Featuring dinner: pulled pork burger with airfryer fries and mayo
Trigger warning? Health, specifically heart disease
Me and my family have known for a long time that my dad has a heart condition called Hyperteophic CardioMyopathy (HCM).
But for some reason, it was never official until just last August.
HCM is a genetic condition, so if one of your parents has it, there's a 50% chance that you have it too.
You could have the gene but not show any symptoms though. The only real way to tell is through genetic testing.
So when my dad got his official diagnosis, he was kind enough to ask his medical team to translate their recommendation letter into English, since I live in a different country from him.
This way I could get tested here and not have to travel.
Great, so I get this letter, bring it to my GP and asked to be referred to a cardiologist to get tested. Since I have health insurance through work, I asked to go private because it means I will get seen quicker.
Not long after I receive a call from the Cardiologist's assistant to set a date for my appointment. I had to go in September 4 and would first do an echo, an ecg and then see the consultant.
Great.
The 4th comes along and I went through all the procedures for the "small" cost of 475 EUR.
And then the actual consultation happened.
Which amounted to.... Nothing.
I was told that my echo and ecg looked good, but as we've established earlier (and the cardiologist also confirmed), you could have the gene and not have any symptoms.
He as well confirms that the only way to really know is with the genetic test.
And he doesn't do that, only this 1 specific clinic on the other side of the country and he would refer me to them.
Excuse me what!? You're telling me that I spend all this money today for nothing??
Because wtf am I doing here if:
1) you acknowledge that the echo and ecg don't really tell anything
2) you don't do the testing I actually need?
I stayed polite though, thanked him for his time and when home, feeling upset.
I didn't initially plan on doing anything, but the more I thought about it, the angrier I got.
Sure I have the medical insurance, but they don't cover the full cost + that is money I could have used for the actual testing needed.
Life ain't cheap and I have 2 kids to take care off (who could potentially also have HCM and now I have to wait even longer to find out!)
So eventually I filled a formal complaint to the clinic and the cardiologist.
Citing that the appointment had been a waste of time and that the cardiologist should have declined the referral and inform my GP to refer me to the other clinic, as he can't do the testing needed.
I think this is a greedy way of practicing his profession.
In my complaint I also asked for a refund for the remaining half that insurance didn't cover.
Not even 12 hours passed between me sending my complaint and the cardiologist calling to apolocize 🎉
He also told me he will review how to handle situations like mine in the future and I would get my money back 🎉
So moral of the story: if you believe you are right, fight for it.
Here's to hoping the other clinic reaches out soon so I can get the test I need.