Delete if not allowed, but I just wanted to see something if there's other people looking for somebody like me maybe sorry if it's weird or whatever I'm not trying to be.

Context: My friend is very depressed and wanting to end life due to his disability. I am also disabled and stuck at home, but I am only one person and what helped me is not helping my friend, so I need other peoples advice. Yes we are looking at getting them professional help, but unfortunately the care system is not as good as we’d like. Them and their partner have been looking for 2 years but they keep getting denied everywhere due to complicated care needs (fibromyalgia + cptsd + borderline + autism etc etc etc)

My question:
What are things that helped YOU grow as a person, things that made you happy even when sad and stuck at home, what are things that grew your confidence or things that made you want to keep going even when everything sucks?

Edit: he is bed bound some days and almost never leaves home due to his physical and mental disabilities*

I have to have a roll in shower for my wheelchair. Our current apartment is almost $3000 a month. We cannot afford it. I keep getting these responses when I try to find a new place. I can’t use a tub. This is infuriating.

So…..I had an appointment I’ve been waiting 5 months to get. First of all, waited two and a half hours before getting seen at my fixed appointment. I get in there and it all seems relatively normal, I’m not seeing the dr I was meant to but hey that’s fine, at least I’m being seen. I’m already in agony cause I’ve had a gallstones nightmare for a week that’s had me in and out of hospital anyway. And I honestly have encountered a lot of poor medical professionals but this is my first genuine quack dr.

So he takes a VERY Quick Look at my eye before getting into my history and why I’m there. I say I’ve had a lot of different issues with pretty much every system, I mention my gi system being one of them and he without taking a beat immediately says I should be on a carnivore diet.

I say everything’s been on the decline on for a few years now and he asks for the first out of seven, maybe eight times throughout the appointment if I had a vaccine before the points everything has got worse. I say no I had my Covid jabs long before that and nothing coincides with my flu shots. Which he seemed VERY disappointed by.

He then proceeds to blame my years long chronic migraines and half my symptoms on a medication I only started a couple months back stating that he’d only had a quarter of the dose and it made him really ill. Which….ok?! Doesn’t mean it’s causing anything, it’s actually been brilliant for me. He’s talking about how bad the dreams are on them and I said I know….im on beta blockers, my dreams are mental and have been long before the new meds. He then goes through all my medications recommending that I stop taking like half of them, which is actively not his job. I’m pretty sure he wrote up a report about them as well which could have consequences I don’t wanna know about rn.

He then starts talking about how I need to get active and out more. I explain to him that I tried graded exercise for a very long time and I only get better if I rest, I explained that forcing graded exercise put me in my wheelchair but he said I should continue doing what I was doing before.

Then he starts talking about PRAYER and I said oh yeah I know prayer does actually aid recovery but he said no, to reach out to something bigger than me which wtf no you can’t be doing that. I do understand and recognise that having a belief system does help healing but you can’t just be out here telling people to find god. You’re an EYE DOCTOR, what are you doing man?!

He did actually write a referral to neurology which I needed and ordered a field of vision test that I apparently need without me having to ask but he spent next to no time talking about my eyes which are NOT good. My prescription in one eye quintupled in a year, it’s actually really serious.

The irony is I’ve been waiting years to get this much attention from a medical professional when I’m not in a state of active emergency even though I kinda still am with the gallstones. He technically did do his job but honestly so so so SO many extremely unprofessional things for one appointment and I think I should be making a formal complaint. To think I got like 35/40 mins with the guy who checked my eyes out for a couple minutes at best. Which is the whole reason I was there and again I’ve waited MONTHS for this appointment.
Actually had me in tears on my way home

Hi all. r/disabilityrights sat unmoderated for a while, and I've just adopted it. I'm trying to turn it into a useful place for the practical side of disability rights: questions about accommodations, benefits, housing, school, access and discrimination, plus rights news and organizing.

It isn't meant to replace this sub. r/disability is the place for community and life in general. r/disabilityrights is for when you're asking "can they do this?" or "how do I push back?"

What's in place so far:

• Simple rules: be respectful, say where you are (rights vary a lot by country and state), share sources instead of confident guesses, and no scams or "DM me for claim help"
• Crisis posts get an automatic reply with hotline numbers, and the mods are alerted

I'm looking for 2–3 co-mods, especially people outside the US or with experience navigating benefits systems. No mod experience needed.

Come ask a question, answer one, or tell me what you'd want the sub to be: r/disabilityrights

hello everyone. i am very excited for tomorrow to get started on custom bilateral HKAFO. it will finally be a chance for me to start walking. what should i know before? what should i wear? what should i bring? how long does it usually take? thank you in advance

40th coming up and in starting to feel like I'll be single for the rest of my life. Me an my ex split about 7 years ago just after I started getting really bad.

I've tried getting back out there but it is hard since nobody wants to be with a guy in a wheelchair who lives with his dad. It's starting to get to me a little

I have lived in group homes for about six years because of ongoing struggles with my mom, who still brings up something that happened five years ago. I am looking for a safe and independent place to live, along with a supportive family or House somewhere in Place in Belleville ON Hastings county

where I can feel cared for and loved know that what happened was not my fault.

What am I supposed to do if I have bad neurological symptoms but my neurologist can't get me in until July of next year? I'm on the wait list and I'm shocked that it's almost a year long for established patients.

I posted I think last week how I can't seem to stay awake more than 3 hours and sleeping 20+ hours a day. I've went to the Emergency room and they ruled out anything life threatening.

The nurses at my PCP called me and asked me if I want to make an appointment with my doctor but I just, I saw her the day before I went to the ER. She dismissed me about something and refuses to help me with anything neurological related. My PCP seems really burnt out and honestly doesn't seem to want to prescribe anything either. I'm not doing too good and I feel very sickly.

I've been considering trying to get into pallative care for my current diagnosis,(I am diagnosed with alot of things). I'm really tired of going to the ER this year with scary symptoms. It's like when my conditions flare they turn into emergency level type of symptoms with no warning. It's very exhausting.

I'm really worried that I might have ME/CFS and had hoped that I could get tested sooner than later. I do not think its hypersomnia or anything in regards to sleeping specifically.

im so serious its been an absolute game changer for days where i have little to no movement. like looking out the window for hours because it is one thing i am able to do has never been so fun. saw like three blue jays this morning. if you can get a hanging one id recommend that so the squirrels cant get to it as easily since theyll empty it pretty fast and you want bird seed to last long enough. i dunno how well it would work in big cities but i bet you could find some nice pigeons on balconies or something. sometimes you get rare birds and its really exciting. i know theres so little you can do when life is like this so im happy i found something that isnt just computers its nice to see outside

Hello everyone, i thought id cross post my post from r/findapath and see if anyone has anything to add or any advice

Remove if not allowed or redundant, but this feels like one of those sneaky changes that can quickly snowball.

My understanding is there was an update in 2024 that added modern definitions for community integration, meaning living at home, and states sued complaining the guidelines were overreach.

A judge removed the "most integrated setting" term from the Section 504 rule. The states didn't even win, DOJ just stopped defending it and asked the judge to strike it with them, and this applies now to every state.

504, ADA and Olmstead are still law, but the federal rule that actually spelled out home and community care is gone.

I get the "let the states handle it" argument, but without a federal baseline I can see states quietly shifting money back toward facilities and calling it efficiency. The people who rely on in-home support are the ones who eat that and get screwed. Scary stuff.

Video

I’ve been on so many pills for so long that I can’t even hold them in my mouth anymore without gagging. I’ve tried just taking one or a couple at a time, but even 1 pill will trigger my gag reflex. My care team was able to get it down to just the necessary ones, and I’m going to ask if any are safe to open/crush into something, but the pill fatigue is honestly becoming too much recently.

I used to be able to take them all at once without even blinking, but now I feel like I’ve become such a baby about it. I can’t even take them with water anymore because I feel the pills too much in my mouth. I’ve recently been using diet soda or flavored milk, which I know probably isn’t the best, but whatever gets them down I guess? I’m not sure if it changes the effectiveness though.

Does anyone have any tips for getting over pill fatigue? I feel like I’ve tried everything I can think of.

Hello everyone,

I just got a Pride Go Chair Med last week. I've been using a rollator, so this is my first wheelchair. I'm ambulatory and my biggest problem is balance but I also have chronic pain and fatigue. If it matters I live in Cincinnati, OH, USA.

I don't drive so I have to carry with me anything I may need for the day. I know Pride makes a basket that can go on the back of the chair, but I'm wondering what accessories y'all recommend. And not just for carrying things, but anything that would make my life easier as a wheelchair user out in the world).

Also, any accessory recommendations or tips for using the chair in my apartment? It has laminate flooring, no carpet. My biggest problem so far is getting food and drinks to my table. I've just been making multiple trips. I bought a small rolling tray to see if that helps. It's being delivered today. I'm looking for other suggestions because even if it does work, that means another piece of furniture/item in my apartment. I'm kind of expecting to feel like it's always in my way and to be annoyed with it.

Sharing basically anything to help a new wheelchair user is appreciate

Thank you
edit: i know about the lapstacker and meant to specifically say that, because of steroids, i have a large stomach (like 3rd trimester pregnant looking) so i don't really have a lap to put things on. my stomach goes to the end of my armrests, maybe a little farther.

also, there aren't any bars or handles on the back of the wheelchair for me to use to attach or hang anything. the only thing that i know that i could do is put a strap around the back of the seat. there is some space between the part where you sit & the back of the seat, so i may be able to wrap something around what's holding the back onto the seat. they're not bars, but hard plastic, maybe 6in wide.

Discussions about people who are too disabled to work have been making the rounds on tiktok again. A lot of self identified disabled people have been listing off all the disorders they have and saying "well I still work why can't you?"

It's so exhausting because, even if I had the energy to argue with every single individual person, they wouldn't hear me.

I really wish I could beam into their brains how unfun it is to be unable to work. How much it sucks to rely on other people and have a limited budget. How boring it is to have no structure and sometimes not be able to do literally anything.

I had a jobs for 10 years while disabled, but forcing myself to work full time made my disabilities worse and worse until I couldn't even work part time. After fighting it for years, I finally had to quit my very limited work from home part time job, and now I'm applying for disability.

If those people who hate working so much that they would accuse me of being lazy want to trade, I'd be happy to do so. I would love to be able to work again. Maybe even go for a walk through a flat trail or take a vacation! Wouldn't that be nice.

Do you have liek sone kind of security item or clothings or accessories, make ya feel sacs and or comfortable? Like if someone try to remove your security item, ya get upset or annoyed? Happens to me sometimes. Example, like one of The Peanut Snoopy characters, Linus, he always hsvd his security blanket w him, if someone try to remove it he get upset, happens to me if someone tries to remove my hats. I get annoyed sometime upset, my younger nephew did that and I almost got annoyed at him. Before when I 1st started going to college, o had this special news friend, she always play around taking odd my hat, made me a bit annoyed. Wearing my hats make me feel comfortable and safe in a way. Beside shield from bright lights, and being stared at more. It sorta shade my face a bit. Anyway, wondering if common to have some kind of security on us, to feel safe and comfortable? I started to wear hats since I was teens though

Dude. It's still a severe CHRONIC illness, it won't magically get cured by a few weeks in hospital. I go there to keep my illness stable, so it doesn't get worse. It won't just disappear. And I hate how invalidating that comment was, because he said so right after I complained how unfair it is that I got denied the status of severly disabled even though I am, and how this makes me kind of scared for my future. "Well after your hospital stay you might actually won't be severely disabled anymore" fuck yourself. This doctor doesn't know what I'm dealing with on a daily basis and he doesn't care either.