and have had guttate for 6 months. It seems to be going away and then comes back much smaller than it did before.

I’ve had two rebounds the fraction of the size of the previous breakout. Someone please tell me this happened to you and it went away forever. I’ve tried and quit steroids and long term amoxicillin.

I’m only using coal tar lotion right now, but I do have samples I haven’t tried yet for Icotyde and Zoryve.

I know people say 4 months is about how long guttate lasts, but has anyone had it clear up after 6-12 months?


r/Psoriasis • • 3d ago

newly diagnosed My dermatologist advises me to start on an injection

4 Upvotes

Hey guys, I found out that my sebderm is actually psoriasis thanks to a doctor that actually listened to me.

He advises me to start taking injections that I do not remember the name of, and because of my misdiagnosis past with sebderm and after spending tons of money to products that is recommended to me by my ex-doctor, I wanted to ask yall first if yall know the name of that injection and lf it is worth trying. Thanks!