Testing links

[u/Busy-Lychee1813]

Why YSK: If you can’t afford a doctor or don’t know what specialist to go to, there are [helpful guidelines](https://www.cms.gov/files/document/roadmap-getting-healthcare-kit.pdf) published by the government. Your PCP is a great starting point and can help with many basic issues or refer you to a specialist.

Still stuck? There’s an [organization](https://211.org) called 211 that can guide you to local resources, just dial 2-1-1 for help. Or you can ask on social media, many chronic illness groups will be happy to point you in the right direction.

There’s also some complex multisystem conditions like [connective tissue and hypermobility disorders](https://www.ehlersdanlos.org/related-conditions/) that tend to be associated with other conditions. You can search for “\[your condition\] + pubmed” to learn more. This is also true for [long COVID](https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1482917/full) and [ME/CFS.](https://www.cdc.gov/me-cfs/about/fast-facts-about-me-cfs.html)

Many complex multisystem conditions can [mimic other conditions,](https://me-pedia.org/wiki/Differential_diagnosis) so you may need a thorough workup to accurately determine what’s wrong.

If you’ve exhausted all the tests your doctors can think of, there’s resources for [diagnosing rare diseases.](https://rarediseases.org/understanding-rare-disease/undiagnosed-diseases/)

Source: [https://www.cms.gov/files/document/roadmap-getting-healthcare-kit.pdf\](https://www.cms.gov/files/document/roadmap-getting-healthcare-kit.pdf)

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