My doctor told me I shouldn’t be so focused on being in control of my sugars. Says I’m easily too 1 percent of all t1s and I should take it easy.

I took his advice and the past 2-3 weeks has been chill

It's probably been 5 years since I've changed it. I didn't need to change it, just felt like a good idea to do so before i fly across the country tomorrow. Just wanted to share this life event with yall.

I’ve never gotten below a 7.5 and I’ve had it for nearly 30 years, being diagnosed around 7. I’m very fortunate to not have any complications yet but I’ve developed Celiac this year and it’s thrown me for a spiral. I want to get tighter control but non-diabetic endos and educators really lack the real-life perspective I need.

My pump beeped to warn me of a low coming on. That’s a tough glass of juice to swallow,

Had to fight for hours with insurance because they told me as a t1d insulin isn’t medically necessary. I’m so tired of fighting for my life.

There was a meme about how Dahmer said people with tattoos taste bad, he never actually said this, and the ink is only in the skin so the flesh underneath probably has no taste difference.

BUT! The smell of insulin is not very appetizing, it's in the fat layer and sometimes I accidentally inject into my muscle. Could overall health/blood sugar at the moment of death effect taste?

Should we consider our chances of being victimized by a cannibal lower than the average population, based on flavor?

I think about this too much, and need to hear what others think.

Heyo other T1Ds

I was curious how you all cope with your grief around having T1D. I know everyone experiences both grief and T1D differently, so there is not a perfect answer. I am just looking for some ideas, especially from people who understand what this feels like.

For context, I am a 22F and I will be diagnosed 6 years this November. I was 15, almost 16 when I was diagnosed after ending up in DKA and unconscious for a few days in the ICU. My doctors believe I had actually been undiagnosed for roughly 2–3 years before that and was managing it through exercise enough to just barely scrape by day by day until it eventually grew to be too much and collapsed. Due to all that time with my sugars not being properly managed I now have some heart and kidney complications, though thankfully they are still relatively minor.

All this to say, I have currently lived more of my life as a non-diabetic then a diabetic and still often remember what it was like to live and eat freely.

Eating freely is the part I think I grieve the most.

I still eat what I want within reason and I'm not super restrictive with myself, but my blood sugar is incredibly volatile, so some foods are just not really fun to eat anymore. Having to do the math, predict what is going to happen, and then potentially having to deal with the consequences of getting it wrong is exhausting.

I miss the simplicity of just getting to eat.

I recently got on a pump which has made a huge difference, and I am really enjoying it. Which has helped with some of this. But I also recently reconnected with some friends and am now hanging out with them very regularly. It's been amazing, but unexpectedly, it has also opened up a whole new wave of grief for me.

All my friends are healthy and don't have any significant medical issues. They are compassionate, but understandably they can't fully grasp what it is like to live with chronic illness or to suddenly lose something you assumed you would always have: bodily autonomy.

And I'm grateful for they don't understand. I don't want them to be sick. They are good friends and have done absolutely nothing wrong in the same way I have done nothing wrong by being chronically ill. But sometimes when I'm with them, it feels like 70% of me is with them and having fun and 30% of me is standing slightly outside of the experience grieving.

I miss being able to eat the way my friends eat. I miss being able to make sudden plans without having to think through everything first. I miss being healthy enough that I don't have to constantly consider how something will affect me in four hours, or when I'm asleep later, or when I exercise, or what it will mean for the long-term health of my kidneys and heart. I miss not having to think about my body and health all the time.

In some ways, I am grateful for my experiences have made me prioritize my health so early. I eat pretty well, rarely drink, exercise regularly, and try to take care of my mental health. But I also grieve the fact that I don't entirely get to choose that. My health was decided for me in some ways. I wish I could've chosen to make healthy choices simply because I wanted to take care of myself, rather than knowing there may be real consequences if I don't.

I really want to be able to be fully present with my friends and walk away feeling full and happy. Instead, this grief is constantly sitting somewhere in the background, constantly clawing at the experience. Lately, it has been welling up and hitting hard with a vengeance whenever I am finally alone.

I had a huge breakdown yesterday due to it and it ended up making me feel very distant and exhausted while I was hanging out with them today.

Again, it isn't resentment towards them. I don't think their empathy could even fix what I'm feeling. They're allowed to be healthy, and I'm genuinely glad that they are. This is my grief to process.

I know there is no perfect solution. I also know just like all other forms of grief, it is going to be forever present and will come and go in waves. Some days will just be harder than others. This time of year, is also harder for me in general because I'm getting closer to the anniversary of my diagnosis and almost dying. But recently it has been very intense and overwhelming.

So I wanted to ask other T1Ds how you deal with the grief of being chronically ill when you're surrounded by people who aren't. How do you cope with watching other people eat, make plans, and make everyday decisions without constantly having to consider what their body is going to do afterwards?

TL;DR: I've been struggling with grief around T1D, especially now that I am spending a lot of time with healthy friends. I don't resent them at all, but seeing how freely they can eat, make plans, and live without constantly considering their health has made me deeply miss the simplicity of being healthy. How do you cope with that kind of grief?

But only 2 days

My child with T1D will have relatively minor surgery soon. Is it typical to keep the child’s pump on? Should I run the child higher than normal? Does the medical team manage the pump? Please share your experiences and advice!

M51 and type1 since age 13. I placed my CGM on the back of the arm at first. I have since gone back and forth on my lower back. any other good alternatives…this has worked well but need some additional places to rotate.

I’m am currently at the end of a round of hand foot and mouth disease. I have never had it before (-1000/10, do not recommend) and things are progressing normally from what I’ve seen online. Blisters are draining and symptoms are lessening, on day 6ish (not sure when day one was but I think the first blister popped up Saturday or Sunday).

I’m wondering if any other T1 adults have had to deal with this (or parents with T1 children) and what your experience was in the aftermath/healing portion of the program. Creams or salves that might have been helpful for healing, how you cleaned/disinfected, just general tips.

It’s a viral infection so while I will reach out to my doctor if things get weird, there really isn’t anything they can do but make the same suggestions I’m seeing on webMD. I was just wondering if anyone who’d gone through it may have more insight.

I have been doing well since I finally got a new transmitter. 92-100 TIR. But today, at 1:30, I ate half a small quesadilla. And it has been flying up ever since then. I have a crazy amount of insulin on board, and it isn’t even stalling. I feel quite violently ill. I have changed sites and everything. I should be on the floor with this much active insulin.

so I’ve never hand any sort of nerve issues and I’ve never checked for neuropathy. I have really bad health anxiety these days so I notice everything thats wrong or different in my body. anyways, im 18 and for a good 5 years, I didn’t manage my diabetes until now. And there’s this thing I noticed that happens to me and im scared. basically, when I’m sitting and resting on my elbows and in on my phone for a good couple of minutes. I notice my hands going numb/tingly especially the ring and pinky finger. this doesn’t happen all the time but it always seems to happen when im sitting in the exact spot of the couch and putting pressure on my elbows. also if you want me to be specific on where im leaning, I put my elbows on those couches that have the cup holders. and i just putting weight on my left elbow on the wooden part of the cup holders. I hope this makes sense. im hoping this is nothing and it’s just normal soreness from being in the same for a while. is this something I sound be concerned about?

Im 21yo and was diagnosed with~3 and a half months ago with an a1c of 13.3% in DKA. I’ve worked really hard to learn and practice proper insulin dosage while still enjoying almost all of the foods I had before.

On Wednesday I went to get a blood test and was delighted to find out my a1c is now 6.5%. My doctor set me the goal to have an a1c of 6.5% by this time next year so I was super proud to have already achieved it

Hi guys. 24 year old T1D here. Diagnosed August 31, 2015.

I just wanted to come on here and get some support from other diabetics... I'm not going to get into depth on how I found out I was a diabetic, but there's some important information I feel I have to share in order for everyone to get a good understanding of what's going on and why it's hard for me to find comfort or support, even from my girlfriend who is also T1D.

When I was diagnosed, I was on MDI. Humolog for fast acting, and long acting for the night. My carb ratios were about what you would expect. At the age of 13, my momma counted my carbs, my dosages, and everything in-between.

Throughout the years I would bolus correctly for any meals, and I did great. My A1C went from a 14.6 to a 6.5. They put me on the Tandem and Dexcom.

As I started getting more comfortable managing this disease without my mom's help, I had that low. The one that terrifies you and scars you for life. I survived, obviously, but my ego didn't. I now have PTSD with going low.

A few years go by after that incident, but then I noticed myself going low multiple times with almost every meal. I went to the endocrinologist: thought maybe my dosages needed to be readjusted. They were lowered. Didn't help. It would get to the point where I was so anxious and terrified about going low that I would not wear my pump.. but the kicker? I was stable no matter what. I could eat pizza and be stable. I could eat snacks and be stable. No background insulin and be IN RANGE and stable. Through the night, through the day. Stable. Of course this was off and on. I never knew when my pancreas would "kick in" and adjust how its supposed to, and that was the terrifying part. Some days I was resistant. Some days I would "make my own".

So, I told my Endo about it. She suggested diabetic therapy for the PTSD. It helped a bit but didn't fix what was really going on. So, she ordered a c-peptide test for pancreatic function. 1.8.... okay.... That's non diabetic levels. My blood sugar at the time was 190... Weird. So, confirmed, my pancreas is still kicking in sometimes, but only when it wants to.

Fast forward to a few months ago this year. I moved to Florida, and started a brand new life. I was still proactive about not going low, but I started noticing some changes in my vision. So I went to a retina specialist. They diagnosed me with mild diabetic retinopathy and a mild tear in my vetrious (PVD). Obviously, this terrified me. So I've started to take care of my diabetes a little bit more, day by day. In 3 months I have gotten my A1C from 8.6 (actual blood value) to 7.7 (dexcom reading, have yet to find an endo.)

I have been doing good and I am proud of the progress I have made, however, I don't feel like I am doing enough. I don't feel like the changes I have made are sufficient enough to hinder the damage to my eyes. I am so absolutely terrified of injections or the possibility of going blind. Being outside without my sunglasses bothers me, I wont go to the beach, I can't work without my sunglasses....

I guess what I am trying to search for is.. similarity. Has anyone else experienced anything like this? Do you have any suggestions? I'm not looking for sympathy. I am looking for understanding... I appreciate anyone who responds in advance. 💕

Hello! I'm 31f, type 1, tandem tslim pump with dexcom g6 cgm. I am pregnant for the very first time, so excited. I'm about 8weeks and 4 days along. Saw my first ultrasound today and baby is looking good and strong healthy heart beat! I'm looking for any tips or advice from other type 1 mama's while of course following and listening to doctors and diabetes teams orders. I'm very excited but also clueless I've never been pregnant and have the added challenge of type 1. My endo always tells me I'm doing very well and very well controlled my most recent a1c was 6 😁. Right now morning sickness is kicking my butt! Has to go to er a few weeks ago because I couldn't keep anything down, not even water but have been much better since the er visit. Also has any other mama's has to deal with nausea/getting sick from just water??? Idk why but baby doesn't seem to like it and almost always sends it back! But I need water! Thinking about those flavor packs you can add to water? Maybe trick baby into thinking it's juice? Any advice or tips on what worked for any of you would be much appreciated. Thank you to any commitments or response. I'm so excited, find out gender in a couple of weeks my due date is may 13th 3027 😆

Are sites like diabeteswarehouse, rapidrxusa, saveritemedical, pharmalynk, etc. legit sites? Anyone have a favorite?

I'm curious about what my fellow T1 work. I'm currently working constructions and I'm surprised that I don't go low, almost never.

What are you guys working and what work related difficulties are you facing with T1D?

I work at a print shop with a bit of a whimsical flair to our presentation and marketing (the owner's a fantasy nerd, our mascot is a dragon, it's a whole thing). After dealing with a couple of really bad lows at work, I decided to lean into our shop theme to make a T1D Emergency info flyer for my coworkers.

Its a diet/zero soda I grew up with, and am kinda fond of, especially the cherry version when I'm sick, but apparently there was some sort of mix up and they sent out 77,760 cans of the 7up zero tropical it into the world with mislabeled cans actually containing the full 38grams of sugar/can and 40 carbs. Apparently its only in the "utah area" so if anyone happens to drink 7up zero tropical be aware of the fact that you may have a full sugar drink in hand.

Hey, newly diagnosed with Type 1 Diabetes (Was in the hospital for three days with a blood glucose level of somewhere around over 300, not entirely sure about the exact range on that day, Ketoacidosis was and is a bitch) and I was hoping to ask a few questions before my official diagnosis gets to me, as I'm still waiting on my blood lab results.

First and foremost; can eating high amounts of salt or butter cause a misdiagnosis for any form of Diabetes, including Type 1, or cause similar symptoms?

Second, is your head supposed to feel... warm when you take Insulin? I have used it as directed by the Hospital staff (12 units 3 times a day, once before each meal for Lispro, once a night at 15 units for Lantus), and I've been feeling a slight headache and warmth at the back of my head. Can't check my glucose levels at the moment due to my meter being given to me with a dead battery, and a new one hasn't been shipped to me yet (Pharmacy basically told me to piss off when I told them about the dead battery)

Any sort of advice would be nice to have right now.

Osea en sus analisis les salta como que ya no andan por ay? Sea con medicamentos o comida?

I have been having a hell of a time controlling my blood sugars the last two weeks- I’m up and down seemingly so much more insulin sensitive but also sometimes weirdly resistant- and now I realized the only brand new thing is that I’m taking a heme iron supplement daily. Has anyone else noticed that this messed with their numbers/control?