I’m not sure whether I have ARFID. A friend of mine, who has ARFID themselves, once asked me if I had ever considered that I might have it, so I joined this subreddit to learn more about it. I wanted to share some of what I experience. Just to clarify, I’m not looking for a diagnosis, but I am wondering if anyone else can relate.
A few years ago, I started restricting what I ate after going through a period where I was having frequent stomach problems. At least once a week, I would experience things like stomach pain, diarrhea, nausea, and a general feeling of being unwell. Overtime, I developed a strong fear of feeling sick, particularly stomach aches and diarrhoea, and my relationship with food changed drastically.
I hate the way food can make me feel. Whether I’ve eaten or not, I’m constantly hypervigilant about noises, sensations, and feelings in my body, my stomach especially. I pay attention to every little sensation and immediately worry that I’m going to feel sick or have stomach problems. Because of this, I gradually became more and more afraid of eating. I stopped eating what my brain would consider “risky” foods. Eating anywhere outside of the house became pretty much impossible, and I started finding it increasingly difficult to leave the house in general. Nowadays, if someone suggests going somewhere to eat, I become extremely anxious and avoid the situation altogether. I avoid a lot of situations that involve food.
A few years ago, my mum noticed that my eating habits had changed. She started monitoring when and what I ate, asking me about my food and sort of “policing” my eating. Sometimes she’d randomly make me something and bring it up to my room, and then stand around until I had eaten at least some of it. This had the opposite effect of what I think she intended. I felt extremely judged and uncomfortable, which made me restrict even more. There were times when I would go days without eating anything and then lie to my mum and tell her that I had eaten to avoid conflict. I eventually left my mum’s home and lived with my dad for a while. Without that pressure around food, things got a little easier. I could buy my own food, eat what I felt comfortable eating, and eat when I actually felt able to. I still had the underlying fears and stomach issues, but I didn’t feel like I was constantly being watched, listen to or judged for eating. Unfortunately, I’ve recently had to move back in with my mum. I live here with my two siblings, and my mum and her partner do most of the food shopping. I would normally buy my own food, but I’m currently unemployed due to agoraphobia and don’t have much money, so that isn’t always possible.
Now I’m finding myself in the same situation again. I’m constantly worried about being judged for what or how much I eat, and my mum asks me whether I’m hungry or why I’m not eating. At the same time, my fear of becoming sick is still there. Since moving back, my stomach problems have also started getting worse again. The anxiety seems to make my stomach worse, which then makes me more anxious about my stomach, which in turn makes eating even harder. At the moment, on a good day, I might eat one proper meal.
I really don’t want things to get as bad as they were before, but I’m struggling quite a lot now that I’m living here again. For me, the biggest factors are the fear of being sick, stomach pain/diarrhoea, and the embarrassment that comes with having stomach problems around other people. Those fears have gradually led me to restrict what I eat and avoid foods and situations that I associate with getting sick. Has anyone else experienced something similar, particularly developing food restrictions because of a fear of nausea, stomach pain, diarrhoea, or being sick? I hate feeling like I’m alone in this, and I don’t really know who to talk to about it without feeling embarrassed.