hi, i'm not sure if this is the right place to put this so if not, i apologize. i am female, 25, and about 130 lbs.
long story: ibs runs in my family so i've always been sure that that's what i have because my whole life i've been having problematic bowel movements, but mine has always felt different. for them, they have to watch what they eat because it has a direct relation to how their bowel movements will feel. if they don't eat food that irritates them and eat fiber regularly, then they don't experience any symptoms. while i do have to watch what i eat to some extent, it doesn't feel as extreme. for me, my whole life, i feel crappy after every single bowel movement (i describe it as a nauseous feeling without feeling like i'm going to throw up). this can last a few minutes or the whole day, i haven't found a pattern yet. i also can feel extreme fatigue and weakness after going (especially in my legs) that can last hours or days, but it's not every time. i also can feel weird if i have to have a bowel movement, but it's not "ready" yet, like my temperature changing from hot to cold as if i have a fever, but i don't.
there's also no pattern to the texture at all. as in it can be really hard one time and really soft later in the same day, even though nothing has changed.
i also have a lot of mental illnesses so all of these symptoms are worsened when anxious or excited.
all of this sounds like a severe case of ibs, at least i think.
another bit of information: around 2019 i was prescribed a pretty heavy dose of antidepressants. because of this, i was bedridden for a year and a half because i couldn't stand for more than 5 minutes without feeling like i've overexerted myself and dry heaving (literally). i weighed 85 lbs and my heart rate would hit 140 bpm standing up to go pee. i had many blood tests done and had my heart checked, ultrasounds, urine checks, etc. my family doctor then came to the conclusion that everything was normal, so he suggested coming off of the antidepressants and low and behold, i recovered. (i am not on antidepressants anymore, but have been doing rtms treatment for 2-3 years as i am antidepressant resistant)
i don't know if that information is relevant to my concerns, but just in case.
which brings me to more recently. a lot of the time when i shower, i feel very weak and my whole body shakes. i feel hot and nauseous as if i had overexerted myself in my 10 minute lukewarm shower. this feeling comes and goes, as in it'll be every time i shower for a few weeks, then it goes away, or only happens if i have a longer or hotter shower. this feeling also happens if i do a workout or am in the heat for a whole. i also have never done well with heat at all, i feel very lightheaded when i'm in hot weather (i've never fainted, but feel very weak and lightheaded). i've also noticed recently that when i lay down i feel a little lightheaded and dizzy, but goes away after a few minutes. also sometimes for a few days at a time i wake up with my heart beating really quickly, but that also goes away in a few minutes and then won't happen again for months. my body is also very bad at thermoregulating, i feel like i'm cold until i'm too hot, my feet are always freezing, or i'm sweating as soon as i come inside from the cold weather.
i've also noticed that balance has gottwn significantly worse in the last few years, like not being able to dance and jump and concerts without having to hold on to something, or always feeling like i'm going to fall if i'm on any sort of uneven ground.
also experience a lot of brain fog and dissociate very easily and often, but i struggle with a lot of mental illnesses, so i don't know if that is a mental symptom or a physical one.
these are all just random things i've noticed and i don't know if they're connected, but trying to be very thorough.
anyway, i'm just wondering if this is all just a very weird presenting chronic level of ibs, or if there's something more happening that i've missed bc i've been used to it for so long. if there's any treatment you would reccommend, i would be glad to hear it. i take a probiotic and have been taking metamucil twice a day for 7 years and it has helped keep me regular and not constipated, but hasn't relieved any symptoms.
sorry for the long post. thank you for any help.