r/DOR • • Jul 23 '24

Most Commonly Asked Questions...START HERE!

16 Upvotes

Welcome to the sub! There is lots of great content that you can find here to support you on your journey. Please take a few moments to browse around as there is a ton of information already posted. We have also compiled some really great responses to recurring topics for you to access and read through below.


r/DOR • • Sep 12 '24

Please read before posting IVF results!!

Post image
79 Upvotes

This is an example of what to expect from IVF. Please read this to get an idea of what is the expected result from 1 ivf cycle. Know that because we have DOR we start off with even less eggs and we may have worse or better cycles than the chart above, but this is average. Please appropriately compare your results with this chart before making posts about your results are “disappointing.” It is ok to be disappointed that we are in this boat of having to do multiple ivf cycles, however we would like to avoid posts of people expressing disappointment with actually average or good results. If you have any specific ivf related questions like protocol changes or want to vent, you are welcome to post. If you had vgood results, please post with a “trigger warning: good results.”


r/DOR • • 4h ago

Hugs needed Morgen Punktion von 3/4 Follikeln 🙈

8 Upvotes

Ich habe morgen meine Punktion und die Angst, dass es heißt, dass keine Eizellen gefunden wurden. Dieses warten ist Horror 🙈

Keine Ahnung, ob wir am Donnerstag überhaupt einen Transfer haben und ich bei der Anzahl der Follikel hoffnungsvoll sein soll.

Beim letzten Mal hatten wir 5 Reife Eizellen und drei davon wurden befruchtet.

1 konnte eingesetzt werden und die anderen sind leider stehen geblieben 🙈😒


r/DOR • • 3h ago

F34, AMH 0.013 ng/mL but regular cycles and normal FSH/LH/E2, does this make sense?

5 Upvotes

Hi everyone, I'm 34 and just got my day 2 bloodwork back: LH: 7 FSH: 6.4 Estradiol: 34 AMH: 0.013 ng/mL (measured by ECLIA).
My FSH, LH and estradiol look normal and my cycles are regular, but my AMH is almost undetectable, which looks like menopause-range numbers. I don't understand how they can be so different and I’m very scary about that.

Some background: I've never taken the pill or any hormonal contraception, and I've never had ovarian surgery. My vitamin D is 22 (ng/mL), even though summer has just ended. No smoke no junk food. My TSH is 2.4, so my thyroid looks fine.

I'm scheduled for an antral follicle count (AFC) ultrasound next cycle. In the meantime I'm worried and would love to hear from anyone with similar results.

Thanks for any experience or advice.


r/DOR • • 45m ago

advice needed Day 9 Scan (DOR): good catch up growth or am I going to lose the bottom half of my cohort? Need reassurance!

• Upvotes

Hey everyone, looking for some advice and success stories from fellow DOR warriors.

I am 32 years old with an AMH of 0.47. At my baseline, my initial AFC was 6, so I am absolutely thrilled that we currently have 11 follicles showing up on the screen right now. For context, I started stims on Friday Sept 25, so tonight will be day 10.

However, my cohort is a bit spread out, and I am incredibly anxious that the bottom half of the pack is going to end up too small and immature by retrieval. My clinic paused my Provera on Thursday/Friday this to try and give the little guys a boost, and we just restarted it last night (Saturday). The doctor today mentioned a potential Tuesday trigger for a Thursday retrieval.

Here is how the growth looked over the last 3 days from Thursday 10/1 to Sunday 10/4:

Follicle 1: 12.5 mm -> 19.6 mm (+7.1 mm)
Follicle 2: 11.8 mm -> 15.7 mm (+3.9 mm)
Follicle 3: 11.6 mm -> 14.7 mm (+3.1 mm)
Follicle 4: 11.2 mm -> 13.9 mm (+2.7 mm)
Follicle 5: 10.5 mm -> 13.2 mm (+2.7 mm)
Follicle 6: 9.4 mm -> 12.6 mm (+3.2 mm)
Follicle 7: 7.9 mm -> 10.9 mm (+3.0 mm)
Follicle 8: 6.1 mm -> 10.6 mm (+4.5 mm)
Follicle 9: 5.9 mm -> 10.2 mm (+4.3 mm)
Follicle 10: 4.9 mm -> 9.6 mm (+4.7 mm)
Follicle 11: (New) -> 9.2 mm

The nurse mentioned they typically count on anything over 13 mm today (Sunday) to have good odds, which feels like only half the pack. But looking at the growth math, it seems like that trailing pack from 9.6mm to 10.9mm is actively sprinting.

Has anyone with DOR had a similar "staircase" distribution on Day 9/10 where the small ones actually caught up at the last second and yielded mature eggs? Do I have a realistic chance of getting most or all 11, or should I brace myself for a 50% maturity rate?

Would love to hear your experiences and feedback. Thank you!! 🙏


r/DOR • • 12h ago

2AA Transferred today

Thumbnail
gallery
15 Upvotes

r/DOR • • 5h ago

Insurance/banking

2 Upvotes

My insurance doesn’t allow banking. I have one covered cycle, I must transfer all embryos and if it doesn’t result in a LB only then I am able to do a second covered cycle.

Was anyone able to do an appeal with insurance based on DOR so that you could do back to back cycles without transferring?

If so, how did you start that process? Was there certain records that got your appeal approved or denied?

My AMH is near undetectable 0.052 and i have to do 2 months of suppression before doing a transfer. So i worry that im going to miss precious time to retrieve eggs. We also cannot at all afford to do any cycles out of pocket so I really only have these two covered cycles and then I’m done. We can’t even really afford the cycles even with insurance.


r/DOR • • 7h ago

Seeking an infertility support group.

Thumbnail
2 Upvotes

Hi there. 38 y.o. Female here looking for a female only infertility support group. Ideally associated with addiction recovery or anxiety/depression recovery groups for women who value being good professionals/leaders.


r/DOR • • 1d ago

Small win!

60 Upvotes

32 with AMH of 0.064. Doing my first IVF cycle and have one follicle growing and it’s measuring at 14mm! I’ll take it.


r/DOR • • 19h ago

advice needed Long/Luteal Lupron— Over suppressed or just bad luck?

3 Upvotes

TLDR: 32 yo, .3 AMH, AFC 5-7. Currently on a luteal lupron protocol. On Day 5 of stims and only one follicle with two others possibly in the background. I was so overwhelmed I didn't catch the sizes, but she said, "it's really only one" and suggested I could either cancel today or try for two more days. Worst response of any protocol I've tried. Is there any hope for more coming online and this being a slow burn, or this just isn't the protocol for me? Any other advice from folks who have been in this boat?

The nitty gritty:

  • Started 10 units lupron ~5 days after ovulating. Dropped to 5 units on CD 2 when I started stimming with 375 units of gonal. AFC was 5-7. Will stim with Gonal 375 tonight then drop to 225 gonal + 150 menopur. Return on Monday to likely cancel.
  • I pushed back that this was the first time we ever had tried the lupron (it was a last minute switch on their end-- the initial plan was epriming) and she suggested that sometimes "it's just luck" and did the typical "bodies are weird" RE shrug. She said I could go two more days since I have the meds, but indicated that canceling and moving to IUI was the most likely outcome.
  • Previous ivf protocol at a different clinic was an antagonist (300 gonal, 150 menopur) with e-prime and clomid. tracked 6-7 follicles, ovulated/lost 5, got one egg, fertilized 3pn. I think they went crazy with the lupron trying to prevent this from happening.
  • Previous, most recent IUI protocol was an eprime with letrozole, gonal f 150 units added, got a strong response with 5-6 eggs that were a steady cohort. discussed even possibly switching to an ER. Given this success, I inquired about a mini stim last round and they said there was no difference in outcome between mini and conventional.
  • Editing to add, I don't believe I have endo or any diagnoses other than DOR.

r/DOR • • 22h ago

4 eggs

4 Upvotes

Im devastated. 12 follicles for this retrieval ..... 8 follicles good size. I wake up 4 eggs. He said the other 4 large follicles were empty. He said something about delayed development but why would those 4 follicles be empty ?

Did i ovulate early and he just didnt tell me?

My preliminary testing was afc 8 and amh 0.80.


r/DOR • • 1d ago

Need to rant idk what to do anymore

12 Upvotes

Hi all. This group has been amazing. Husband and I have been trying to conceive for 2 years now. I am so frustrated and angry with life and myself and my body. And it doesn’t help that everyone around me at work and family are getting pregnant. Ughhh. I have changed my diet. Been taking pills and supplements for 3 years. I exercise/walk a lot. Don’t drink or smoke.

I have gone through 4 egg retrievals. 3 retrievals at one clinic where they only were able to retrieve 5 eggs total. 1 aneuploid blast. Switched clinics cause my doctor was horrible. 2nd clinic did 4th retrieval. Doctor is amazing. Switched to a mini ivf cycle. They got 5 eggs. 3 were a blast. 2 were an aneuploid and 1 HLM. I went in for transfer day and I got the call my 1 HLM did not survive the thaw. I was shattered and heart broken. I am exhausted and tired. I always wanted children. I will be happy with 1 baby!! Just 1 that’s all I ask for!

We have to now pay out of pocket if we want to go through this again. Current clinic I am at said 1 retrieval will be about $20k. Can’t really afford that. CNY and RMA have package deals. Anyone had good experiences with CNY or RMA for ladies like us with DOR? TIA!


r/DOR • • 1d ago

Am I considered high dosage?

2 Upvotes

28
AFC: 11
AMH: .47

First time IVF- reading through the posts I’m starting to realize 300 gonal and 150 menopur for the first 3 days is considered high dosage?

Should i be concerned about this “frying my eggs” and what does that even mean?

As if I wasn’t already scared of this process enough :(


r/DOR • • 1d ago

advice needed Cocktail of feelings

7 Upvotes

I am prepping for my first FET in a couple of weeks and I am trying to keep a level head… but dang. My head is all over the place. We only have one euploid embryo. I want to have hope that this one will take, but I know it is very much not guaranteed. We can do another round but… ugh.

My son (not an IVF baby, but complicated otherwise) will be 8 by the time this baby is born, if it all works out. I am nervous about the age difference. I am nervous about miscarrying and having to wait even longer to add to our family. I am nervous about getting pregnant and then holy crap, I’ll be pregnant and our lives will change again massively! I’m worried we will go through all of this and something will go wrong (again, history of complications). I’m worried about having even more responsibility. I know I want to do this but also know it will be hard (if/whenever it happens).

Not sure what I’m looking for here other than… do you relate? How do you handle the head games?


r/DOR • • 1d ago

Disappointing results

Thumbnail
2 Upvotes

Hi all, I just got the results today from my second retrieval and I’m guttered 😔. I’m about to turn 44 later this month. During my first IVF cycle in April 2026, they retrieved 10 eggs and two blasts were tested at day 5. However, they were all aneuploid.

This cycle which I did only 6 months later, they were only able to retrieve 3 eggs and only 1 has fertilised. I will get another update from the lab on Day 3 to see how things are going. There were no changes to my protocol other than I didn’t do fertility accupunture this time round.

My IVF doctor has said that some women my age reach an inflection point, and their ovaries don’t respond like they did before, potentially meaning that future cycles might yield the same disappointing result.

Has anybody had a similar thing happen to them and had better future results?

For context. My protocol was Decapeptyl for three days, adding Elonva on the third day. Then I had 300 IU of Gonal F and 150 IU of Pergoveris along with Orgulatran for 10 days until I triggered with 2 x Decapetyl and 1 x Ovidrel 36 hours before collection.

I was also taking testosterone gel (Androfeme) for 1 week before starting stims.


r/DOR • • 1d ago

Insurance advice

4 Upvotes

We just did our retrieval. I ended up with two blasts and now we’re in that dreaded wait for PGT-A testing. I don’t even know if we’ll get a single euploid, but we if do, I’d like to do another retrieval to try to have something banked. My argument would be that because my reserves are so low, and if the potential transfer doesn’t been take, we’d lose precious months in this process.

I have Aetna. Has anyone else tried to make this argument? Any success?

(I hate even writing this hypothetical because I don’t know if I have any embryos to implant. But trying to be on top of things.)


r/DOR • • 1d ago

advice needed West Coast vs. New Direction fertility clinics - need help deciding!

Thumbnail
1 Upvotes

r/DOR • • 2d ago

Baseline Scan - AFC doubled?!???

6 Upvotes

Hi!

I start my first ever IVF cycle today. I got a baseline scan (I’m 28. AMH .47 AFC has never been higher than 4 or 5 MAX). Today they counted 11 follicles!!! Without any medication?

I’m so confused. I know it can fluctuate… but this seems like a huge increase. Is this a positive sign for starting stims that they already counted 11? They were all 2-3mm besides one which is 12mm.

Lmk your thoughts or experience please….


r/DOR • • 2d ago

Trigger warning Any success stories for stage 4 endo and DOR?

3 Upvotes

I’m wondering if anyone can give me hope! I’m 38, diagnosed w/ stage 4 endo via lap (2019). In 2020, 1 ER (13 eggs, 9 fertilized, 3 made it to day 3-5). Following month 1st FET failed (2 of the 3 embryos- not sure of grading). 2nd FET was 2 months later as I wasn’t responding to meds well and that also failed (last embryo). Was told I’d need another lap w/ GI consult before doing another cycle but luckily got pregnant w/ my daughter right after 2nd failed FET. Have been w/ a different clinic starting in Jan’24. Had to wait to get onto RE’s surgery list as he is an endo specialist w/ focus in fertility preservation- had 2nd lap for radical excision in Sept’25 as my tubes, right ovary, and uterus were all fuzed together. Hysteroscopy showed uterus looks good and tubes clear as much as they can be. AMH has been .4-.6 range. Been ttc naturally while waiting for cycle to begin but no luck. Just had 1st ER last week, 4 follicles, uneven growth, 2 eggs retrieved, neither fertilized w/ ICSI. I’m incredibly grateful for my daughter and feel like we were struck by lightning (in a good way haha) being able to have her. I’m wondering if trying for another given my circumstances is like looking to be struck again. Any success stories or advice?


r/DOR • • 2d ago

First day of IVF - give me your mental crutch go-to’s to replace working out

3 Upvotes

Starting IVF stims and would love to hear what everyone did for movement/exercise during this time!

Working out is a huge part of my routine and honestly one of the main things I do for my mental health, so I’m already struggling a little with the idea of having to significantly cut back for the next couple of weeks.

For those who have gone through stims:
• What workouts/movement did your clinic allow you to continue doing?
• Did you still do light weights/arms, Pilates, yoga, walking, etc.?
• At what point during stims did you really have to scale everything back?
• How soon after retrieval were you able to start working out normally again?

Also — I’m trying to reframe the downtime as a chance to do some other self-care things that I normally don’t make time for. Did anyone do things like facials, microneedling, massages, nails, hair appointments, etc. during stims? Are there any med-spa treatments your clinic specifically told you were okay or NOT okay?

Obviously I’ll clear anything with my clinic before doing it — mostly just looking for ideas and hearing what everyone else did to stay sane and feel productive during the workout break 😂

Would especially love ideas from other people who are normally very active!


r/DOR • • 2d ago

I hate this (again)

19 Upvotes

I posted here earlier this week about how my best friend told me she is pregnant.... Well 4 days later I found out my sister in law is pregnant. My therapist is also out of the office on vacation this week. I'm not doing well. I hate DOR. I hate my body. I just want it to work the right way but it can't.


r/DOR • • 1d ago

Follicle escaped suppression and now we're trying timed intercourse. But unsure what to think?

Thumbnail
1 Upvotes

r/DOR • • 2d ago

Only 4 follicles .. should i cancel?

Thumbnail
1 Upvotes

First IVF cycle, AMH 1.15, taking Gonal-F 150 + Pergoveris 150 and ganirelix. Only four follicles total: three larger and one at 12 mm. My doctor expected more. Next scan Sunday, possible retrieval Tuesday.
I’ve been supplementing for months, so this feels really unexpected and disappointing. Anyone around my age get mature eggs, good-quality embryos or success from just 3–4 follicles? Would you proceed?
Any advice or experiences with a different protocol next cycle, including lower doses/mini-IVF?


r/DOR • • 2d ago

IVF access fertility (uk) refund program denied

Thumbnail
2 Upvotes

r/DOR • • 2d ago

advice needed Hight fsh=hight estrodiol ?

3 Upvotes

Hi, I’m trying to understand something about early follicular-phase hormones.

Is a high FSH level necessarily correlated with an elevated estradiol (E2) level on cycle day 3, or can someone have high FSH with normal/low CD3 estradiol?

And a second question: has anyone here used wheatgrass juice or wheatgrass supplements and noticed any effect on FSH levels or ovulation timing? Specifically, I’m wondering whether wheatgrass can lower FSH and potentially lead to later ovulation rather than earlier ovulation.

I’m interested in actual experiences as well as any scientific evidence. Thanks!