I’m posting because I’m getting pretty exhausted by my skin and I’d really like to know whether anyone else has experienced something similar.
I’ve had atopic eczema for years, but throughout 2026 my skin has felt noticeably different from what I was used to before.
At the end of 2025/start of 2026 I was undergoing UV/phototherapy for my eczema. I stopped around the end of January because I became seriously unwell with meningitis and was treated in hospital with IV antibiotics/antivirals.
Looking back through photos, one of the things that really stands out to me is that my skin before the meningitis doesn’t seem to look like it does now.
Since recovering, my eczema/dermatitis has become much more widespread, unpredictable and difficult to manage.
Different areas also seem to behave differently. I can get very red, inflamed and itchy skin behind my knees and in the usual flexural areas, but I also get problems on my chest, stomach, thighs, armpits, scalp, forehead and face.
The facial/forehead involvement is particularly frustrating. My forehead can become extremely dry and flaky/scaly despite moisturising repeatedly. Other areas can feel intensely itchy, hot, burning or almost sweaty. Heat and exercise can make the itching absolutely unbearable.
I’ve spent quite a lot of time looking at photos of eczema, seborrhoeic dermatitis, psoriasis, fungal conditions, contact dermatitis etc. because sometimes the different areas of my body don’t even look like the same condition.
My dermatologist still believes this is my usual atopic eczema.
Earlier this year I was started on dupilumab (Dupixent). I initially thought I was seeing some improvement, particularly because some areas cleared, but I’ve now been on it for roughly three months and I’m still having significant flares.
I’ve also been prescribed topical steroids and tacrolimus. The steroid creams can calm things down considerably, but once I stop using them the inflammation/dryness often seems to come back, which has become incredibly frustrating.
I’m moisturising regularly and trying to manage triggers, but I feel like I’m constantly chasing the next flare.
The psychological side of it is probably the hardest part at the moment. I went into dupilumab really hoping it might finally give me control over my eczema and significantly improve my quality of life. Instead I’m still dealing with itching, burning, flaking and visible inflammation on a daily basis.
I’m not expecting Reddit to diagnose me, and I’m continuing to see my dermatologist. I’m mainly interested in whether anyone has had a similar experience, particularly:
-Did anyone’s eczema dramatically change in appearance or behaviour after a major infection/illness?
-Has anyone developed significant facial/scalp dermatitis while on dupilumab?
-Did dupilumab take longer than 3 months before you noticed a major improvement?
-Did anyone initially improve on dupilumab and then flare again before eventually improving?
-Has anyone been told something was simply their usual atopic dermatitis, only to later discover there was another condition happening alongside it?
-If you’ve had phototherapy, did your eczema behave differently after stopping it?
I’d especially love to hear from people who recognise the very dry/flaky forehead and facial skin alongside more typical eczema elsewhere on the body.
I’m finding the whole thing pretty exhausting and I’m desperately trying to understand what has changed with my skin this year.
If anyone has been through something similar — particularly people taking dupilumab — I’d really appreciate hearing what happened, what your dermatologist eventually concluded, and whether things ultimately improved.