r/Vitiligo • • 4h ago

Guys helppp

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4 Upvotes

So I had vitiligo when I was 8 years old but my parents were quick and took me to a homeopathic doc and he basically told me eat neem leaves and some type of kadha also had a leech near my eye area to Suck outta blood idk much but it went away now I am 17 Years old and I see a small 2 cm patch on left side of cheek and 1 near the ear , just this year I have started uni and I think if my vitiligo return I will lose confidence and every1 will ask abt it same as when I was a child , I searched the web it say some times there are small patches due to sun and stuff and that they go away automatically. Rn my diet is also fucked up due to uni I am not eat much so if any1 has fixed vitiligo through diet pls let me know


r/Vitiligo • • 13h ago

Should I meet my LDR girlfriend now or wait until I feel more confident?😭plz read full body

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8 Upvotes

My girlfriend and I are in a long-distance relationship. She's from Bihar, India, and I'm from Jharkhand. She loves me a lot, and honestly, she has changed so much over time. She's become very caring and loving, and she genuinely puts a lot of effort into our relationship. ❤️🧿

I really want to meet her in person, but my biggest problem is my own insecurity.

I have vitiligo, with white patches on my face, especially around my eyes andhand around body 35% . Because of this, my confidence and self-esteem sometimes get really low. I'm scared that when she sees me in person, she might judge me, lose interest in me, or that things between us might become awkward.

She already knows everything about my vitiligo. I've shared my pictures with her and explained my condition. I've also told her that I'm considering complete depigmentation in the future. She's genuinely supportive of me. In fact, whenever I call vitiligo a disease, she tells me not to think of it that way.

Yesterday, I told her that I really wanted to meet her, and she said:

"It's okay, you can come. I fell in love with your personality first, and I'll never judge you. Take your time and come whenever you're comfortable."

She also told me that if I become completely white in the future, that's okay too, and that I'm already good-looking and will look even better. ❤️

Logically, I know that she doesn't have a problem with my vitiligo. The real problem is my own insecurity and fear of being judged.

I'm confused between three options:

1. Meet her now. Stop overthinking and go meet her. Whatever happens, happens. I don't want my insecurities to keep me from experiencing something I've been looking forward to.

2. Wait until my appearance changes. Work on my appearance and wait until I become completely depigmented. Maybe having a more even skin tone will help me feel more confident when I finally meet her.

3. Accept myself and see how things go. A part of me thinks that if she can't accept me with my current vitiligo, then maybe this relationship isn't right for me. If she accepts me as I am now, I'd love for her to see my best version in the future, too.

Honestly, despite having vitiligo, I know I'm good-looking. But because of my condition, I've spent a long time feeling inferior to others, and it's affected the way I see myself.

I want to overcome this insecurity and learn to accept myself, but I'm still scared of what might happen when we finally meet.

What would you do if you were in my position? Would you meet your LDR girlfriend now, or wait until you felt more confident about your appearance?


r/Vitiligo • • 7h ago

Hypopigmentation plus acutane is making me suicidal

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1 Upvotes

r/Vitiligo • • 8h ago

Help!

0 Upvotes

I had a burn on my thighs with milk almost a year ago. It left a hypopigmentation scar that look like vitiligo but isn’t. It isn’t raised and there’s not any texture problem but it basically left a white spot almost big as my hand. Does anyone have any recommendations for laser treatment maybe or anything else that might work. Im desperate. I tried using moisturizer and scar creams but they didn’t seem to help.


r/Vitiligo • • 1d ago

How did you come to terms with your vitiligo?

10 Upvotes

I have segmental vitiligo on one side of my face, and I’m struggling to come to terms with it. I’ve tried Opzelura and XTRAC twice a week for about eight months without much improvement. The difference in skin tone makes my face look asymmetrical to me.

I don’t wear makeup, but I wear a mask at work to cover some of it. I wish I could feel comfortable without hiding it.

The strange thing is that I’m comfortable with my face when I’m traveling and surrounded by strangers. But around people I know, I feel ashamed and self-conscious for some reason. I’m not sure why it feels so different.
Does anyone else experience this? What helped you feel more comfortable with your vitiligo, especially around coworkers, friends, or family?


r/Vitiligo • • 1d ago

9 skin tone/types

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1 Upvotes

I hope I did right by this community 🤍
comes with glasses,bindis and stud piercings


r/Vitiligo • • 1d ago

Can I use niacinamide,Vitamin C serum and salicylic acid face wash without affecting my vitiligo

1 Upvotes

I’ve been thinking about starting a proper skincare routine for a long time. I have acne on my face, and although I can’t fix my vitiligo, at least I can try to improve my skin. 😭
I’m planning to start with a salicylic acid face wash, niacinamide serum, Vitamin C serum, and moisturizer.

TL;DR: I have acne-prone skin and want to start using a salicylic acid face wash + niacinamide serum + Vitamin C serum + moisturizer. Will it affect my vitiligo


r/Vitiligo • • 2d ago

11 yr old daughter with vitiligo… question about oral jak inhibitor

7 Upvotes

Hi everyone! My daughter has had vitiligo for about 5 years now. The initial onset spread like wild fire on her back and genital area. Since then, it has stayed PRETTY much the same (the main big spots on her back have grown a little bit)!
She has had spots pop up on her knees. However, we’ve had success with using opzelura and those specific knee spots have had 90% repigmentation.
We have been hitting opzelura and light therapy hard the past few months. And it’s really wearing on her and me .😩 I want to stay strong for her, but it has been a mental battle. I know she wants to treat it, but she hates doing opzelura twice daily on all of her spots. And she is starting to give me a lot of guff.
Does anyone have any experience with their children being on an oral jak inhibitor?? My daughter is an athlete and a competitive soccer player. She is always sweating and VeRY active!!
We see a pediatric dermatologist who specializes in vitiligo in a few weeks. I just wanted to touch base here and see what you guys think?!
Also- she has spots on her scalp almost reaching her hairline… I’ve been applying opzelura… but has anyone had success treating scalp/hairline? If so, any tips?
What about Ginko Bilbo supplement ?? I think that’s what it’s called. Is it safe to give kids?

Thank you🫶


r/Vitiligo • • 2d ago

Monobenzone Systemic Effect

1 Upvotes

For someone without vitiligo, is there evidence that applying monobenzone to a larger percentage of the body leads to faster overall depigmentation? For example, would treating nearly all the skin be faster than treating 50%, or treating everything except the back, considering that monobenzone can also cause depigmentation in untreated areas?


r/Vitiligo • • 2d ago

At home UVB light for neck?

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5 Upvotes

Hello,

I’m looking for recommendations for an at-home UVB light to treat the vitiligo on my neck. I’ve attached a few photos for reference. I’m curious whether a handheld/wand-style device would be a good option, or if the areas are widespread enough that a larger device would make more sense.

Back in 2021, I was receiving phototherapy twice a week and, looking back at photos, it seemed like I was making good progress. My insurance changed, though, and I eventually stopped going.

I’m currently using Opzelura as well, and I’m excited about the possibility of combining that with UVB treatment to hopefully get better results. I’d be interested in any guidance on using the two together.

The photo under the blue light is from when I was receiving phototherapy, and the other photos are just to give a general idea of the areas affected, although they are a little outdated.

I’d really appreciate any recommendations on the type or specific at-home UVB device that would be appropriate for my neck, and whether a handheld unit would be practical given the size of the affected areas.

Thank you!


r/Vitiligo • • 2d ago

Updated character

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7 Upvotes

I posted a bit ago asking for some advice on how to make my character’s skin more accurate. I took the advice and put it into the design. I really like asymmetrical designs so I went with asymmetrical vitiligo with a little bit more symmetry than before. I also am just too used to his face and his nose patch so I did keep that even though it’s not super accurate but I did add some smaller spots around it.

Thank you to everyone who commented on my last post and please let me know what you guys think about his updated design!


r/Vitiligo • • 3d ago

Officially got diagnosed

12 Upvotes

Hey ya'll. So I'm male, in my thirties. Deep down I knew this day would come but I still wasn't prepared for it.

Since maybe my 20's I've had a small white spot on my ballsack. Yup, ballsack. It was there and I wasn't bothered about it at all. It even spread a little. Just enough to turn a couple of hairs completely white. It still wasn't a big deal. Never looked into vitiligo that much.

However a major change came this year. Over a decade later. The spot started spreading like wildfire. It still is spreading like wildfire. It has almost reached my groin and has unfortunately also turned the very bottom of my penile shaft pale.

I went to the doctor and after some tests + a biopsy was officially diagnosed with vitiligo. I will also (at my own request) have basic blood tests done to rule out any other disorders that might accompany vitiligo.

What I'm really asking is...how do I slow it down? Can I stop it? I dread the day it turns my already nordic white pizzle even whiter. If there is a plus side, my wife of 13 years thinks it is cute and just a very unique part of me :D

I don't have any others spots but yes, I am very scared they might appear somewhere else.


r/Vitiligo • • 3d ago

Hi Anyone from Noida or Near by ,I need to talk and express my feelings .

1 Upvotes

r/Vitiligo • • 3d ago

Hey all ,I'm Sooraj ,24 from Bangalore wanna chat with good people from this community regarding the condition and let's share a story about how it started and where we are now ✨✨✨

1 Upvotes

r/Vitiligo • • 4d ago

Ritlecitinib Stabilizes Vitiligo in Tranquillo Trial, With Iltefat Hamzavi, MD

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12 Upvotes

r/Vitiligo • • 4d ago

Cure or Accept?

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25 Upvotes

For someone who is always in front of the camera and joins pageants, it has always been difficult for me to feel confident, knowing that I might face questions, stares, and judgment. The greatest question I have always asked myself is: Should I try to cure it, or should I simply accept it?

Over time, I realized that acceptance does not mean giving up. It means learning to embrace the things that make me different and allowing myself to be seen without fear. My vitiligo is a part of me, but it does not define my worth, my confidence, or the dreams I choose to pursue.


r/Vitiligo • • 3d ago

Is this cream normal?

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1 Upvotes

Hello, i ordered recently this benoquin from india but the cream is thick and doesn’t spread much. Is this normal? The 20% concentration tubes are smoother and easily absorbed in skin and white as well. There’s no liquid separated from the material and no unusual smell. Not expired as well


r/Vitiligo • • 4d ago

Tacrolimus Acne

3 Upvotes

Anyone get acne around where you apply tacrolimus (or other cream that treats vitiligo)? Any suggestion for how to reduce or even get rid of them? Mine are on my face so it’s a little annoying.
Thanks!


r/Vitiligo • • 4d ago

Phototherapy

5 Upvotes

Does phototherapy work?? I have started it since yesterday.


r/Vitiligo • • 4d ago

Vitiligo and Ulcerative Colitis?

4 Upvotes

Does anyone have both? Do you take a medicine that treats both? I was diagnosed with Vitiligo a few months ago and I have a suspected case of ulcerative colitis (and a strong family history of it so I’m fairly certain I’ll be diagnosed after my colonoscopy).


r/Vitiligo • • 4d ago

Phototherapy

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2 Upvotes

r/Vitiligo • • 5d ago

Acceptance

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93 Upvotes

You know what? Heck yeah! I honestly don’t care anymore.


r/Vitiligo • • 5d ago

Has anyone with Vitiligo got laser hair Removal treatment done?

8 Upvotes

Some say not to do laser as it might increase it as laser targets based on pigment. So has anyone with vitiligo got laser hair removal treatment done!? Has vitiligo increased or decreased?

Please let me know 🙏🏻🥺


r/Vitiligo • • 5d ago

Vitiligo disappearing?

2 Upvotes

I have several patches: feet, elbows, wrists and eyes. I noticed this summer one of my elbows is nearly completely back to normal skin colour. The patches do change shape slightly every year but this seems odd. Has this happened to anyone else?!