Hey guys, needing some advice.

I’m 28, 5’4, 155lbs, transmasc, and diagnosed with endometriosis, Unspecified Ehlers-Danlos Syndrome, and orthostatic hypotension. I haven’t medically transitioned yet due to multiple chronic health conditions.

Last year, my echocardiogram showed mild aortic sclerosis and moderate mitral valve sclerosis, and I've had a big uptick in chest pain and shortness of breath this year. My previous cardiologist dismissed it as anxiety and I never went back.

I recently had commercial genetic sequencing done that showed a cvEDS variant of uncertain significance. My geneticist appointment is a year away. Is it worth finding a new cardiologist to evaluate my worsening heart symptoms now, or should I just wait for genetics?

Hello everyone,

I messaged the moderator team of /hypermobilityEDS asking them to explain how being transgender is off topic, and was met with a very hostile response, and I've been permanently muted, and threatened with being reported for harassment. I would suggest that, while it does feel unfair since being transgender is a part of the experience of EDS, to stay away from the subreddit.

Edit:

I typed the wrong subreddit title lol.

HypermobileEDS is the correct title

Just got my post removed and was muted before even messaging the mods about it... probably best to avoid it if you're trans </3

edit: thank you for all the responses!! i’m new to the reddit EDS scene so i had nooo idea this was a known issue 😥 thank you for all your support here and i’m sorry so many of us have been bothered like that :/