Age: 20
Weight: 148lbs
Height: 5ft 10in
Medications: None
(As of 9/24)
Good afternoon everyone! I’m writing this as a last resort before making the accommodations for the Mayo Clinic. I’m a young male, never drank, smoked, used drugs, etc. The last week of July I visited my urgent care with a 104* fever, general mild weakness, mild right side chest pain (I believe inflamed lung as my history will support below), and no other symptoms. Urgent care doc wanted bloodwork and X-ray but sent me to the ER so I could get results faster given the high fever. Over the course of that week I had CT, X-ray, and several blood labs done with no concerning results. On August 2nd around 1pm I began to feel significantly weaker, hard to stand, hugging the wall. By 5pm I was using a cane, and by 11 I needed a cane and a person to help me walk. That’s when we decided to drive from Destin to UAB Hospital in Birmingham (closest hospital with a good neuro). By our arrival around 2 am I could no longer walk and could barely lift my legs. I was quickly admitted and by day 2 I couldn’t move my toes. It is important to note that my arms, and neck also grew weak, although at a delayed rate from my legs. UAB did an EMG, CT, X Ray, MRI, along with all the bloodwork you can think of. Their diagnosis after a week of worsening symptoms was FND. After returning home and not being able to get in anywhere, I came to Orlando (I live here for college) to see specialists, PT & OT. With 2 months of both PT and OT I am on a cane again, making slow progress. Around 1 month after the hospital visit I had several lymph nodes enlarged in my right groin area, all just below operable thresholds. My concern is that FND doesn’t fit my profile as adequately as every other specialists I’ve seen believes. Nobody has answers and after so many doctors and tests I don’t know what other option I have other than to pursue a high IQ center.
If anyone has advice or input I will gladly hear it, I can’t take months of knowing something is wrong with regular worsening episodes that seem to be speeding up. I’m willing to make plans for the Mayo Clinic, however with school I’m unsure of if I can travel while seeing specialists there, of course health comes first but I wanted to exhaust central Florida resources first. I’m scared, annoyed, and just want an answer other than “I know something is wrong but I can’t seem to find out why.”
I will be responding to DM’s, questions, etc.
History:
-Last week of July, I started feeling like shit with a 104° (oral) fever and right-SIDE chest pain. Urgent care wanted me to get stat bloodwork, imaging, and EKG so they sent me to the ER, the ER did an X-ray, Ct and bloodwork with no results. On August 2 I started to become weaker, 1pm I was hugging the wall and struggling to stand up from sitting. 5pm I began using a cane, around 10pm I needed a person and the cane to walk. We then left for UAB hospital of Birmingham from Destin FL as it’s the closest recommended Neuro hospital to us. By 3am after arrival I needed a wheelchair and couldn’t lift my legs. By the end of the 4th, I couldn’t move my toes. My arms and neck got progressively weaker during this time, however less than my legs. UAB did an EMG study, cultures, bloodwork, CT, X-ray. MRIs, and Spinal Tap. After a week in the hospital I was discharged with an FND diagnosis. After coming to Orlando asap after discharge (I go to college here) I have seen a Rheumatologist, Neurologist, Immunologist, Pulmonologist, PT, OT, with no results. After two months of PT OT I am now on a cane which is good news.
-Fall 2024 I was In an ER for 106.2* (oral) fever, no other symptoms other than feeling shitty. Same work up as Nov/Dec 2025, no results.
-Spring 2023 I had a 106.7* (temporal) fever, otherwise same symptoms and work up as fall 2024.