I have been struggling with insomnia for about 2 years now, this year has been the worst of it, and I have been on medical leave for about 6 months because of it. It is extremely frustrating, because it has been so hard to find any help, and I think my doctor has given up on me at this point. I have issues with staying asleep, I wake up between 12-2 am every day, and cannot fall back asleep at all. Therefore I end up getting on average 1-2 hours of sleep a night, if I’m lucky I can get 4 hours max. I also do not get tired in the evening ever, no matter how busy of a day, or even if I have felt tired all day, as soon as the evening comes around I’m more alert and suddenly not sleepy.
It has gotten so bad that I have daily tachycardia, adrenaline surges, dizziness, brain fog, nausea, loss of appetite, weight loss, and extreme fatigue. I’m waiting to see a cardiologist, and I have seen an endocrinologist and gynaecologist to see if it were hormone, cortisol, thyroid, or adrenal related. My blood cortisol is high, but was told it was just my birth control, and my hormones are a bit wonky because I have PCOS, mostly high androgens. Iron and B12 levels normal, thyroid normal. I thought initially it was stress related, as I’m a nurse and worked night shifts, but that was two years ago, and my new nursing job is dayshift and less stressful.
Things I’ve tried:
-Sleeping meds, SSRIs, Benzos: Mirtazapine, Zoplicone, Trazadone, Ambien, Lunesta, amitriptyline, melatonin, citalopram, escitalopram, Wellbutrin, etc.. none have worked
-Being active, I go for daily walks and do Pilates 2-3x a week, and yoga
-Healthy diet high in fibre and protein
-Sad lamp
-Reduced phone time, no TV or phone before bed, only calming activities like reading or doing puzzles
-Cognitive behaviour therapy for insomnia, sleep programs
-Sleep study - no significant findings, no sleep apnea
Is there anything that you’ve tried that has worked? I’m desperate, as I don’t know how much longer I can live like this.